Our Leadership

Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Secretary

Meet our President & CEO

Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Latest News

Launching the Rising Voices of Narcolepsy Story Sharing Series

Starting in January 2020, Project Sleep will produce a monthly Rising Voices of Narcolepsy Story Sharing Series. Each month, viewers will be able to gather online to watch a Rising Voices of Narcolepsy trained speaker or writer present their story live via our Facebook page. On Sunday, Jan. 5th, 2020, Rising Voices of Narcolepsy trained…

Kicking Off the 2020 Narcolepsy Scholarship

In 2020, Project Sleep plans to award 15 scholarships of $1000 each, including 10 scholarships to students with narcolepsy and five scholarships to students with idiopathic hypersomnia, thanks to a partnership with the Hypersomnia Foundation. All applications are due April 1, 2020 – no exceptions. For full details and instructions, see the 2020 Scholarship Application Packet.   2020 Scholarship Application …

Watch Now: Celebrating the New Year with Your 2019 Accomplishments

On Saturday, Dec. 28, 2019, we hosted a very special Facebook LIVE celebrating your amazing 2019 accomplishments and a sneak peek of 2020! Our President & CEO, Julie Flygare, JD, broadcasted live to our Facebook page from Los Angeles. You have accomplished SO much through Project Sleep’s awareness and advocacy programs this year. So we…

Sleep Advocacy Steps Up! Reporting Back from Capitol Hill

On Nov. 19, 2019, Project Sleep and the Sleep Research Society hosted a Congressional Briefing and Advocacy Day bringing together the sleep community to urge Congress to support critical sleep research and awareness efforts. The day kicked off with a Congressional Briefing in the Rayburn House Office Building—bringing together Members of Congress, staff members, renowned…

DOUBLE Your Impact this Giving Tuesday with up to $15,000 in Matching Funds!

Surreal News! A generous Project Sleep board member just pledged a remarkable $15,000 in matching gift funds to support our #GivingTuesday2019 campaign. Starting now and continuing through #GivingTuesday, December 3, 2019, all donations to Project Sleep will be MATCHED, dollar for dollar, up to $15,000! Donate today and your tax-deductible gift will be MATCHED, dollar for…
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