The Narcolepsy Nerd Alert series invites fellow #NarcolepsyNerds to explore aspects of the narcolepsy experience, contemplate bold questions, and learn from each other. Hosted by Julie Flygare (an award-winning geek!), the live broadcasts will take place on the last Wednesday of every month at 1pm ET via Project Sleep’s Facebook page.
Each event will begin with an overview of the day’s topic, followed by an interactive discussion. After each broadcast, a corresponding printable toolkit will be created featuring participants’ insights.
Please read the descriptions below and save the dates. These live events are free and open to anyone interested in joining, so please invite friends, family, and fellow #NarcolepsyNerds!
Narcolepsy Goes to Hollywood
Wed., May 26, 2021 at 1:00pm ET
TV and film characters seem to get narcolepsy at an alarming rate. Is all awareness good awareness?
Wed., July 28, 2021 at 1:00pm ET
Equitable education is a right, not a privilege. How can schools and families work together to ensure opportunities for students’ success?
Science of Narcolepsy
Wed., Aug. 25, 2021 at 1:00pm ET
Science nerds, this one’s for you! Let’s dive into the neurobiology of narcolepsy and type 1 v. type 2 v. idiopathic hypersomnia.
New + Upcoming Treatments
Wed., Oct 27, 2021 at 1:00pm ET
Medical management is continuously evolving. Let’s discuss new options and exciting possibilities on the horizon.
Disclosing Your Diagnosis
Wed., Nov. 24, 2021 at 1:00pm ET
Telling others you have narcolepsy has unique rewards and challenges. How do you decide to disclose your diagnosis?
About Narcolepsy: Narcolepsy is a chronic neurological condition that impairs the brain’s ability to regulate the sleep-wake cycle. It affects 1 in 2,000 people—200,000 Americans and 3 million people worldwide. Because of low awareness and misperceptions, there is an average of 8 to 15 years between narcolepsy symptom onset and diagnosis. Narcolepsy Nerd Alert aims to educate and empower the narcolepsy community.
About Julie: Julie Flygare, JD, serves as President & CEO of Project Sleep. In 2007, Julie was diagnosed with type 1 narcolepsy with cataplexy while in law school. Her experience inspired her to become an accomplished advocate, community leader, and the author of Wide Awake and Dreaming: A Memoir of Narcolepsy. And yes, Julie is actually an award-winning geek, receiving WEGO Health’s “Geek Health Activist” award in 2014.