Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Secretary

Melissa Buron

Director

Julie Flygare, J.D.

President & CEO

Meet our President & CEO

Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy.

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Latest News

Action Alert: Urge Your Representative to Join Pivotal Sleep Disorders Letter Today

Exciting News! Congressman Adam Schiff, a champion for the sleep disorders community, is leading a congressional sign on letter asking the Appropriations Committee to include recommendations that encourage additional research and public health activities focused on sleep disorders. (Each year, Congress crafts annuals spending bills that provide federal funding for medical research including sleep disorders research....

Inaugural World Narcolepsy Day to Take Place on Sept. 22, 2019

Project Sleep partners with 21 organizations across six continents to create World Narcolepsy Day Project Sleep is excited to announce that it has come together with 21 other organizations around the world to establish World Narcolepsy Day. This ground-breaking day, which will take place on Sunday, Sept. 22, 2019, will be dedicated to raising critical...

Get Your Exclusive #SleepIn2019 Napper!

“I hope that the Napper can serve as a hug and a reminder to someone that they are not alone, that rest is healing, and that there’s a community of people who care about them.” – Brooke of The Nap Nook We collaborated w/ the Nap Nook to create an exclusive custom #sleepin2019 Napper, a few are now…

Giving Sleep a Voice on Capitol Hill

On Tuesday, February 25, 2019, patient advocates and sleep researchers joined together on Capitol Hill in Washington DC to educate policy makers about the importance of sleep health and sleep disorders. This Hill Day, co-led by the Sleep Research Society and Project Sleep, was part of our collaboration and ongoing efforts to advocate for sleep...

Meet Our New Board Member, Kylee Keskerian!

In 2019, Kylee Keskerian officially joined the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health and sleep conditions. “I’m thrilled to be joining Project Sleep’s Board of Directors,” said Keskerian. “Project Sleep is a trailblazing organization that is breaking down silos and shutting down stereotypes regarding sleep. It’s an…