On November 11, 2019, Ebony Lay gave her Rising Voices of Narcolepsy presentation to the United States House of Representatives in Washington, D.C. during a Sleep Community Congressional Briefing co-hosted by Project Sleep & Research Sleep.
“Getting to speak and advocate in D.C. was an experience I’ll never forget! Being able to share my story and use it to encourage legislation that will support everyone in the sleep community inspired me to advocate more. I hope to visit my state capital soon.” – Ebony Lay
About Ebony:
Ebony Lay is an identical twin and telecommunications engineer from Leawood, KS. She was diagnosed with narcolepsy with cataplexy five year ago after experiencing symptoms for 26 years. Ebony is now a trained speaker from Project Sleep’s Rising Voices of Narcolepsy program aiming to share her story to spread awareness about this often misunderstood neurological condition.
Kansas-area friends! Ebony is looking for opportunities to share her story with your audience. Please contact us for more information.
More from Ebony:
Watch Ebony’s Rising Voices of Narcolepsy Story Sharing event:
Ebony Lay’s Rising Voices of Narcolepsy Story Sharing Event
Ebony Lay’s Rising Voices of Narcolepsy Story Sharing Event – Ebony is a telecommunications engineer and identical twin from Leawood, KS. She was diagnosed with narcolepsy and cataplexy five year ago. As a trained speaker of Project Sleep’s Rising Voices program, she is sharing her story to help separate facts from myths and spread awareness about this often misunderstood neurological condition.
Learn more: https://project-sleep.com/rising-voices-of-narcolepsy/
Posted by Project Sleep on Sunday, April 5, 2020
About Rising Voices of Narcolepsy:
To improve public understanding of narcolepsy, Project Sleep’s Rising Voices of Narcolepsy program trains people with narcolepsy to share their stories through public speaking and writing with local communities, healthcare providers, news outlets, blogs and beyond. Combining the power of real-life stories with expert communication strategies, our Rising Voices of Narcolepsy trained speakers and writers are effectively raising awareness and reducing stigma for all those facing narcolepsy.
Like what you see? Learn about Project Sleep’s Rising Voices of Narcolepsy program and check out more content—including articles, interviews, podcasts, and more—here.
1 Comment. Leave new
This was so inspiring and I look forward to meeting you one day Ebony. I was diagnosed right before my freshman year of high school after showing symptoms at 10 years old. I don’t have a understanding support system that project-sleep has made possible for other people like me. It’s been 21yrs and after coming across project-sleep want to tell my story. My life has more meaning now and my condition and story so thank you so much for sharing.