Our Leadership

Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Secretary

Meet our President & CEO

Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Latest News

New Narcolepsy Story: Meet Victoria

This week, our Rising Voices of Narcolepsy Story Sharing live series is back with a new storyteller: Victoria! On Sunday, October 25 at 8:00 p.m. ET, Victoria will share her narcolepsy story. Afterwards, we’ll host a live viewer Q&A. To join us live, simply head to Project Sleep’s Facebook page at 8pm (ET) this Sunday! If…

Watch: Isiah Thomas Raises Significant Narcolepsy Awareness

On World Narcolepsy Day, Sept. 22, 2020, basketball legend, Isiah Thomas raised awareness about narcolepsy during his appearance on NBA on TNT’s The Arena in advance of the NBA conference finals. WATCH HERE: Raising Narcolepsy Awareness In this clip, Isiah Thomas talks about his daughter’s experience living with narcolepsy and cataplexy (a form of muscle…

World Narcolepsy Day Story Sharing Event: Grisel’s Story in Spanish

This September, our Rising Voices of Narcolepsy Story Sharing Series is hosting special events leading up to World Narcolepsy Day on Sept. 22nd. We are thrilled to feature an event this Sunday in Spanish! (Para información en español, por favor, desplácese hacia abajo.) Join us for a special Spanish-language Rising Voices of Narcolepsy Story Sharing…

Project Sleep Joins AASM to Support First-Ever Student Sleep Health Week

Sept. 14-20 observance to highlight importance of healthy sleep as students go back to school As students start school in unique circumstances this fall, this is a critical time to talk about sleep’s role in promoting learning, functioning and growth. Yet, more than half of American parents say their school-age children and teens are not…

New Sleep Health Disparities Policy Recommendations

Background: On June 8th, 2020, Project Sleep issued this statement standing firmly in solidarity with our Black community members and unequivocally condemning racism. We also made specific pledges including, “to highlight sleep research focused on race, racism, and sleep and health disparities, as well as advocate for more research in this area.” In furtherance of…
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