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Recent News

World Narcolepsy Day 2024: Get Involved!

The sixth annual World Narcolepsy Day is on Sept. 22nd, 2024! This September, let’s raise our awareness to new heights. 7 Easy Ways to Get Involved: 1. Become an Ambassador Be a leader in raising awareness! Project Sleep’s World Narcolepsy Day Ambassadors participate in activities, raise funds, and spread the word about narcolepsy in their…

World Narcolepsy Day Story Sharing: Meet Orla in Ireland!

In celebration of World Narcolepsy Day (Sept 22), new Rising Voices storyteller Orla Nolan shared her narcolepsy story from Ireland! Watch Now: About Orla: Orla Nolan is an organizational psychologist, mother, and crochet master from Dublin, Ireland. Her narcolepsy symptoms began in her late teens, and she was diagnosed with type 2 narcolepsy without cataplexy at age…

World Narcolepsy Day Story Sharing: Meet Liesel in New Zealand!

In celebration of World Narcolepsy Day (Sept 22), new Rising Voices storyteller Liesel Mitchell shared her narcolepsy story from New Zealand! Watch Now: About Liesel: Liesel Mitchell is a coffee-loving conversationalist and researcher/writer from Aotearoa New Zealand. She has lived with type 1 narcolepsy with cataplexy since she was 15, and wants to start conversations…

Olympian Speaks Out about Sleep Apnea

While the most popular sleep story at the 2024 Paris Olympics was definitely the uncomfortable cardboard beds, there was also important coverage on renowned Swedish handball star, Jim Gottfridsson speaking out about living with sleep apnea. Photo Credit: JOHANNA SÄLL/BILDBYRÅN/Shutterstock On July 31, 2024, The 2024 Paris Olympics website published the article, “Paris 2024 Olympics…
Black Noir from The Boys TV Show Amazon portrayal of narcolepsy narcoleptic

The Boys Black Noir: Superhero with Narcolepsy

Photo Credit: Jan Thijs/Amazon/Sony/Kobal/Shutterstock In Season 4 of Prime Video’s hit series, The Boys, the “new” Black Noir (played by Nathan Mitchell) is portrayed as a superhero with narcolepsy. Here’s everything you need to know about Black Noir’s narcolepsy, how it compares to real-life narcolepsy, and whether Black Noir actor, Nathan Mitchell has narcolepsy himself…
Title: Could I have sleep apnea? with question mark graphics

Sleep Apnea Squad: Could I Have Sleep Apnea?

Sleep apnea symptoms can fly under the radar, even in the doctor’s office. Are you questioning if you or a loved one has sleep apnea symptoms? If you are living with sleep apnea, did you experience a delay to diagnosis? Could I Have Sleep Apnea? Toolkit: Sleep Apnea Squad toolkits accompany each broadcast. The toolkits…
Title: Sleep Apnea Squad with an image of a megaphone

New Live Event Series: Sleep Apnea Squad

Project Sleep is thrilled to announce the launch of our brand new live event series: Sleep Apnea Squad! The series will cover a wide variety of topics to help people navigate life with sleep apnea. Hosted by Project Sleep’s Sleep Apnea Program Manager, Emma Cooksey, each live event invites fellow members of the #SleepApneaSquad to…
Sleep Data Collection Program Partners

Be a Part of the Sleep Data Collection Program!

The sleep community is coming together to launch a new data initiative to accelerate research and insights into sleep-related disorders. Project Sleep is partnering with the Sleep Consortium and RARE-X, a program of Global Genes, to build a Data Collection Program for our families.  When you participate in the Sleep Data Collection Program, you’ll help advance…
Lauren Thomas, a black woman with shoulder length brown hair and brown eyes.

Welcoming Lauren Thomas to Project Sleep’s Board of Directors!

In July 2024, Lauren Thomas joined the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health, sleep equity, and sleep disorders.  Lauren Thomas is a patient advocate living with type 1 narcolepsy with cataplexy. After 14 years of misdiagnosis, Lauren received her diagnosis of narcolepsy at the age of…
Lindsay Scola, Dr. Kali Cyrus, Dr. Michael Grander, and Julie Flygare stand together in front of a podium at Project Sleep's Congressional Briefing.

Sleep Awareness Win on Capitol Hill: Huge Turnout for Project Sleep’s Congressional Briefing

On Tuesday, July 16th, 2024, Project Sleep proudly hosted “Awakening America: A Congressional Briefing on Sleep and Public Health” followed by a first-ever Sleep Screening event on Capitol Hill. Over 100 people attended Project Sleep’s events, with great interest from Hill staffers looking to learn more about their sleep and Project Sleep’s activities, including Project…