Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Secretary

Melissa Buron

Director

Edward Sweet

Treasurer

Julie Flygare, J.D.

President & CEO

Meet our President & CEO

Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy.

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Latest News

New! Releasing Rising Voices of Narcolepsy Video Series

Today, Project Sleep is proud to release the Rising Voices of Narcolepsy Video Series —a new library of unforgettable stories and powerful resources you can use to raise critical awareness of narcolepsy. In the coming weeks, we will highlight each of these inspiring individuals via our blog, e-mail and social media. At any time, you can also explore the full video series here. Watch...

Launching 2019 Narcolepsy Scholarship

In 2019, Project Sleep plans to award a record 15 scholarships of $1000 each, including 10 scholarships to students with narcolepsy and five scholarships to students with idiopathic hypersomnia, thanks to a partnership with the Hypersomnia Foundation. All applications are due April 1, 2019 – no exceptions. For full details and instructions, see the 2019 Scholarship Application Packet. 2019...

Matching Gifts up to $15,000 for #GivingTuesday2018

Friends - we have surreal news today! A generous Project Sleep board member just pledged a remarkable $15,000 in matching gift funds to support our #GivingTuesday2018 campaign. Starting now and continuing through #GivingTuesday, Nov. 27, all donations to Project Sleep will be MATCHED, dollar for dollar, up to $15,000! Donate to Project Sleep today and your tax-deductible gift will...

College Life: 2018 Narcolepsy Scholarship Recipients Report Back

This summer, generous donors joined with Project Sleep to award 14 Jack & Julie Narcolepsy Scholarships to college-bound students exemplifying courage and strength while living with narcolepsy or idiopathic hypersomnia. Recently, we caught up with the awardees to hear about college, managing narcolepsy and what this scholarship has meant to them. star "Inspired to confidently pursue...

Bringing Design Thinking to Narcolepsy

On Saturday, Sept. 15, 2018, Project Sleep hosted “Innovations in Narcolepsy Awareness” as a one-day meeting and interactive workshop at the NonProfit Center in Boston, MA. Over 40 people attended the event, including individuals living with health conditions, loved ones, researchers and healthcare experts. Your Story Matters The day kicked off with introductions and a...