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Recent News

Title: Sleep Apnea Squad with an image of a megaphone

New Live Event Series: Sleep Apnea Squad

Project Sleep is thrilled to announce the launch of our brand new live event series: Sleep Apnea Squad! The series will cover a wide variety of topics to help people navigate life with sleep apnea. Hosted by Project Sleep’s Sleep Apnea Program Manager, Emma Cooksey, each live event invites fellow members of the #SleepApneaSquad to…
Sleep Data Collection Program Partners

Be a Part of the Sleep Data Collection Program!

The sleep community is coming together to launch a new data initiative to accelerate research and insights into sleep-related disorders. Project Sleep is partnering with the Sleep Consortium and RARE-X, a program of Global Genes, to build a Data Collection Program for our families.  When you participate in the Sleep Data Collection Program, you’ll help advance…
Lauren Thomas, a black woman with shoulder length brown hair and brown eyes.

Welcoming Lauren Thomas to Project Sleep’s Board of Directors!

In July 2024, Lauren Thomas joined the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health, sleep equity, and sleep disorders.  Lauren Thomas is a patient advocate living with type 1 narcolepsy with cataplexy. After 14 years of misdiagnosis, Lauren received her diagnosis of narcolepsy at the age of…
Lindsay Scola, Dr. Kali Cyrus, Dr. Michael Grander, and Julie Flygare stand together in front of a podium at Project Sleep's Congressional Briefing.

Sleep Awareness Win on Capitol Hill: Huge Turnout for Project Sleep’s Congressional Briefing

On Tuesday, July 16th, 2024, Project Sleep proudly hosted “Awakening America: A Congressional Briefing on Sleep and Public Health” followed by a first-ever Sleep Screening event on Capitol Hill. Over 100 people attended Project Sleep’s events, with great interest from Hill staffers looking to learn more about their sleep and Project Sleep’s activities, including Project…
Rising Voices speaker Kristyn Beecher standing behind the Project Sleep table and holding a ROCK the Block sign.

Rising Voices Speaker Kristyn Beecher ROCKS the Block!

Project Sleep Board Member and Rising Voices speaker Kristyn Beecher raised awareness of sleep health, sleep disorders, and sleep equity at the ROCK the Block Community Health & Resource Expo in Houston! Rock the Block is an event that strives to unite community members, organizations, and stakeholders to address the social determinants of health disproportionately affecting…

Awakening America: Congressional Briefing on Sleep and Public Health

Project Sleep cordially invites Members of Congress, staffers, and interested stakeholders to attend: “Awakening America: A Congressional Briefing on Sleep and Public Health” Tuesday, July 16th, 2024 12:00 PM – 12:45 PM (Eastern) Room 2075, Rayburn House Office Building On Tuesday, July 16th, 2024 at 12:00 noon ET, please join the sleep community for a…

Meet the 2024 Jack & Julie Narcolepsy Scholarship Recipients

Project Sleep is honored to introduce the 2024 Jack & Julie Narcolepsy Scholarship recipients. The 37 awardees represent our largest group yet, and will each receive $1,000 toward their college education. In 11 years, the scholarship program has now awarded a total of 228 scholarships to 228 students, totaling $228,000. “With the generosity and support of the…

LGBTQ+ Sleep Survey: Insights and Takeaways

LGBTQ+ Sleep Survey Results Are In! In June 2023, Project Sleep launched the LGBTQ+ Sleep Survey to ask: How are identity and sleep health intertwined for LGBTQIA+ members of our community? We wanted to hear first-hand how the experiences of LGBTQIA+ people impact their sleep, to help inform our sleep advocacy and awareness campaigns and…

Project Sleep at APSS SLEEP Meeting 2024

Over June 1-5, 2024, Project Sleep attended SLEEP 2024 in Houston, TX. SLEEP 2024 was the 38th annual meeting of the Associated Professional Sleep Societies, LLC (APSS). The annual SLEEP meeting is dedicated to clinical sleep medicine, sleep and circadian research, and sleep health. Project Sleep had the opportunity to share our work and research…
Jacob Zeiher, a white man with short, light colored hair and blue eyes wearing a gray suit jacket with a white shirt and blue tie.

Donor Spotlight: Meet Jacob Zeiher

In 2014, Jacob Zeiher became one of the first recipients of the Jack & Julie Narcolepsy Scholarship, established by Project Sleep. Reflecting on his journey, Jacob emphasizes the importance of “paying it forward” to empower others through similar opportunities. Jacob’s journey with narcolepsy began in his early school years when his father, a practicing physician,…