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narcolepsy survey

Survey: Weigh in on Narcolepsy Research Priorities

In partnership with the University of Arizona, Project Sleep is conducting an important survey to capture perspectives of the narcolepsy and hypersomnia community. The results will be discussed at the SLEEP2 Narcolepsy Meeting on June 3rd, 2017 in Boston, MA. This critical survey…

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Rising Voices of Narcolepsy Schedule & Application

Project Sleep is proud to announce that we are now accepting applications for our newly launched Rising Voices of Narcolepsy program. This leadership training program will help people with narcolepsy effectively share their stories through public speaking or writing with…

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Thank You From College! Jack & Julie Narcolepsy Scholarship Recipients 2016

You made a difference in 2016. You gave students with narcolepsy something intangible: motivation, empowerment, recognition, and a sense of community. Your generosity supported a record fourteen Jack & Julie Narcolepsy Scholarships in 2016. This holiday season, our recipients say thanks to...
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Julie Flygare, Joe Selby, and Sai Parthasarathy

PCORI Engagement Conference unites scientists and advocates to make sleep research more patient-centered

The Strategically Leverage Engage and Empower PCOR in Sleep (SLEEP2) project held its first conference on October 7th in Bethesda, Maryland. SLEEP2 is a new project co-led by the University of Arizona, the Sleep Research Network, and Project Sleep and is funded by…

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Project Sleep & University of Arizona project selected for PCORI Engagement Award

We are thrilled to announce that Project Sleep has been selected for an Eugene Washington Patient-Centered Outcomes Research Institute (PCORI) Engagement Award in collaboration with the University of Arizona and Sleep Research Network. View University of Arizona’s Press Release. The PCORI-funded project, “Strategically Leverage Engage and Empower PCOR…

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Meet the 2016 Jack & Julie Narcolepsy Scholarship Recipients

Project Sleep is proud to introduce the 14 recipients of the 2016 Jack & Julie Narcolepsy Scholarship. Please join us in cheering on these inspiring students who exemplify courage and hope while taking on college with narcolepsy. Meet the 2016 Recipients: Jack Agnes Oakdale, NY Jack...
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New Patient-Powered Research Community for Sleep Apnea

The web-based community portal, www.MyApnea.Org, is now recruiting patients with and those at risk for sleep apnea to join a growing community of patients, caregivers and researchers to better understand sleep apnea through information sharing, support and research. The network…

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Re-Cap: SLEEP IN 2016 Superstars Unite Worldwide!

On March 11-13, people and pets around the world took to their beds for SLEEP IN 2016 (#SLEEPIN2016). Participants spent a remarkable 2,017 hours in bed collectively to make peace with sleep! Our second annual SLEEP IN brought together 92 participants from 10 countries...
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Dream Big: Jaedyn’s Story – Guest Post by Wendy O’Neal

Project Sleep’s Note: On March 19, 2016, Wendy O’Neal hosted her first NARCOLEPSY: NOT ALONE event with Project Sleep in Fultondale, AL. The event was called Dream Tracers – a play on the phrase “dream chasers” since it was an arts...
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Project Sleep Challenges You to Make Peace with Sleep

On the weekend of March 11th-13th, 2016, Project Sleep will host its second annual international SLEEP IN to raise awareness about sleep health and sleep disorders during National Sleep Awareness Week. Project Sleep, a nonprofit organization founded by Julie Flygare,…

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