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Olympian Speaks Out about Sleep Apnea

While the most popular sleep story at the 2024 Paris Olympics was definitely the uncomfortable cardboard beds, there was also important coverage on renowned Swedish handball star, Jim Gottfridsson speaking out about living with sleep apnea. Photo Credit: JOHANNA SÄLL/BILDBYRÅN/Shutterstock On July 31, 2024, The 2024 Paris Olympics website published the article, “Paris 2024 Olympics…
Black Noir from The Boys TV Show Amazon portrayal of narcolepsy narcoleptic

The Boys Black Noir: Superhero with Narcolepsy

Photo Credit: Jan Thijs/Amazon/Sony/Kobal/Shutterstock In Season 4 of Prime Video’s hit series, The Boys, the “new” Black Noir (played by Nathan Mitchell) is portrayed as a superhero with narcolepsy. Here’s everything you need to know about Black Noir’s narcolepsy, how it compares to real-life narcolepsy, and whether Black Noir actor, Nathan Mitchell has narcolepsy himself…
Title: Could I have sleep apnea? with question mark graphics

Sleep Apnea Squad: Could I Have Sleep Apnea?

Sleep apnea symptoms can fly under the radar, even in the doctor’s office. Are you questioning if you or a loved one has sleep apnea symptoms? If you are living with sleep apnea, did you experience a delay to diagnosis? Watch Video: On Tuesday, August 6, 2024 our interactive discussion, Sleep Apnea Squad: Could I Have…
Title: Sleep Apnea Squad with an image of a megaphone

New Live Event Series: Sleep Apnea Squad

Project Sleep is thrilled to announce the launch of our brand new live event series: Sleep Apnea Squad! The series will cover a wide variety of topics to help people navigate life with sleep apnea. Hosted by Project Sleep’s Sleep Apnea Program Manager, Emma Cooksey, each live event invites fellow members of the #SleepApneaSquad to…
Sleep Data Collection Program Partners

Be a Part of the Sleep Data Collection Program!

The sleep community is coming together to launch a new data initiative to accelerate research and insights into sleep-related disorders. Project Sleep is partnering with the Sleep Consortium and RARE-X, a program of Global Genes, to build a Data Collection Program for our families.  When you participate in the Sleep Data Collection Program, you’ll help advance…
Lauren Thomas, a black woman with shoulder length brown hair and brown eyes.

Welcoming Lauren Thomas to Project Sleep’s Board of Directors!

In July 2024, Lauren Thomas joined the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health, sleep equity, and sleep disorders.  Lauren Thomas is a patient advocate living with type 1 narcolepsy with cataplexy. After 14 years of misdiagnosis, Lauren received her diagnosis of narcolepsy at the age of…
Lindsay Scola, Dr. Kali Cyrus, Dr. Michael Grander, and Julie Flygare stand together in front of a podium at Project Sleep's Congressional Briefing.

Sleep Awareness Win on Capitol Hill: Huge Turnout for Project Sleep’s Congressional Briefing

On Tuesday, July 16th, 2024, Project Sleep proudly hosted “Awakening America: A Congressional Briefing on Sleep and Public Health” followed by a first-ever Sleep Screening event on Capitol Hill. Over 100 people attended Project Sleep’s events, with great interest from Hill staffers looking to learn more about their sleep and Project Sleep’s activities, including Project…
Rising Voices speaker Kristyn Beecher standing behind the Project Sleep table and holding a ROCK the Block sign.

Rising Voices Speaker Kristyn Beecher ROCKS the Block!

Project Sleep Board Member and Rising Voices speaker Kristyn Beecher raised awareness of sleep health, sleep disorders, and sleep equity at the ROCK the Block Community Health & Resource Expo in Houston! Rock the Block is an event that strives to unite community members, organizations, and stakeholders to address the social determinants of health disproportionately affecting…

Awakening America: Congressional Briefing on Sleep and Public Health

Project Sleep cordially invites Members of Congress, staffers, and interested stakeholders to attend: “Awakening America: A Congressional Briefing on Sleep and Public Health” Tuesday, July 16th, 2024 12:00 PM – 12:45 PM (Eastern) Room 2075, Rayburn House Office Building On Tuesday, July 16th, 2024 at 12:00 noon ET, please join the sleep community for a…

Meet the 2024 Jack & Julie Narcolepsy Scholarship Recipients

Project Sleep is honored to introduce the 2024 Jack & Julie Narcolepsy Scholarship recipients. The 37 awardees represent our largest group yet, and will each receive $1,000 toward their college education. In 11 years, the scholarship program has now awarded a total of 228 scholarships to 228 students, totaling $228,000. “With the generosity and support of the…
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