Our Leadership

Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Secretary

Meet our President & CEO

Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Latest News

Rising Voices of Narcolepsy Story Sharing Series: Meet Speaker Amy Desmarais

This week, our Rising Voices of Narcolepsy Story Sharing live series continues with a brand-new storyteller: Rising Voices of Narcolepsy trained speaker Amy Desmarais! We are honored and excited to have Amy join us as our first speaker with idiopathic hypersomnia (IH). This Sunday, May 31, Amy will present her story and journey with IH,…

Listen Now: Project Sleep Featured on the Snooze Button Podcast

New Podcast! This week, Project Sleep’s President & CEO, Julie Flygare, JD joined The Snooze Button podcast for a lively discussion about sleep health and sleep disorders. Listen here. About The Snooze Button: The Snooze Button podcast is a project of Neil Hedley, a veteran radio and TV personality from Toronto, Canada. Neil’s personal battle with…

Rising Voices of Narcolepsy Story Sharing Series: Meet Writer Kayla Douglas

This week, our Rising Voices of Narcolepsy Story Sharing live series continued with a brand-new storyteller: Rising Voices of Narcolepsy trained writer Kayla Douglas! On Sunday, May 24, Kayla read Scared of the Dark: The Narcolepsy Symptoms That Nobody Talks About, one of her many writing pieces about or inspired by her experiences living with…

Rising Voices of Narcolepsy Story Sharing Series: Meet Speaker Eilís Finnegan

This week, our Rising Voices of Narcolepsy Story Sharing live series continues with a brand-new storyteller: Rising Voices of Narcolepsy trained speaker Eilís Finnegan! This Sunday, May 17, Eilís will share her journey of receiving her diagnosis as a college sophomore to using her experiences with narcolepsy to influence her thesis project in architecture to finding…

Recognizing Nurses with Narcolepsy for National Nurses Week

Every year, America celebrates National Nurses Week starting on May 6 and ending on May 12, the birthday of Florence Nightingale, a pioneer of modern nursing. The World Health Organization designated 2020 as the Year of the Nurse and the Midwife to “recognize the critical contribution both professions make to global health.” These recognitions are…
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