Our Leadership

Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Secretary

Meet our President & CEO

Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Latest News

Meet Our New Board Member, Anne Taylor, RN, BSN

Please welcome Anne Taylor, RN, BSN, to the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health and sleep conditions. “I am excited to join the Project Sleep’s board of directors, as a parent of a child with narcolepsy, I know on a deep personal level how lonely and scary it…

Watch Now: World Narcolepsy Day Pronouncement

To kick off World Narcolepsy Day, Project Sleep organized a World Narcolepsy Day Pronouncement via FB Live, from World Sleep 2019 in Vancouver, Canada on Sept. 22, 2019. Our president & CEO, Julie Flygare, JD, brought together a very special group of narcolepsy and idiopathic hypersomnia researchers and advocacy leaders to share research updates and…

A Sister’s Surprise on World Narcolepsy Day

Guest Post by: Ana Elena Lara Meet Me In The Park The morning of World Narcolepsy Day, my  sister handed me a shirt and said to meet her at the park. I had planned to take pictures with my World Narcolepsy Day sign that day. Raising awareness is important to me because I went 12 plus years with symptoms before…

Congress Recognizes World Narcolepsy Day – September 22nd

Project Sleep is thrilled to share that Congress recognized World Narcolepsy Day with this statement from Congressman Adam Schiff in the U.S. House of Representatives on Friday, Sept. 20th, in advance of the inaugural World Narcolepsy Day on Sunday, Sept. 22, 2019. RECOGNIZING WORLD NARCOLEPSY DAY ______ HON. ADAM B. SCHIFF of California in the…

Narcolepsy Around the World: From Witchcraft to Awareness

Exploring narcolepsy across six continents for World Narcolepsy Day Guest Post by: Kayla Douglas With the inaugural World Narcolepsy Day (Sept. 22, 2019) recognized on six continents in honor of the three million people with narcolepsy worldwide coming up, I started wondering about the faces and stories behind these statistics. My own experience with narcolepsy…
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