During this exciting live event, leading narcolepsy authors Claire Crisp, Henry Nicholls, and Julie Flygare came together to discuss their books for the first time on Narcolepsy Nerd Alert: Narrating Narcolepsy. The panelists shared behind-the-scenes stories from their publication process and provided tips for aspiring writers. Watch the broadcast below and stay tuned for the accompanying PDF toolkit coming soon!
Narcolepsy Nerd Alert: Narrating Narcolepsy
Narrating Narcolepsy Podcast
Narrating Narcolepsy Toolkit
Narcolepsy Nerd Alert toolkits accompany each broadcast. The toolkits are designed for people living with narcolepsy and their loved ones to offer new tools, tips, and perspectives on navigating narcolepsy.
Narrating Narcolepsy Video
Meet Our Guests
Claire Crisp is an award-winning author and advocate for children with narcolepsy. Her book Waking Mathilda—A Memoir of Childhood Narcolepsy charts her family’s journey from the UK to the USA in search of life changing treatment in an attempt to rescue their youngest child Mathilda, who developed narcolepsy following the 2010 H1N1 vaccine. Her work has been featured in national newspapers, medical journals and on national radio. Claire is the Co-Founder and CXO of Sleep Consortium—a 501(c)(3) dedicated to accelerating research in Central Disorders of Hypersomnolence and related diseases. In 2022 she was awarded an MFA from the University of St. Andrews for a substantial contribution to the creative non-fiction literature titled “Belonging—A Memoir of Home, Place, and Identity.”
Henry Nicholls is a teacher, science journalist and author, specializing in evolutionary biology, conservation, and the history of biology and sleep. He developed narcolepsy when he was 21, and his book Sleepyhead: The Neuroscience Of A Good Night’s Rest explores the neuroscience of sleep and the devastating impact sleep disorders have on physical and mental health. He lives in London.
Julie Flygare currently serves as President & CEO of Project Sleep. She is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy.
Project Sleep’s live broadcast series Narcolepsy Nerd Alert takes a deeper dive into specific topics related to narcolepsy. Hosted by award-winning geek Julie Flygare, each live event invites fellow #NarcolepsyNerds to explore unique aspects of the narcolepsy experience, contemplate bold questions, and learn from each other.
Tune in to Narcolepsy Nerd Alert live events on Project Sleep’s Facebook page. Catch up on past broadcasts, download accompanying toolkits, and see the schedule of upcoming topics on our Narcolepsy Nerd Alert page.