Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Secretary

Melissa Buron

Director

Edward Sweet

Treasurer

Julie Flygare, J.D.

President & CEO

Meet our President & CEO

Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy.

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Latest News

Narcolepsy Scholarship Recipients Graduate College! Kendra’s Update

This week, we are celebrating the college graduation of our very first two Jack & Julie Narcolepsy Scholarships recipients from 2014. Recently, Kendra graduated from the University of St. Thomas and Jacob graduated from The Ohio State! Today, Kendra shares beautiful reflections on college life and studying abroad with narcolepsy. Check back later for Jacob's awesome update later this week. Kendra's...

Meet Your Legislators to Share Your Story this Summer

Join us for an important webinar to help advance sleep research and awareness. Friends in the United States: Your Members of Congress will be home this August to hear from their constituents (that's YOU)! By visiting your legislators at their local offices and sharing your story, you will open your representatives' eyes to sleep's insidious...

Project Sleep Announces 2018 Jack & Julie Narcolepsy Scholarship Recipients

Project Sleep awards 14 scholarships in 2018, totaling 50 scholarships in five years. Today, Project Sleep is excited to introduce the 14 recipients of the 2018 Jack & Julie Narcolepsy Scholarship program. Recipients are graduating high school seniors who will each receive $1,000 toward their college education. “The 2018 recipients are a diverse group of...

Giving Tuesday features Julie Flygare in #WomenWhoGive Series

Today, Giving Tuesday is featuring our President & CEO, Julie Flygare in their #WomenWhoGive series, which celebrates women who are making a difference in their communities. In this unique post, Julie opens up about what got her started in philanthropy, explaining: “You could say, a low point in my life inspired me to start giving. After…

First-of-Its-Kind Patient-Focused Sleep Apnea Meeting with FDA: Get Involved!

Project Sleep is proud to partner with the American Sleep Apnea Association on the AWAKE Sleep Apnea initiative. People living with sleep apnea have a special role to play in shaping the future of treatment & care. Learn about ways sleep apnea patients, family members, and caregivers can take action now for progress: https://www.awakesleepapnea.org/ REGISTER...