Advocacy

Your experience makes a difference.

Project Sleep is passionate about educating decision-makers and advancing progress through public policy and advocacy efforts. By elevating the voices of individuals facing sleep-related issues and leveraging policy expertise, we are helping to improve outcomes for people across America.

Important opportunities arise throughout the year, get involved in sleep advocacy by signing up for e-updates.

Guiding Principles

Advancing Sleep Research

Project Sleep advocates for robust federal research funding to elucidate the underlying mechanisms of sleep and to develop novel treatments, early detection tools, and prevention strategies for people living with sleep-related conditions. Likewise, we support federal data collection and survey efforts to better understand population-wide sleep trends.

Accelerating Treatment Options

People with sleep-related conditions need a seat at the table throughout the clinical research process. This is why Project Sleep is passionate about bringing the perspectives and priorities of people living with sleep disorders and their loved ones into clinical research.

Ensuring Access to Healthcare

Access to healthcare providers, services and treatments is essential to improve outcomes for all those living with sleep-related conditions. Project Sleep supports policies that improve access to healthcare resources, including comprehensive, affordable, and non-discriminatory health insurance.

Furthering Education, Awareness and Training

Project Sleep supports policies that increase sleep health and sleep disorders education, awareness and training opportunities.

Addressing Sleep Health Disparities

Project Sleep worked with the sleep health disparities research community to develop specific sleep health disparities policy recommendations.

Raise Your Voice for Sleep Advocacy

The sleep community has made advancements, but we need your help! Your experience plays a powerful role in helping decision-makers understand the real-life ramifications of sleep conditions and sleep loss across America. Sign up for our e-updates to take action.

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Project Sleep Advocacy Latest News

Urgent Action: Ask Your Representative to Support Sleep Research and Awareness

Your Voice Matters For the fifth year in a row, an official Congressional Sign On Letter will be sent to the Appropriations Committee asking them to prioritize support for sleep and sleep disorders research and awareness. To be effective, we need your Members of the U.S. House of Representatives to “sign on.” The more House…

FDA Listening Session on Narcolepsy and Idiopathic Hypersomnia

On August 8th, 2022, from 2:00 – 3:30 p.m. EDT, a patient-led Listening Session took place online between the Food and Drug Administration (FDA), Project Sleep, and patient advocates in the narcolepsy and idiopathic hypersomnia community. This 90-minute meeting featured seven patient or caregiver advocate speakers, along with a Project Sleep representative and a clinician.…

Sleep Advocates Return to Capitol Hill

After 2.5 years of virtual advocacy, Project Sleep and the Sleep Research Society returned to Washington DC for an in-person Hill Day on Tuesday, October 25th, 2022. Over 30 advocates from 11 states visited over 20 Congressional offices on Capitol Hill to educate and advocate for sleep research and awareness. Sleep Community Rallies Together Participants…

2022 Sleep Advocacy Forum Rallies Leaders in Washington, DC

On Monday Oct 24, 2022, Project Sleep facilitated the third annual Sleep Advocacy Forum in Washington, DC. This in-person event brought together a diverse group of policy makers and sleep advocates to share updates and discuss areas of common interest. In the morning, Matthew Horsnell kicked off the event sharing his journey from feeling alone…