Project Sleep’s President & CEO, Julie Flygare, JD, was a featured speaker in The Washington Post’s 2025 Rare Disease Day event: Innovations in research and treatment for rare diseases. The event hosted by Post Live on February 27, 2025, included conversations about the latest efforts to advance medical research, the possibilities spurred by AI, and the critical role of caregivers.
More than 30 million people in the United States are affected by rare diseases, many of which are life-threatening conditions without available treatments. Flygare spoke with Cate McCanless, Chief Corporate Affairs Officer at Harmony Biosciences, on the importance of social support for people and families facing rare diseases.
This clip is just one conversation from the event. Hear more insights from Boomer Esiason, Co-Chair, Boomer Esiason Foundation; Pamela Gavin, CEO, National Organization for Rare Diseases; and Marshall Summar, CEO, Uncommon Cures, with the full recording of Innovations in research and treatment for rare diseases.
Special thanks to Harmony Biosciences for including Project Sleep in this wonderful opportunity to share the importance of social support for people and families facing rare diseases.
