Recent News

Rising Voices of Narcolepsy: Meet Emma, Sleep Apnea Myth Buster!

I’d never heard of anyone like me who had sleep apnea. I started a podcast to challenge stereotypes and raise awareness so fewer people go undiagnosed. — Emma Cooksey, RVN Advocate Our Rising Voices of Narcolepsy Story Sharing live broadcast series continued on October 10, 2021 with new storyteller Emma Cooksey! Emma is the first…

Watch Now: NFL Player Josh Andrews Speaks Out About Narcolepsy

For the first time, Josh Andrews (#68) offensive lineman for the Atlanta Falcons, shares his story of living with narcolepsy in a new video series with Project Sleep to raise global narcolepsy awareness for World Narcolepsy Day (Sept. 22, 2021). Josh Andrews is an American football offensive guard for the Atlanta Falcons of the National…

SPANISH World Narcolepsy Day Story Sharing Event: Alexa’s Story

Please share with Spanish-speaking family and friends! Rising Voices of Narcolepsy advocate Alexa Cuevas joined us on FB Live from Mexico for a very special World Narcolepsy Day Story Sharing in Spanish! Fellow advocate Grisel Pantoja facilitated a Q&A session in Spanish afterwards. (Para información en español, por favor, desplácese hacia abajo.) Watch Video Now: Click here to watch…

WND 2021 Live Panel: Narcolepsy Around the World

We celebrated World Narcolepsy Day, Sept. 22, 2021 with an international broadcast, “Narcolepsy Around the World.” People living with narcolepsy joined us from Australia, China, Poland, Germany, Israel, Angola, and Brazil to share their stories and perspectives on awareness, diagnosis, treatment, and support. Narcolepsy Around the World Video & Toolkit VideoToolkitVideoToolkitNarcolepsy Nerd Alert toolkits accompany…

World Narcolepsy Day Story Sharing Event: Meet Farah in Ontario!

As an aspiring med student, reassessing my capacity — not my ability — was tough to swallow. But it liberated me to explore new possibilities and passions. — Farah Hasan, RVN Advocate In anticipation of World Narcolepsy Day (Sept 22), new Rising Voices of Narcolepsy storyteller Farah Hasan joined us from Ontario on September 12th,…

World Narcolepsy Day 2021: Get Involved!

Just 3 weeks until the third annual World Narcolepsy Day on Sept. 22nd, 2021. This September, let’s think globally and act locally to elevate narcolepsy awareness worldwide. 6 Easy Ways to Get Involved: 1. Visit the Virtual Photo Booth Let’s celebrate together virtually via the new World Narcolepsy Day Virtual Photo Booth! The virtual photo booth is…

New Rising Voices of Narcolepsy Story: Meet Science Teacher Mary!

I was an adult, I shouldn’t need naps. So instead of getting help, I got better at hiding it. But the naps kept coming. — Mary Murray, RVN Advocate Our Rising Voices of Narcolepsy Story Sharing live broadcast series continued on August 22, 2021 with new storyteller Mary Murray! Mary, a middle school science teacher and…

Narcolepsy Nerd Alert: The Science of Narcolepsy

Science nerds, this one’s for you! Project Sleep and special guest Dr. Thomas Scammell, MD dove into the neurobiology of narcolepsy and type 1 v. type 2 v. idiopathic hypersomnia in our Narcolepsy Nerd Alert live event “The Science of Narcolepsy” on August 25th, 2021. Meet Our Guest: Dr. Thomas Scammell, MD received his Doctor…

Sleep Advocacy Webinar & Action Alert Summer 2021

Your voice matters! On Friday, August 6th, 2021 at 2:00 PM ET, Project Sleep hosted an advocacy webinar via Facebook Live. We provided an update on legislative activity impacting medical research, public health, and healthcare coverage and access. We will also discussed opportunities to make your voice heard and connect with your Senators’ offices as…

Narcolepsy Nerd Alert: Navigating School with Narcolepsy

Students with narcolepsy and hypersomnia have the right to an equitable education. How can schools and families work together to ensure opportunities for success? Project Sleep and special guests, 2015 Jack & Julie Narcolepsy Scholarship recipients Kenya Gradnigo and Danielle Brooks discussed in “Navigating School with Narcolepsy.” Watch the video and download the toolkit below.…
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