Julie Scher, J.D.
Julie Flygare, J.D.
Meet our President & CEO
Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy.
Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.
This week, we are celebrating the college graduation of our very first two Jack & Julie Narcolepsy Scholarships recipients from 2014. Recently, Kendra graduated from the University of St. Thomas and Jacob graduated from The Ohio State! Today, we are sharing Jacob’s awesome update. Read Kendra’s update here. Jacob’s College Graduation Update: Jacob was diagnosed with narcolepsy at age 11. In 2014, he…
On Saturday, June 1, 2018, the fourth and final meeting of the SLEEP-2 program took place in Baltimore, MD in conjunction with the APSS Sleep Meeting 2018. Funded through a PCORI Engagement Award, SLEEP-2 is a two-year project co-lead by the University of Arizona, Project Sleep and the Sleep Research Network, aiming to: engage patients, scientists and…