Rising Voices of Narcolepsy Story Sharing Series: Meet Speaker Amy Desmarais

This week, our Rising Voices of Narcolepsy Story Sharing live series continues with a brand-new storyteller: Rising Voices of Narcolepsy trained speaker Amy Desmarais! We are honored and excited to have Amy join us as our first speaker with idiopathic hypersomnia (IH).

This Sunday, May 31, Amy will present her story and journey with IH, followed by a live Q & A.

To join us live, simply head to Project Sleep’s Facebook page at 8pm (ET) this Sunday! If the video does not show up right away, please hit “refresh” a few times.

About Amy:

Amy Desmarais is an SEO Analyst living in the Boston, MA area. She was a member of the Board of Directors for the Hypersomnia Foundation from 2017 – 2020, which she became involved with after being diagnosed with idiopathic hypersomnia in 2015. As a Rising Voices of Narcolepsy trained speaker, Amy hopes to spread awareness of hypersomnia by sharing her story.

What is the Story Sharing Series?

The Rising Voices of Narcolepsy Story Sharing Series invites viewers to gather online to watch a Rising Voices of Narcolepsy trained speaker or writer present their story live via Project Sleep’s Facebook page. Project Sleep is proud to offer our monthly series as a weekly event for the next few months. At a time in which many people need connection more than ever, this will increase opportunities for people around the world to engage with and support one another.

About Rising Voices of Narcolepsy:

To improve public understanding of narcolepsy, Project Sleep’s Rising Voices of Narcolepsy program trains people with narcolepsy to share their stories through public speaking and writing with local communities, healthcare providers, news outlets, blogs and beyond. Combining the power of real-life stories with expert communication strategies, our Rising Voices of Narcolepsy trained speakers and writers are effectively raising awareness and reducing stigma for all those facing narcolepsy.

Spread the Word:

We’re excited to share these moving stories with you. Did you see Kayla’s event last week? Watch all past storytellers now!

Please share with friends and family to learn more about narcolepsy!

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