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living with idiopathic hypersomnia

Narcolepsy Nerd Alert: Living with Idiopathic Hypersomnia

Idiopathic hypersomnia (IH) is a chronic, neurological sleep disorder causing excessive daytime sleepiness despite getting normal or longer amounts of sleep, but the exact cause is not known. In celebration of IH Day (June 7, 2025), join us for a special Narcolepsy Nerd Alert broadcast shedding light on this rare condition, which shares similarities with narcolepsy but is…

Action Alert: Ask Your Representative to Support Vital Sleep Awareness and Research

Take Action for Sleep This year, an official Congressional Sign On Letter will be sent to the Appropriations Committee asking them to prioritize support for sleep health and sleep disorders research and provider education to combat economic costs and chronic illness impacts of sleep loss and undiagnosed sleep disorders. To be effective, we need your…

Rising Voices Idiopathic Hypersomnia Story Sharing: Meet Haley, the Sleepy OT

Our Rising Voices Story Sharing Series continues with Haley Wall, an occupational therapist diagnosed with idiopathic hypersomnia. Haley will share her story of being overwhelmingly sleepy for years and how her college roommate/best friend’s care was the key to finally getting a diagnosis and treatment. To tune in live, go to Project Sleep’s YouTube channel…

Narcolepsy Discussed on The Kardashians TV Show

Photo Credit: Ron Adar/Shutterstock In a recent episode of The Kardashians (S6, E6) Kim and Khloé are visiting India to attend an extravagant wedding, when an interesting discussion raises the question of whether Kim Kardashian could have narcolepsy, a chronic neurological condition that impairs the brain’s ability to regulate the sleep-wake cycle. Khloé Kardashian: Kim…

Talking to Your Doctor About Sleep Issues

Feeling like you might be more than “just tired?” Wondering how to talk about sleep issues with your primary care provider? You’re not alone. In Talking to Your Doctor About Sleep Issues, guests shared insights from clinical and patient perspectives on discussing sleep issues and daytime sleepiness with general practitioners, and how to get referred…

“Sleep Apnea: Let’s Face It!” Campaign Highlights Real Faces and Stories to Challenge Outdated Stereotypes

Project Sleep celebrates Sleep Apnea Education Week (April 18-26, 2025) with the launch of a new sleep apnea awareness campaign. PRESS RELEASE – LOS ANGELES, April 18, 2025 — Project Sleep, a nonprofit dedicated to raising awareness of sleep health, sleep equity, and sleep disorders, is thrilled to announce the official launch of “Sleep Apnea: Let’s Face It!”…

Dr. Emmanuel Mignot and Dr. Masashi Yanagisawa Win the 2023 Breakthrough Prize

In September 2022, Dr. Emmanuel Mignot and Dr. Masashi Yanagisawa won one of the most prestigious scientific awards, the 2023 Breakthrough Prize in Life Sciences, for discovering the cause of narcolepsy, a chronic neurological condition that impairs the brain’s ability to regulate the sleep-wake cycle. This discovery paves the way for new treatment development that…
2025 legislative sleep agenda

Project Sleep’s 2025 Legislative Sleep Agenda

Project Sleep is a 501(c)(3) non-profit organization raising awareness about sleep health, sleep equity, and sleep disorders by working with affected individuals and families across the country. Believing in the value of sleep, Project Sleep aims to improve public health by educating individuals and policymakers about the importance of sleep health, sleep equity, and sleep…

Sleep Apnea Squad: Fighting Sleep Apnea Shame & Stigma

From being judged as “lazy” to worrying about a partner’s reaction to a CPAP machine, we’re breaking down the shame & stigma of sleep apnea––together. This powerful discussion addresses the issues no one is talking about. Young people can feel confused or even embarrassed by this diagnosis, often associating it with older adults. Our host,…

Sleepless in Hollywood? Event at Writers Guild of America West

In honor of World Sleep Day 2025, Hollywood, Health & Society and Project Sleep hosted an exciting panel discussion at the Writers Guild of America West, “Sleepless in Hollywood? Anxiety, Insomnia & the Truth About Sleep Disorders.”  The conversation on March 13th, 2025, included hearing from sleep specialists, people living with sleep disorders, and industry professionals who have…