The Narcolepsy Nerd Alert series invites fellow #NarcolepsyNerds to explore aspects of the narcolepsy experience, contemplate bold questions, and learn from each other. Hosted by Julie Flygare (an award-winning geek!), the live broadcasts take place on the last Wednesday of every month via Project Sleep’s Facebook page.
Each event begins with an overview of the day’s topic, followed by an interactive discussion. After each broadcast, we create a corresponding printable toolkit featuring participants’ insights.
Sign Up for Narcolepsy Nerd Alerts!
Whether you geek out about science, art, advocacy, or pop-culture—this community is for you! Sign up for e-updates about:
– Live Broadcasts
– Video Recordings
– Printable Toolkits
2021 Schedule
Please read the descriptions below and save the dates. These live events are free and open to anyone interested in joining, so please invite friends, family, and fellow #NarcolepsyNerds!
Narcolepsy Roadmap
Wed., Jan. 27, 2021 at 1:00pm ET
Navigating narcolepsy doesn’t come with a roadmap, but it should. What do you wish you’d known at diagnosis?
Becoming a Narcolepsy Advocate
Wed., Feb. 24, 2021 at 1:00pm ET
Raising your voice is empowering, but how do you get started? And does advocacy make a real difference?
Narcolepsy + Brain Fog
Wed., Mar. 31, 2021 at 1:00pm ET
Having issues with concentration and memory? You’re not alone. Let’s explore brain fog, automatic behavior, and micro-sleeps.
Friends + Family
Wed., April 28, 2021 at 1:00pm ET
Supporters mean everything! How can people with narcolepsy and their loved ones foster open communication and mutual support?
Narcolepsy Goes to Hollywood
Wed., May 26, 2021 at 1:00pm ET
TV and film characters seem to get narcolepsy at an alarming rate. Is all awareness good awareness?
Napping + Narcolepsy
Wed., June 30, 2021 at 5:00pm ET
Is napping an unwelcome symptom or a helpful treatment? Got “nap shame?” Let’s discuss.
Navigating School
Wed., July 28, 2021 at 5:00pm ET
Equitable education is a right, not a privilege. How can schools and families work together to ensure opportunities for students’ success?
Science of Narcolepsy
Wed., Aug. 25, 2021 at 1:00pm ET
Science nerds, this one’s for you! Let’s dive into the neurobiology of narcolepsy and type 1 v. type 2 v. idiopathic hypersomnia.
Narcolepsy Around the World
Wed., Sept. 22, 2021 at 9:00am ET
How do geography and culture impact life with narcolepsy? Explore global perspectives on awareness, advocacy, and support.
New + Upcoming Treatments
Wed., Oct 27, 2021 at 1:00pm ET
Medical management is continuously evolving. Let’s discuss new options and exciting possibilities on the horizon.
Disclosing Your Diagnosis
Wed., Dec. 29, 2021 at 1:00pm ET
Telling others you have narcolepsy has unique rewards and challenges. How do you decide to disclose your diagnosis?
Narcolepsy + Energy
Date TBD
Batteries always drained? It’s not just you. Let’s talk strategies for making the most of limited energy supplies.
Past Broadcasts
Watch video recordings of past Narcolepsy Nerd Alert broadcasts and download the corresponding toolkits.
About Narcolepsy: Narcolepsy is a chronic neurological condition that impairs the brain’s ability to regulate the sleep-wake cycle. It affects 1 in 2,000 people—200,000 Americans and 3 million people worldwide. Because of low awareness and misperceptions, there is an average of 8 to 15 years between narcolepsy symptom onset and diagnosis. Narcolepsy Nerd Alert aims to educate and empower the narcolepsy community.
About Julie: Julie Flygare, JD, serves as President & CEO of Project Sleep. In 2007, Julie was diagnosed with type 1 narcolepsy with cataplexy while in law school. Her experience inspired her to become an accomplished advocate, community leader, and the author of Wide Awake and Dreaming: A Memoir of Narcolepsy. And yes, Julie is actually an award-winning geek, receiving WEGO Health’s “Geek Health Activist” award in 2014.