Our Leadership

Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Secretary

Meet our President & CEO

Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Latest News

DOUBLE Your Impact this Giving Tuesday with up to $15,000 in Matching Funds!

Surreal News! A generous Project Sleep board member just pledged a remarkable $15,000 in matching gift funds to support our #GivingTuesday2019 campaign. Starting now and continuing through #GivingTuesday, December 3, 2019, all donations to Project Sleep will be MATCHED, dollar for dollar, up to $15,000! Donate today and your tax-deductible gift will be MATCHED, dollar for…

Thank You from College! Updates from our 2019 Scholarship Recipients

This year, generous donors joined with Project Sleep to award a record 18 Jack & Julie Narcolepsy Scholarships to college-bound students exemplifying courage and strength while living with narcolepsy or idiopathic hypersomnia. We caught up with the awardees to hear how college is going and what this scholarship meant to them. “Recognition for the challenges…

Napping in a New Sleeping Pod at My University

Guest Post by Freek Roes, a student studying business economics at Radboud University in the Netherlands and a person living with narcolepsy.  Recently my university acquired a Metronaps sleeping pod, which seems like a very expensive, unnecessarily complicated bed. It’s meant for students to take a nap during the day to recharge. But it can…

Meet Our New Board Member, Anne Taylor, RN, BSN

Please welcome Anne Taylor, RN, BSN, to the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health and sleep conditions. “I am excited to join the Project Sleep’s board of directors, as a parent of a child with narcolepsy, I know on a deep personal level how lonely and scary it…

Watch Now: World Narcolepsy Day Pronouncement

To kick off World Narcolepsy Day, Project Sleep organized a World Narcolepsy Day Pronouncement via FB Live, from World Sleep 2019 in Vancouver, Canada on Sept. 22, 2019. Our president & CEO, Julie Flygare, JD, brought together a very special group of narcolepsy and idiopathic hypersomnia researchers and advocacy leaders to share research updates and…
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