Our Leadership

Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Vice Chair

Edward Sweet

Secretary

Cienna Ditri

Director

Ana Lara

Director

Meet our Staff

Julie Flygare, JD
President & CEO

Julie Flygare, JD, currently serves as President & CEO of Project Sleep. She is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting her current role as President & CEO of Project Sleep, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Lauren Oglesby, MPH
Programs Manager

Lauren is a public health educator and advocate, with a focus on healthcare and resource accessibility for vulnerable and underserved populations. She has implemented programs serving LGBTQ+ youth in rural Virginia, teens at high risk of pregnancy, and people who are incarcerated and living with HIV.

Lauren has personal and family experience with invisible disabilities and chronic conditions, including mental illness and autism spectrum differences. She is thrilled to serve as Programs Manager with Project Sleep, where she leverages her diverse personal and professional experience (and love of spreadsheets) to coordinate advocacy and awareness initiatives with the sleep community. In her spare time, she enjoys hiking in the Blue Ridge mountains, reading too many books at a time, and trying to keep up with her large extended family. She lives in Central Virginia with her husband and daughter.

Latest News

Watch Now: NFL Player Josh Andrews Speaks Out About Narcolepsy

For the first time, Josh Andrews (#68) offensive lineman for the Atlanta Falcons, shares his story of living with narcolepsy in a new video series with Project Sleep to raise global narcolepsy awareness for World Narcolepsy Day (Sept. 22, 2021). Josh Andrews is an American football offensive guard for the Atlanta Falcons of the National…

SPANISH World Narcolepsy Day Story Sharing Event: Alexa’s Story

Please share with Spanish-speaking family and friends! Rising Voices of Narcolepsy advocate Alexa Cuevas joined us on FB Live from Mexico for a very special World Narcolepsy Day Story Sharing in Spanish! Fellow advocate Grisel Pantoja facilitated a Q&A session in Spanish afterwards. (Para información en español, por favor, desplácese hacia abajo.) Watch Video Now: Click here to watch…

WND 2021 Live Panel: Narcolepsy Around the World

We celebrated World Narcolepsy Day, Sept. 22, 2021 with “Narcolepsy Around the World.” People living with narcolepsy joined us from Australia, China, Poland, Germany, Israel, Angola, Brazil, and Uruguay to share their stories and perspectives on awareness, advocacy, treatment, and support. Watch Video Now: World Narcolepsy Day is dedicated to raising awareness of narcolepsy on a…

World Narcolepsy Day Story Sharing Event: Meet Farah in Ontario!

As an aspiring med student, reassessing my capacity — not my ability — was tough to swallow. But it liberated me to explore new possibilities and passions. — Farah Hasan, RVN Advocate In anticipation of World Narcolepsy Day (Sept 22), new Rising Voices of Narcolepsy storyteller Farah Hasan joined us from Ontario on September 12th,…

World Narcolepsy Day 2021: Get Involved!

Just 3 weeks until the third annual World Narcolepsy Day on Sept. 22nd, 2021. This September, let’s think globally and act locally to elevate narcolepsy awareness worldwide. 6 Easy Ways to Get Involved: 1. Visit the Virtual Photo Booth Let’s celebrate together virtually via the new World Narcolepsy Day Virtual Photo Booth! The virtual photo booth is…
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