I knew I wanted to raise awareness and had already tried giving a few speeches on my own. I found it difficult to book any engagements and I was having difficulty narrowing my story down to give an effective presentation. The Rising Voices of Narcolepsy program provided exactly the framework I needed, now I can tell that my audiences are intrigued and fascinated by my speech. RVN also gave me a platform, I can say I’ve completed this leadership training program with Project Sleep, which adds to my credibility as a speaker and advocate and makes it easy to book events.
To improve public understanding of narcolepsy, Project Sleep’s Rising Voices of Narcolepsy program trains people with narcolepsy to share their stories through public speaking and writing with local communities, healthcare providers, news outlets, blogs and beyond. Combining the power of real-life stories with expert communication strategies, our Rising Voices of Narcolepsy trained speakers and writers are effectively raising awareness and reducing stigma for all those facing narcolepsy.
Narcolepsy is a chronic neurological disorder of the sleep-wake cycle that affects about three million people worldwide. However, public understanding of narcolepsy is limited, with media portrayals associating narcolepsy with comical sleepiness rather than a medical condition. As a result, people with narcolepsy often face stigma and isolation. Likewise, misconceptions and low awareness perpetuate delays in proper detection and diagnosis.
At the same time, communicating about narcolepsy can be challenging. Many aspects of living with narcolepsy are invisible to peers, family, teachers and even medical professionals.
Rising Voices of Narcolepsy serves the dual purpose of fostering a new generation of narcolepsy patient-advocates spreading narcolepsy awareness while also empowering participants. Personal stories of health and illness are invaluable public education tools. Audiences are much more likely to empathize and retain information when it is delivered by someone with lived experience, giving a real “face” to medical terminology and statistics. Moreover, for those with “invisible illnesses” like narcolepsy, sharing one’s story is a powerful way to find connection, validation and understanding.
We are now accepting applications for our fourth series of Rising Voices of Narcolepsy trainings, to take place online this summer of 2020. Applicants can choose from the following options:
- Eligibility: To be considered for the program, applicants must be age 18 or older and diagnosed with narcolepsy. We will evaluate qualified applicants based on enthusiasm and capability and aim to have a diverse set of participants that represents a wide range of demographics and backgrounds. International applicants are welcome, course is in English.
- Commitment: The training takes about 3-4 hours per week over the month-long course. In addition, participants are expected to spend about 20 – 30 hours over the next year to fulfill the program’s core goals. SPOTS ARE LIMITED, so please be considerate of fellow applicants and apply only if you can fulfill this commitment.
- Cost: There is a $75 tuition fee to enroll in the program.
- Online Learning: These trainings are conducted online, NO travel is required. Participants submit weekly assignments via an online portal and there are optional video meetings to ask questions and foster connections between fellow RVN trainees and staff.
The application deadline is April 15th, 2020 at 12 midnight ET and we will inform applicants of our decision in early May 2020.