Our Leadership

Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Secretary

Meet our President & CEO

Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Latest News

Rising Voices of Narcolepsy Story Sharing Series: Meet Rachel Nesmith

This week, our Rising Voices of Narcolepsy Story Sharing live series continues with a brand-new storyteller: Rising Voices of Narcolepsy trained speaker Rachel Nesmith! This Sunday, August 9, Rachel will present her journey with narcolepsy and then answer questions from live viewers. To join us live, simply head to Project Sleep’s Facebook page at 8pm (ET)…

Rising Voices of Narcolepsy Story Sharing Series: Meet Jordan Taylor

This week, our Rising Voices of Narcolepsy Story Sharing live series continues with a brand-new storyteller: Rising Voices of Narcolepsy trained speaker Jordan Taylor! This Sunday, July 26, Jordan will share her story with narcolepsy, followed by answering questions from live viewers. To join us live, simply head to Project Sleep’s Facebook page at 8pm (ET)…

Alida’s Story with Sleep Apnea: Join Us this Saturday

Please join us this Saturday, July 18th at 12:00 noon ET for a special FB Live featuring Alida Abdullah sharing her story with sleep apnea, in conversation with Julie Flygare, Project Sleep’s President & CEO. To tune in live, visit Project Sleep’s Facebook page at 12 noon ET. The live video will show up in…

Rising Voices of Narcolepsy Story Sharing Series: Meet Kêta

This week, our Rising Voices of Narcolepsy Story Sharing live series continues with a brand-new storyteller: Rising Voices of Narcolepsy trained speaker Kêta! This Sunday, July 12, Kêta will share her narcolepsy journey, including her experience as a professional songwriter. Afterwards, we’ll host a live viewer Q&A. To join us live, simply head to Project…

Meet the 2020 Jack & Julie Narcolepsy Scholarship Recipients

Project Sleep is proud to introduce the 27 recipients of the 2020 Jack & Julie Narcolepsy Scholarship program. This is by far the largest class of recipients to date, with each student receiving $1,000 towards their college education. “During such a challenging year, elevating and honoring students living with under-recognized sleep conditions is particularly meaningful,”…
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