Our Leadership

Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Vice Chair

Edward Sweet

Secretary

Cienna Ditri

Director

Ana Lara

Director

Meet our Staff

Julie Flygare, JD
President & CEO

Julie Flygare, JD, currently serves as President & CEO of Project Sleep. She is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting her current role as President & CEO of Project Sleep, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Lauren Oglesby, MPH
Programs Manager

Lauren is a public health educator and advocate, with a focus on healthcare and resource accessibility for vulnerable and underserved populations. She has implemented programs serving LGBTQ+ youth in rural Virginia, teens at high risk of pregnancy, and people who are incarcerated and living with HIV.

Lauren has personal and family experience with invisible disabilities and chronic conditions, including mental illness and autism spectrum differences. She is thrilled to serve as Programs Manager with Project Sleep, where she leverages her diverse personal and professional experience (and love of spreadsheets) to coordinate advocacy and awareness initiatives with the sleep community. In her spare time, she enjoys hiking in the Blue Ridge mountains, reading too many books at a time, and trying to keep up with her large extended family. She lives in Central Virginia with her husband and daughter.

Latest News

Bachelorette Hannah Brown Shares Narcolepsy Diagnosis in New Book

As Bachelor Nation digs in to read former Bachelorette Hannah Brown‘s new book God Bless This Mess: Learning to Live and Love Through Life’s Best (and Worst) Moments, readers may be surprised to learn that Hannah Brown is a person living with narcolepsy. Hannah Brown’s New Book Hannah Brown starred on season 15 of ABC’s…
Dr. Emmanuel Mignot

Register Now: Upcoming Narcolepsy Event with Dr. Emmanuel Mignot

Join us for an expert panel discussion featuring Dr. Emmanuel Mignot alongside people living with narcolepsy in an event designed to provide education and strategies for managing narcolepsy. More than Sleepiness: How Recognizing and Treating Narcolepsy Will Impact the Entire Family takes place on Wednesday, December 8, 2021, at 5pm ET. Registration is required. If…

2021 Sleep Advocacy Forum Educates and Elevates Sleep Field

On Oct. 18-19, 2021, Project Sleep was thrilled to facilitate the second annual virtual 2021 Sleep Advocacy Forum, rallying together a remarkable group of policy makers and sleep advocates to share information and coalesce around areas of common concern. On Monday, Oct. 18th, the Sleep Advocacy Forum‘s Educational Sessions covered an array of timely topics…

British Student Documents Life with Narcolepsy

Today, we proudly share a short documentary film by Scott Norman, a university student in England living with type 1 narcolepsy with cataplexy. Scott created the film about his life with narcolepsy as part of his university coursework. Scott says, “I’ve always wanted to show others what it’s like to live with narcolepsy, as it…

Updates From Our 2021 Narcolepsy Scholarship Recipients

Thank You From College! Acknowledged. Validated. Inspired. Supported. Heard. Your generosity made a profound impact on this year’s 31 Jack & Julie Narcolepsy Scholarship recipients. During this month of giving thanks, we’re thanking YOU by sharing college updates from the 2021 scholarship recipients. “Empowering” “My favorite class in is Philosophy of Human Nature. It is interesting to learn about the way humans…
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