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Recent News

Jacob Zeiher, a white man with short, light colored hair and blue eyes wearing a gray suit jacket with a white shirt and blue tie.

Donor Spotlight: Meet Jacob Zeiher

In 2014, Jacob Zeiher became one of the first recipients of the Jack & Julie Narcolepsy Scholarship, established by Project Sleep. Reflecting on his journey, Jacob emphasizes the importance of “paying it forward” to empower others through similar opportunities. Jacob’s journey with narcolepsy began in his early school years when his father, a practicing physician,…
Image of doctor looking at text that reads: "Despite popular belief, delays in diagnosing narcolepsy may not have improved."

SLEEP 2024 Poster Presentation: Diagnostic Patterns in Hypersomnolence

New data from Project Sleep’s Narcolepsy and IH Social Support Survey will be presented in a late-breaking abstract poster at SLEEP 2024, June 1-5 in Houston, TX. The study, “Evolving Diagnostic Patterns in Central Disorders of Hypersomnolence: Has Time to Diagnosis Gotten Shorter Over The Last Decades?” examines diagnostic patterns in hypersomnolence (i.e., narcolepsy and…

New Narcolepsy Community Reads

For people living with sleep disorders like narcolepsy, stigma and isolation are common experiences. Low awareness and misconceptions of sleep disorders are often the root issue of these experiences. At Project Sleep, we strive to raise awareness and dismantle misconceptions. One powerful way to understand the lived experiences of those with narcolepsy is through the…

35 Members of Congress Sign Letter for Sleep Research and Awareness

On May 1, 2024, a group of 35 U.S. Representatives co-signed a Congressional letter in support of prioritizing sleep medical research and public awareness at a national level. This letter notes the troubling lack of coordinated sleep activities in public health and urges the CDC to modernize sleep public health. Starting on Thursday, April 11,…

Talking to Your Doctor About Sleep Issues

Feeling like you might be more than “just tired?” Wondering how to talk about sleep issues with your primary care provider? You’re not alone. In Talking to Your Doctor About Sleep Issues, guests shared insights from clinical and patient perspectives on discussing sleep issues and daytime sleepiness with general practitioners, and how to get referred…

Action Alert: Ask Your Representative to Support Sleep Awareness and Research

Take Action for Sleep This year, an official Congressional Sign On Letter will be sent to the Appropriations Committee asking them to prioritize support for sleep and sleep disorders public health, awareness, and research. To be effective, we need your Members of the U.S. House of Representatives to “sign on.” The more House Representatives sign…

10th Annual Sleep In Celebrated a Decade of Sleep Awareness!

THANK YOU to all our participants and supporters who came together online to celebrate rest and recovery during Sleep In 2024 (#SleepIn2024)! The 10th annual Sleep In took place from March 8-10, 2024. Participants were encouraged to prioritize sleep, rest, and self-care while fundraising for Project Sleep. During Sleep In 2024, 68 participants raised $1,983! Sleep…

Online Event! Sleep Disorders Conversation for Journalists

On Thursday, February 29, 2024, Project Sleep hosted Sleep Disorders Conversation for Journalists. This conversation informed and educated media professionals on how to accurately cover sleep health and sleep disorders. In this conversation, people living with different sleep disorders shared insights from their journeys and what they wish they had read. Sleep disorders affect one…

Project Sleep Leads Patient Panel at Sleep Medicine Trends 2024

President & CEO of Project Sleep, Julie Flygare, JD spoke at AASM’s Sleep Medicine Trends conference in La Jolla, California on February 24, 2024. Flygare presented “When Dreams Leave the Night” and also moderated the patient panel “Where Physicians Make Mistakes.” This panel featured sleep advocates Miranda Chappel-Farley, Lauryn Craine, and Ray Merrell, who are…
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2024 Rising Voices Application Now Open!

Raise Your Voice Project Sleep is now accepting applications for our 2024 Rising Voices training! This leadership program trains people with sleep disorders to effectively raise awareness through public speaking.  Rising Voices combines the power of authentic storytelling with expert communication strategies to raise awareness and reduce stigma. Graduates are equipped to share their stories…
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