World Narcolepsy Day 2024 Featured Event: How Storytelling Brings Narcolepsy to Light

Narcolepsy is a chronic neurological condition impacting 1 in 2,000 people; about 3 million people worldwide. Yet, because of low awareness (even among physicians) and misperceptions, there is an average of 8 to 15 years between narcolepsy symptom onset and diagnosis, and it’s estimated that the majority of people with narcolepsy are currently undiagnosed or misdiagnosed.

In this panel discussion, we will discuss the challenges and opportunities for increasing narcolepsy awareness, especially via media. We will feature a new collaborative Scientific American article highlighting the importance of World Narcolepsy Day and provide tips on how you can raise awareness in your community and globally!

Tune in on Project Sleep’s YouTube channel on Sunday, Sept. 22nd at 9am ET. (If the live video doesn’t show up right away, refresh your browser a few times.) This event will be recorded and available for later viewing.

Watch @ 9am ET Sun 9/22

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How Storytelling Brings Narcolepsy to Light Panelists:

Josh Andrews

9-year NFL Veteran Living with Narcolepsy

Josh Andrews is an American football offensive guard who played in the the National Football League (NFL) for 9 years. He played college football at Oregon State and before becoming a member of the Philadelphia Eagles, Minnesota Vikings, Indianapolis Colts, New York Jets, Atlanta Falcons, and New Orleans Saints. Josh is also a husband, father, and a person living with narcolepsy.

Christian Emering

Director of External Communications, Harmony Biosciences

Christian Emering is the Director of External Communications at Harmony Biosciences, where he shapes strategic public relations initiatives that bridge corporate reputation, advocacy and alliance engagement, and government affairs. In addition to his role at Harmony, he provides communications counsel to charitable and nonprofit organizations in the New York City area.

Julie Flygare

President & CEO, Project Sleep

Julie Flygare, JD, serves as President & CEO of Project Sleep. Flygare is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. On March 22, 2022, she delivered the TEDx Talk, “What Can You Learn from a Professional Dreamer?“

Farah Hasan, a woman with olive-toned skin and dark eyes wearing a gray hijab and black tunic.

Farah Hasan (Moderator)

Sleep Education Specialist with Project Sleep

Farah Hasan is a Project Sleep Rising Voices speaker who was diagnosed with idiopathic hypersomnia at age 21. Farah recently graduated with her Master’s from the Health Science Education Program at McMaster University in Hamilton, Ontario, Canada. Currently, she works as the Sleep Education Specialist for Project Sleep.

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