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Julie Flygare Raises Awareness of Narcolepsy on ABC News Live

President & CEO of Project Sleep, Julie Flygare, JD, appeared on ABC News Live with Diane Macedo to raise awareness of narcolepsy ahead of World Narcolepsy Day 2024. The segment took place on Friday, September 20, two days ahead of the sixth annual World Narcolepsy Day. In the interview, Flygare described her symptoms and experience…

Project Sleep Featured in Scientific American Narcolepsy Article

Project Sleep is proud to be featured in an important article in Scientific American raising awareness of narcolepsy, “Global Wake-up Call Helps Bring Narcolepsy to Light.” This article draws attention to World Narcolepsy Day and features the stories of nine-year NFL player, Josh Andrews, and President & CEO of Project Sleep, Julie Flygare, JD. Scientific…

Narcolepsy Nerd Alert: Could I Have Narcolepsy?

Wondering if you or a loved one could have narcolepsy? Sleep medicine specialist Dr. Lindsay McCullough, MD joined us to discuss symptoms, diagnosis, and treatment and share her own journey to being diagnosed with narcolepsy. Could I Have Narcolepsy? Toolkit: Narcolepsy Nerd Alert toolkits accompany each broadcast. The toolkits are designed for people living with…

World Narcolepsy Day 2024 Featured Event: How Storytelling Brings Narcolepsy to Light

Narcolepsy is a chronic neurological condition impacting 1 in 2,000 people; about 3 million people worldwide. Yet, because of low awareness (even among physicians) and misperceptions, there is an average of 8 to 15 years between narcolepsy symptom onset and diagnosis, and it’s estimated that the majority of people with narcolepsy are currently undiagnosed or…

World Narcolepsy Day 2024: Get Involved!

The sixth annual World Narcolepsy Day is on Sept. 22nd, 2024! This September, let’s raise our awareness to new heights. 7 Easy Ways to Get Involved: 1. Become an Ambassador Be a leader in raising awareness! Project Sleep’s World Narcolepsy Day Ambassadors participate in activities, raise funds, and spread the word about narcolepsy in their…

World Narcolepsy Day Story Sharing: Meet Orla in Ireland!

In celebration of World Narcolepsy Day (Sept 22), new Rising Voices storyteller Orla Nolan shared her narcolepsy story from Ireland! Watch Now: About Orla: Orla Nolan is an organizational psychologist, mother, and crochet master from Dublin, Ireland. Her narcolepsy symptoms began in her late teens, and she was diagnosed with type 2 narcolepsy without cataplexy at age…

World Narcolepsy Day Story Sharing: Meet Liesel in New Zealand!

In celebration of World Narcolepsy Day (Sept 22), new Rising Voices storyteller Liesel Mitchell shared her narcolepsy story from New Zealand! Watch Now: About Liesel: Liesel Mitchell is a coffee-loving conversationalist and researcher/writer from Aotearoa New Zealand. She has lived with type 1 narcolepsy with cataplexy since she was 15, and wants to start conversations…

Olympian Speaks Out about Sleep Apnea

While the most popular sleep story at the 2024 Paris Olympics was definitely the uncomfortable cardboard beds, there was also important coverage on renowned Swedish handball star, Jim Gottfridsson speaking out about living with sleep apnea. Photo Credit: JOHANNA SÄLL/BILDBYRÅN/Shutterstock On July 31, 2024, The 2024 Paris Olympics website published the article, “Paris 2024 Olympics…
Black Noir from The Boys TV Show Amazon portrayal of narcolepsy narcoleptic

The Boys Black Noir: Superhero with Narcolepsy

Photo Credit: Jan Thijs/Amazon/Sony/Kobal/Shutterstock In Season 4 of Prime Video’s hit series, The Boys, the “new” Black Noir (played by Nathan Mitchell) is portrayed as a superhero with narcolepsy. Here’s everything you need to know about Black Noir’s narcolepsy, how it compares to real-life narcolepsy, and whether Black Noir actor, Nathan Mitchell has narcolepsy himself…
Title: Could I have sleep apnea? with question mark graphics

Sleep Apnea Squad: Could I Have Sleep Apnea?

Sleep apnea symptoms can fly under the radar, even in the doctor’s office. Are you questioning if you or a loved one has sleep apnea symptoms? If you are living with sleep apnea, did you experience a delay to diagnosis? Could I Have Sleep Apnea? Toolkit: Sleep Apnea Squad toolkits accompany each broadcast. The toolkits…
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