Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Secretary

Melissa Buron

Director

Edward Sweet

Treasurer

Julie Flygare, J.D.

President & CEO

Meet our President & CEO

Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy.

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Latest News

“Ask Us Anything!” Submit Your Questions for Dr. Mignot, Julie Flygare and Watson

Julie Flygare, JDPresident & CEO, Project SleepEmmanuel Mignot, MD, PhDDirector of the Stanford Center for Sleep Sciences and MedicineWatsonChihuahua with narcolepsy Join Project Sleep on Tuesday, Sept. 4, at 7 p.m. ET, for an “Ask Us Anything” Facebook Live event, featuring Julie Flygare, J.D., President & CEO of Project Sleep, along with special guests, Emmanuel Mignot,...

Narcolepsy Scholarship Recipients Graduate College! Jacob’s Update

This week, we are celebrating the college graduation of our very first two Jack & Julie Narcolepsy Scholarships recipients from 2014. Recently, Kendra graduated from the University of St. Thomas and Jacob graduated from The Ohio State! Today, we are sharing Jacob’s awesome update. Read Kendra’s update here. Jacob’s College Graduation Update: Jacob was diagnosed with narcolepsy at age 11. In 2014, he…

Engaging Various Stakeholders Leads to Progress in SLEEP-2 Meeting

On Saturday, June 1, 2018, the fourth and final meeting of the SLEEP-2 program took place in Baltimore, MD in conjunction with the APSS Sleep Meeting 2018. Funded through a PCORI Engagement Award, SLEEP-2 is a two-year project co-lead by the University of Arizona, Project Sleep and the Sleep Research Network, aiming to: engage patients, scientists and…

Narcolepsy Scholarship Recipients Graduate College! Kendra’s Update

This week, we are celebrating the college graduation of our very first two Jack & Julie Narcolepsy Scholarships recipients from 2014. Recently, Kendra graduated from the University of St. Thomas and Jacob graduated from The Ohio State! Today, Kendra shares beautiful reflections on college life and studying abroad with narcolepsy. Read Jacob's update here. Kendra's College Graduation Update: Kendra was diagnosed...

Meet Your Legislators to Share Your Story this Summer

Join us for an important webinar to help advance sleep research and awareness. Friends in the United States: Your Members of Congress will be home this August to hear from their constituents (that's YOU)! By visiting your legislators at their local offices and sharing your story, you will open your representatives' eyes to sleep's insidious...