Recent News

Rising Voices of Narcolepsy Story Sharing Series: Meet Kristyn

I know that I have secretly been a warrior for years.”  — Kristyn Beecher, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, November 22, 2020 with a new storyteller: Kristyn Beecher! Kristyn shared open and courageous insights into life with narcolepsy, finding community, and the power of stories. The Rising…

Thank You from College! 2020 Scholarship Recipient Updates

This year, generous donors joined with Project Sleep to award a record 27 Jack & Julie Narcolepsy Scholarships to college-bound students exemplifying courage and resilience while living with narcolepsy or idiopathic hypersomnia. We caught up with the awardees to hear how college is going and what this scholarship meant to them. “I feel valued and…

Narcolepsy in 2020: World Narcolepsy Day Expert Panel

In Project Sleep’s feature event for World Narcolepsy Day 2020, a panel of leading narcolepsy clinicians and researchers spoke to our President & CEO, Julie Flygare about  narcolepsy research progress and novel drug development underway. The panel, which represented five continents around the world, also addressed the challenges and barriers in providing care to people with…

Rising Voices of Narcolepsy Story Sharing Series: Meet Victoria

We all need acceptance and understanding of who we are.” — Victoria, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, October 25, 2020 with a new storyteller: Victoria! Victoria shared honest reflections about family life, social support, and equine love. The Rising Voices of Narcolepsy Story Sharing Series invites viewers to…

Watch: Isiah Thomas Raises Significant Narcolepsy Awareness

On World Narcolepsy Day, Sept. 22, 2020, basketball legend, Isiah Thomas raised awareness about narcolepsy during his appearance on NBA on TNT’s The Arena in advance of the NBA conference finals. WATCH HERE: Raising Narcolepsy Awareness In this clip, Isiah Thomas talks about his daughter’s experience living with narcolepsy and cataplexy (a form of muscle…

World Narcolepsy Day Story Sharing Event: Grisel’s Story in Spanish

In September 2020, the Rising Voices of Narcolepsy Story Sharing Series hosted special events leading up to World Narcolepsy Day on Sept. 22nd. We were thrilled to feature Grisel Pantoja’s story in Spanish on Sunday, September 20th! (Para información en español, por favor, desplácese hacia abajo.) The Rising Voices of Narcolepsy Story Sharing Series invites viewers to…

Project Sleep Joins AASM to Support First-Ever Student Sleep Health Week

Sept. 14-20 observance to highlight importance of healthy sleep as students go back to school As students start school in unique circumstances this fall, this is a critical time to talk about sleep’s role in promoting learning, functioning and growth. Yet, more than half of American parents say their school-age children and teens are not…

New Sleep Health Disparities Policy Recommendations

Background: On June 8th, 2020, Project Sleep issued this statement standing firmly in solidarity with our Black community members and unequivocally condemning racism. We also made specific pledges including, “to highlight sleep research focused on race, racism, and sleep and health disparities, as well as advocate for more research in this area.” In furtherance of…

Project Sleep Co-Leads World Narcolepsy Day 2020

LOS ANGELES, Sept. 8, 2020 — Project Sleep, a national organization that aims to educate individuals about the importance of sleep health, announced today that it is one of the 26 organizations around the world to co-lead the second annual World Narcolepsy Day on Tuesday, Sept. 22, 2020. World Narcolepsy Day is a powerful opportunity for the entire…

World Narcolepsy Day Story Sharing Event: Anne-Claude’s Presentation in French & English

In September 2020, our Rising Voices of Narcolepsy Story Sharing Series hosted three special events leading up to World Narcolepsy Day on Sept. 22nd. Kicking off the month was Rising Voices of Narcolepsy speaker Anne-Claude Foucault, who joined us for two events to share her presentation—once in English and once in French! (informations en français…
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