Our Leadership

Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Secretary

Meet our President & CEO

Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Latest News

Meet the 2020 Jack & Julie Narcolepsy Scholarship Recipients

Project Sleep is proud to introduce the 27 recipients of the 2020 Jack & Julie Narcolepsy Scholarship program. This is by far the largest class of recipients to date, with each student receiving $1,000 towards their college education. “During such a challenging year, elevating and honoring students living with under-recognized sleep conditions is particularly meaningful,”…

Rising Voices of Narcolepsy Story Sharing Series: Meet Ming Lai

This week, our Rising Voices of Narcolepsy Story Sharing live series continued with a brand-new storyteller: Rising Voices of Narcolepsy trained writer Ming Lai! On Sunday, June 28th, Ming read his thoughtful essay, With Intention, How narcolepsy led me to become an activist. Afterwards, we caught up with Ming on how he’s been since writing…

Racism has no place in the sleep community. Here are our commitments.

All of us at Project Sleep are deeply shaken and horrified by the senseless killings of George Floyd, Ahmaud Arbery, Tony McDade, Breonna Taylor, and many other Black lives. The pain and frustration across our nation is very real, and after taking June 1-7 to reflect and listen, it is important for us to speak…

Rising Voices of Narcolepsy Story Sharing Series: Meet Speaker Amy Desmarais

This week, our Rising Voices of Narcolepsy Story Sharing live series continues with a brand-new storyteller: Rising Voices of Narcolepsy trained speaker Amy Desmarais! We are honored and excited to have Amy join us as our first speaker with idiopathic hypersomnia (IH). This Sunday, May 31, Amy will present her story and journey with IH,…

Listen Now: Project Sleep Featured on the Snooze Button Podcast

New Podcast! This week, Project Sleep’s President & CEO, Julie Flygare, JD joined The Snooze Button podcast for a lively discussion about sleep health and sleep disorders. Listen here. About The Snooze Button: The Snooze Button podcast is a project of Neil Hedley, a veteran radio and TV personality from Toronto, Canada. Neil’s personal battle with…
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