The Narcolepsy Nerd Alert series invites fellow #NarcolepsyNerds to explore aspects of the narcolepsy experience, contemplate bold questions, and learn from each other. Hosted by Julie Flygare (an award-winning geek!), the live broadcasts take place via Project Sleep’s Facebook page.
Each event begins with an overview of the day’s topic, followed by an interactive discussion. After each broadcast, we create a corresponding printable toolkit featuring participants’ insights.
Please read the descriptions below and save the dates. These live events are free and open to anyone interested in joining, so please invite friends, family, and fellow #NarcolepsyNerds!
Pregnancy + Narcolepsy
Thurs., Jan 27, 2022 at 1:00pm ET
Narcolepsy symptoms and treatment interact with conception, pregnancy, and breastfeeding in complex ways. How do you decide what’s right for your family?
Wed., Apr 27, 2022 at 1:00pm ET
How do we capture the experience of living with narcolepsy in words? Authors share their perspectives on writing about narcolepsy.
Types of Narcolepsy
Wed., June 29, 2022 at 1:00pm ET
What distinguishes narcolepsy type 1, type 2, and idiopathic hypersomnia? Can your diagnosis change? Hear the latest research and perspectives.
Sleep Paralysis + Hallucinations
Wed., Oct 12, 2022 at 1:00pm ET
Hypnagogic and hypnopompic hallucinations and sleep paralysis can be confusing and scary. Let’s talk about why these happen and how to manage them.
Narcolepsy + Art
Wed., Dec 14, 2022 at 1:00pm ET
What’s your creative outlet? Artists discuss the relationship between their creative expression and their narcolepsy journey.
About Narcolepsy: Narcolepsy is a chronic neurological condition that impairs the brain’s ability to regulate the sleep-wake cycle. It affects 1 in 2,000 people—200,000 Americans and 3 million people worldwide. Because of low awareness and misperceptions, there is an average of 8 to 15 years between narcolepsy symptom onset and diagnosis. Narcolepsy Nerd Alert aims to educate and empower the narcolepsy community.
About Julie: Julie Flygare, JD, serves as President & CEO of Project Sleep. In 2007, Julie was diagnosed with type 1 narcolepsy with cataplexy while in law school. Her experience inspired her to become an accomplished advocate, community leader, and the author of Wide Awake and Dreaming: A Memoir of Narcolepsy. And yes, Julie is actually an award-winning geek, receiving WEGO Health’s “Geek Health Activist” award in 2014.