Our Leadership

Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Vice Chair

Emma Cooksey

Secretary

Cienna Ditri

Director

Ana Lara

Director

Meet our Staff

Julie Flygare, JD
President & CEO

Julie Flygare, JD, serves as President & CEO of Project Sleep. Flygare is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. On March 22, 2022, she delivered the TEDx Talk, “What Can You Learn from a Professional Dreamer?

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting her current role as President & CEO of Project Sleep, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Lauren Oglesby, MPH
Programs Manager

Lauren is a public health educator and advocate, with a focus on healthcare and resource accessibility for vulnerable and underserved populations. She has implemented programs serving LGBTQ+ youth in rural Virginia, teens at high risk of pregnancy, and people who are incarcerated and living with HIV.

Lauren has personal and family experience with invisible disabilities and chronic conditions, including mental illness and autism spectrum differences. She is thrilled to serve as Programs Manager with Project Sleep, where she leverages her diverse personal and professional experience (and love of spreadsheets) to coordinate advocacy and awareness initiatives with the sleep community. In her spare time, she enjoys hiking in the Blue Ridge mountains, reading too many books at a time, and trying to keep up with her large extended family. She lives in Central Virginia with her husband and daughter.

Rachel Aubrey
Digital Media Specialist

Rachel is a content creator and digital communicator, with a passion for working in the non-profit sector. She has worked with a small theater in her hometown of Wausau, WI, and with a dog rescue organization based out of Thailand.

Rachel is excited to continue learning about sleep health and sleep disorders. She believes sleep is indeed a pillar of health and strives to share its benefits with the world, mostly via social media and other digital platforms! In her spare time, she enjoys seeing live music, getting outside to explore the beautiful land and lakes that Wisconsin has to offer, and also traveling far beyond to an ever-growing list of destinations! As much as Rachel loves living in Wisconsin, the winters can be tough! She plans to start being a “snowbird,” trading the cold winter for a warmer climate.

Latest News

Sleep paralysis and hallucinations narcolepsy nerd alert

Narcolepsy Nerd Alert: Sleep Paralysis + Hallucinations

Sleep paralysis and hypnagogic and hypnopompic hallucinations can be confusing and scary. In this broadcast, we talked about these experiences and how to cope with them. Watch Video Meet Our Guests Chelsea Cataldi is a world traveler who enjoys creating things with her hands. She was diagnosed with type 1 narcolepsy with cataplexy in 2010…

Giving Thanks! 2022 Narcolepsy Scholarship Recipients Report Back From College

This summer, generous donors joined with Project Sleep to award 30 Jack & Julie Narcolepsy Scholarships to college-bound students living with narcolepsy or idiopathic hypersomnia. We caught up with the recipients recently to hear how college life is going and what the scholarship means to them. Read on to discover the profound impact your support…

Narcolepsy Nerd Alert: Narcolepsy at Work

Navigating the workplace with narcolepsy? Narcolepsy Nerd Alert: Narcolepsy at Work discusses gaining accommodations and practical tips for success. Narcolepsy at Work Podcast Narcolepsy at Work Toolkit Our downloadable, printable Narcolepsy at Work toolkit is coming soon! Narcolepsy at Work Video Meet Our Guests Tre Burge is a proud Iowa native and paraprofessional working with…

Sleep Advocates Return to Capitol Hill

After 2.5 years of virtual advocacy, Project Sleep and the Sleep Research Society returned to Washington DC for an in-person Hill Day on Tuesday, October 25th, 2022. Over 30 advocates from 11 states visited over 20 Congressional offices on Capitol Hill to educate and advocate for sleep research and awareness.  Sleep Community Rallies Together Participants…

2022 Sleep Advocacy Forum Rallies Leaders in Washington, DC

On Monday Oct 24, 2022, Project Sleep facilitated the third annual Sleep Advocacy Forum in Washington, DC. This in-person event brought together a diverse group of policy makers and sleep advocates to share updates and discuss areas of common interest. In the morning, Matthew Horsnell kicked off the event sharing his journey from feeling alone…