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Educating Future Nurses About Narcolepsy

Guest Post by Shannon Burkoth, Rising Voices of Narcolepsy Trained Speaker On the forty-five minute drive to the hospital where I’d be speaking to nursing students about narcolepsy for my first presentation as a Rising Voices of Narcolepsy speaker, I tried to rehearse my speech that was engrained in my head by now, and there was…

Share Your Journey with Congress Today

Sleep disorders impact millions of Americans (including veterans), and it is essential that Congress continue to support vital funding for sleep research. Right now, Congress is deciding on federal funding for various programs and activities in FY2018, including programs that distribute funding to talented researchers at leading academic medical centers. However, it is up to us to…

Meet the 2017 Jack & Julie Narcolepsy Scholarship Recipients

Project Sleep is proud to announce the 11 recipients of the 2017 Jack & Julie Narcolepsy Scholarship, a national scholarship program supporting students with narcolepsy while also raising narcolepsy awareness in high school and college settings. In just four years, the program has awarded 36 scholarships of $1,000 each to 36 students with narcolepsy entering college. 0Years0Scholarships$0,000Given Out Cassandra…

Rising Voices of Narcolepsy Kicks Off Summer 2017

Rising Voices of Narcolepsy Workshop – Los Angeles, CA On Saturday, May 27, Project Sleep kicked off the Rising Voices of Narcolepsy training program with a public speaking workshop in Los Angeles, California. Rising Voices of Narcolepsy trains people with narcolepsy to spread awareness through speaking or writing. This serves the dual purpose of improving…

Sleep In 2017 Shines Light on the Night

  Sleep is an overlooked pillar of health and sleepiness is often confused with laziness. This is why on March 10-12, 2017, Project Sleep’s Sleep In 2017 rallied individuals around the world to make peace with sleep. This third annual event challenged individuals to stay in bed for 12-48 hours over the weekend while raising awareness…

Survey: Weigh in on Narcolepsy Research Priorities

In partnership with the University of Arizona, Project Sleep is conducting an important survey to capture perspectives of the narcolepsy and hypersomnia community. The results will be discussed at the SLEEP2 Narcolepsy Meeting on June 3rd, 2017 in Boston, MA. This critical survey will help ensure that future narcolepsy research and treatments address what matters most to people…

Rising Voices of Narcolepsy Schedule & Application

Project Sleep is proud to announce that we are now accepting applications for our newly launched Rising Voices of Narcolepsy program. This leadership training program will help people with narcolepsy effectively share their stories through public speaking or writing with local communities, healthcare providers, news outlets, blogs, and beyond. Through Rising Voices of Narcolepsy, we…

Thank You From College! Jack & Julie Narcolepsy Scholarship Recipients 2016

You made a difference in 2016. You gave students with narcolepsy something intangible: motivation, empowerment, recognition, and a sense of community. Your generosity supported a record fourteen Jack & Julie Narcolepsy Scholarships in 2016. This holiday season, our recipients say thanks to YOU — in their own words from college! Please consider giving the gift of hope and…

PCORI Engagement Conference unites scientists and advocates to make sleep research more patient-centered

The Strategically Leverage Engage and Empower PCOR in Sleep (SLEEP2) project held its first conference on October 7th in Bethesda, Maryland. SLEEP2 is a new project co-led by the University of Arizona, the Sleep Research Network, and Project Sleep and is funded by the Patient-Centered Outcomes Research Institute (PCORI). SLEEP2 aims to engage patients, scientists and other stakeholders as…

Project Sleep & University of Arizona project selected for PCORI Engagement Award

We are thrilled to announce that Project Sleep has been selected for an Eugene Washington Patient-Centered Outcomes Research Institute (PCORI) Engagement Award in collaboration with the University of Arizona and Sleep Research Network. View University of Arizona’s Press Release. The PCORI-funded project, “Strategically Leverage Engage and Empower PCOR in Sleep (SLEEP2)”, is led by Sai Parthasarathy, MD, a professor of medicine at the University…
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