Our Leadership

Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Secretary

Meet our President & CEO

Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Latest News

Rising Voices of Narcolepsy 2020: Now Accepting Applications

Raise Your Voice Project Sleep is proud to announce that we are now accepting applications for our fourth series of Rising Voices of Narcolepsy trainings, to take place online this summer of 2020. This leadership training program helps people with narcolepsy effectively share their stories through public speaking or writing with local communities, healthcare providers,…

Project Sleep’s Julie Flygare to Give TEDx Talk

We are thrilled to share the news that Project Sleep’s President & CEO, Julie Flygare, J.D., will give a TEDx Talk on March 22, 2020 in San Diego, CA. The event, TEDxSDSU 2020, has a theme of “What’s Your Why?” I’m beyond honored for the opportunity to present a TEDx talk,” said Flygare. “I love…

You’re Invited! Sleep In 2020 is Coming to Your Bedroom

Calling All Sleep Advocates! Please join us for the international Sleep In 2020 (#SleepIn2020) over the weekend of March 13-15, 2020, to raise awareness about sleep and sleep disorders during Sleep Awareness Week (March 8-14). Our sixth annual Sleep In 2020 is an awareness and fundraising event taking place IN YOUR BED! We challenge YOU to stay in bed…

Welcoming Cienna Ditri to Project Sleep’s Board of Directors

Please welcome Cienna Ditri to the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health and sleep conditions. “Project Sleep is a trailblazing organization for sleep health and sleep disorders, and I am honored to help move the organization’s mission forward as a member of the board,” said Ditri. “I am…

February’s Rising Voices of Narcolepsy Story Sharing Series: Bob Cloud

Project Sleep presents its second month of the Rising Voices of Narcolepsy Story Sharing Series. Each month, viewers will be able to gather online to watch a Rising Voices of Narcolepsy trained speaker or writer present their story live via our Facebook page. On Sunday, February 2nd, the live series continued with a brand-new storyteller.…
Menu