Our Leadership

Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Secretary
Kami Barron Headshot

Kamali (Kami) Barron

Director

Meet our Staff

Julie Flygare, JD
President & CEO

Julie Flygare, JD, currently serves as President & CEO of Project Sleep. She is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting her current role as President & CEO of Project Sleep, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Lauren Oglesby, MPH
Programs Manager

Lauren is a public health educator and advocate, with a focus on healthcare and resource accessibility for vulnerable and underserved populations. She has implemented programs serving LGBTQ+ youth in rural Virginia, teens at high risk of pregnancy, and people who are incarcerated and living with HIV.

Lauren has personal and family experience with invisible disabilities and chronic conditions, including mental illness and autism spectrum differences. She is thrilled to serve as Programs Manager with Project Sleep, where she leverages her diverse personal and professional experience (and love of spreadsheets) to coordinate advocacy and awareness initiatives with the sleep community. In her spare time, she enjoys hiking in the Blue Ridge mountains, reading too many books at a time, and trying to keep up with her large extended family. She lives in Central Virginia with her husband and daughter.

Latest News

New Rising Voices of Narcolepsy Story: Meet Olympic Weightlifter Amanda!

Our Rising Voices of Narcolepsy Story Sharing live series continues at 8pm ET on Sunday, January 31 with a new storyteller: Amanda Myers! Amanda competes in olympic weightlifting and is a future veterinary neurologist. She will share her narcolepsy story LIVE on Project Sleep’s Facebook Page. To tune in live, go Project Sleep’s Facebook page…

Narcolepsy Nerd Alert’s Kickoff Event: Narcolepsy Roadmap!

Narcolepsy Nerd Alert’s Kickoff Event: Narcolepsy Roadmap We are ready to launch our new live broadcast series: Narcolepsy Nerd Alert! The series begins this Wednesday, January 27th at 1pm ET on Project Sleep’s Facebook page. “Narcolepsy Roadmap” is our first topic, because navigating narcolepsy doesn’t come with a roadmap, but it should! What do you wish…

New Live Event Series: Narcolepsy Nerd Alert

Project Sleep is thrilled to announce the launch of our brand new live event series: Narcolepsy Nerd Alert! This new series will take a deeper dive into specific topics related to narcolepsy. Hosted by award-winning geek Julie Flygare, each live event invites fellow #NarcolepsyNerds to explore unique aspects of the narcolepsy experience, contemplate bold questions,…

Rising Voices of Narcolepsy Story Sharing Series: Meet Kristen

You’re just doing too much… Somehow, I knew that wasn’t the full story.” — Kristen, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on January 4th, 2021 with a new storyteller: Kristen! Kristen shared her story of living an active life with narcolepsy, getting an accurate diagnosis after 25+ years, and…

Launching the 2021 Jack & Julie Narcolepsy Scholarship

In 2021, Project Sleep’s Jack & Julie Narcolepsy Scholarship program plans to award 25 scholarships of $1000 each to students with narcolepsy and idiopathic hypersomnia. High school seniors diagnosed with narcolepsy or idiopathic hypersomnia planning to attend a four-year college or university starting in Fall 2021 are encouraged to see eligibility and apply! Applications are…
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