Our Leadership

Meet our Board of Directors

Julie Scher, J.D.

Chair

Ana Lara

Director

Tracy Christensen

Vice Chair

Edward Sweet

Secretary

Cienna Ditri

Director

Meet our Staff

Julie Flygare, JD
President & CEO

Julie Flygare, JD, currently serves as President & CEO of Project Sleep. She is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting her current role as President & CEO of Project Sleep, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Lauren Oglesby, MPH
Programs Manager

Lauren is a public health educator and advocate, with a focus on healthcare and resource accessibility for vulnerable and underserved populations. She has implemented programs serving LGBTQ+ youth in rural Virginia, teens at high risk of pregnancy, and people who are incarcerated and living with HIV.

Lauren has personal and family experience with invisible disabilities and chronic conditions, including mental illness and autism spectrum differences. She is thrilled to serve as Programs Manager with Project Sleep, where she leverages her diverse personal and professional experience (and love of spreadsheets) to coordinate advocacy and awareness initiatives with the sleep community. In her spare time, she enjoys hiking in the Blue Ridge mountains, reading too many books at a time, and trying to keep up with her large extended family. She lives in Central Virginia with her husband and daughter.

Latest News

A Poem for People with Narcolepsy by Arnaldo Hernandez

Project Sleep began celebrating our community’s poets and poetry during April’s National Poetry Month. Now we continue to share more amazing poems with you. Curated by Ana Lara. See Full Series Meet the Poet: “My name is Arnaldo Hernandez, and I live with my girlfriend of almost three years, Camille Cruz.  We are both from…

54 Members of Congress Co-Sign Bipartisan Sleep Letter

On April 26, 2021, an unprecedented 54 U.S. Representatives signed onto a bipartisan letter in support of critical sleep health and sleep disorders research and awareness. Fifty-four co-signers is considered a HUGE success by Congressional appropriations letter standards. This is also record-setting, as we had 31 co-signers in 2019 and 41 co-signers in 2020, and…

New Event: Friends + Family + Narcolepsy

Supporters mean everything! How can people with narcolepsy and their loved ones foster communication and mutual support? Share your insight with Project Sleep and special guests Lauren Thomas and Anne Taylor in our next Narcolepsy Nerd Alert live event, coming up at 1pm ET on Wednesday, April 28th. To join the conversation, go to Project…

Iris Vasconcelos: National Poetry Month Part 6

April is National Poetry Month! Project Sleep is proud to highlight poets and poetry from our community throughout the month of April. Curated by Ana Lara. See Full SeriesMeet the Poet: Iris Vasconcelos, 31 years old, is Angolan/Portuguese and currently living in Portugal, and looking forward to moving back to Luanda, Angola (located in Southern…

Kara Sulzer: National Poetry Month Part 5

April is National Poetry Month! Project Sleep is proud to highlight poets and poetry from our community throughout the month of April. Curated by Ana Lara. See Full SeriesMeet the Poet: Kara Sulzer began having narcolepsy symptoms at the age of 16 and was diagnosed with type 1 narcolepsy when she was 20 years old.…
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