Participate in Research

Your lived experience is invaluable.

People with sleep disorders who volunteer to participate in research play a critical role in advancing science and medicine. Without volunteers willing to participate, clinical research studies simply would not be possible.

There are various ways to get involved in research—from taking an online surveys to participating in focus groups or enrolling in a clinical trials. We are sharing links to various sleep and sleep disorders research opportunities and clinical trials here to help raise awareness about clinical research efforts in our community. Not everyone will be eligible for every study, please click the links to read details and follow up with the research teams directly with any questions.

Current Research Opportunities:

Boston Children’s Hospital – Looking for Focus Group Participants

Boston Children's Hospital

Share your experience: Boston Children’s Hospital’s Neurology Sleep Research Team is currently looking for children with narcolepsy (between the ages of 8-12 years) and one parent/guardian to take part in a 90 minute on-line, recorded focus group to discuss narcolepsy symptoms and the impact of the symptoms. This project will help researchers to develop a Pediatric Narcolepsy Patient Reported Outcomes Scale (PN-PROS).

The Sparkle 1501 Study for Narcolepsy

The SPARKLE 1501 Study is testing an investigational drug (TAK-994) to see how safe and tolerable it is and how it affects a person’s narcolepsy symptoms.

The Sparkle 2002 Study for Idiopathic Hypersomnia

The SPARKLE 2002 Study is testing an investigational drug (TAK-925) to see if it could potentially be a safe and effective way to help increase wakefulness for people with idiopathic hypersomnia.

ClinicalTrials.gov

Looking for more opportunities? ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world. You can search for actively recruiting studies that you may be able to participate in or learn about new interventions/treatments that are being considered.

Thank you to all those who consider participating in sleep research and clinical trials. Your efforts help to build a brighter future! 

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