Rising Voices of Narcolepsy Story Sharing Series: Meet Amy

I truly believe that these sleep disorders—idiopathic hypersomnia, narcolepsy, etc—are not rare but just rarely diagnosed.”

— Amy Desmarais, RVN Speaker

Our Rising Voices of Narcolepsy Story Sharing live series continued on May 31, 2020, with a brand-new storyteller: Amy Desmarais! We were honored and excited to have Amy join us as our first speaker with idiopathic hypersomnia (IH).

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About Amy:

Amy Desmarais is an SEO Analyst living in the Boston, MA area. She was a member of the Board of Directors for the Hypersomnia Foundation from 2017 – 2020, which she became involved with after being diagnosed with idiopathic hypersomnia in 2015. As a Rising Voices of Narcolepsy trained speaker, Amy hopes to spread awareness of hypersomnia by sharing her story.

What is the Story Sharing Series?

The Rising Voices of Narcolepsy Story Sharing Series invites viewers to gather online to watch a Rising Voices of Narcolepsy trained speaker or writer present their story live via Project Sleep’s Facebook page. Project Sleep is proud to offer our monthly series as a weekly event for the next few months. At a time in which many people need connection more than ever, this will increase opportunities for people around the world to engage with and support one another.

About Rising Voices of Narcolepsy:

To improve public understanding of narcolepsy, Project Sleep’s Rising Voices of Narcolepsy program trains people with narcolepsy to share their stories through public speaking and writing with local communities, healthcare providers, news outlets, blogs and beyond. Combining the power of real-life stories with expert communication strategies, our Rising Voices of Narcolepsy trained speakers and writers are effectively raising awareness and reducing stigma for all those facing narcolepsy.