Our Leadership

Meet our Board of Directors

Julie Scher, J.D.

Chair

Tracy Christensen

Secretary

Meet our President & CEO

Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy

Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development.

Latest News

Rising Voices of Narcolepsy Story Sharing Series: Meet Brittany Matthews

This week, our Rising Voices of Narcolepsy Story Sharing live series continues with a brand-new speaker: Rising Voices of Narcolepsy trained speaker Brittany Matthews! This Sunday, April 12, Brittany, who has presented her story for college students across the country, will share her presentation and answer questions from live viewers. The Rising Voices of Narcolepsy Story…

Rising Voices of Narcolepsy Story Sharing Series: Meet Engineer Ebony Lay

This week, our Rising Voices of Narcolepsy Story Sharing live series continued with a brand-new speaker: Rising Voices of Narcolepsy trained speaker Ebony Lay! This past Sunday, April 5, Ebony shared her powerful presentation, followed by questions from live viewers. The Rising Voices of Narcolepsy Story Sharing Series invites viewers to gather online to watch a Rising…

Rising Voices of Narcolepsy Story Sharing Series: Meet Black Belt Dr. Mindi McKenna

“That’s what people with narcolepsy do—we work it out.” This week, our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, March 29 with Dr. Mindi McKenna! Mindi shared her inspirational presentation and answered questions from live viewers. The Rising Voices of Narcolepsy Story Sharing Series invites viewers to gather online to watch a Rising Voices of…

Narcolepsy Story Sharing Series: Actor & Writer Anna Marr

The Rising Voices of Narcolepsy Story Sharing Series invites viewers to gather online to watch a Rising Voices of Narcolepsy trained speaker or writer present their story live via Project Sleep’s Facebook page. Project Sleep is proud to offer our monthly series as a weekly event for the next few months. At a time in which…

Tremendous Congressional Support for Sleep and Sleep Disorders

Project Sleep is thrilled to share the news that an unprecedented 41 members of the U.S. House of Representatives signed onto a bipartisan letter on March 17, 2020, supporting critical sleep and sleep disorders research and awareness. Importantly, 41 co-signers is considered a tremendous and impactful success by sign-on letter standards, with nearly 10% of…
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