Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy.
Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.
Project Sleep, a 501(c)(3) non-profit dedicated to raising awareness about sleep health and sleep disorders, is proud to announce bold organizational goals to improve outcomes for people with narcolepsy. THE ISSUE Narcolepsy is a chronic neurological condition of the sleep-wake cycle estimated to affect about 1 in every 2,000 people — that’s 200,000 Americans and…
While we’ll be dancing with DJ Fe spinning music this Sunday during the Sleep In 2018‘s grand finale REM Dance Party, we wanted to share a bit more about the amazing person behind the rad tunes! DJ Fe has overcome incredible adversity from her military career to living with narcolepsy and becoming one of the hottest DJs out of…
Contact your Member of the House of Representatives and ask them to join the congressional letter regarding the narcolepsy research portfolio at NIH by March 2nd deadline. The Issue Over recent years, Congress has been increasing the budget for the National Institutes of Health (NIH) and a sizable portion of this funding has been going…
On January 1, 2018, Edward Sweet officially joined the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health and sleep conditions. Ed is currently serving as the Treasurer for the organization. “We’re so thrilled to welcome Ed as the newest member of Project Sleep’s Board of Directors,” said…
YOU’RE INVITED! Project Sleep is thrilled to launch the fourth annual Sleep In 2018 (#SleepIn2018) to raise awareness of sleep health and sleep conditions during Sleep Awareness Week. Over the weekend of March 9-11, 2018, we challenge you to stay in bed for 12 – 48 hours and invite your friends and family to join you or support your Sleep In. Sleep is the misunderstood and often-overlooked pillar of health. Whether you…
LOS ANGELES — February 12, 2018 — The Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health and sleep conditions, proudly announces the selection of Project Sleep’s Founder, Julie Flygare, J.D., as the organization’s new President & Chief Executive Officer (CEO). Flygare is an internationally recognized patient-perspective leader,…
Project Sleep is thrilled to launch the fifth annual Jack & Julie Narcolepsy Scholarship supporting students with narcolepsy while fostering awareness of narcolepsy in high school and collegiate settings. In 2018, Project Sleep will award seven scholarships of $1,000 each, including one scholarship to a student with idiopathic hypersomnia, supported through a collaboration with the Hypersomnia Foundation. High school seniors…
