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Meet Grisel: Living with Narcolepsy & Becoming a Voice for the Misunderstood

The Story Behind the Smile Grisel Pantoja received her Bachelor of Arts from Florida International University (FIU) in Psychology and with a minor in education in 2017, and is now pursuing her masters degree in Counseling Psychology with a concentration in mental health. Diagnosed with narcolepsy in 2016, Grisel is now raising awareness by sharing her…

Read Rising Voices of Narcolepsy’s Published Essays

Today, we are thrilled to highlight the published work of Rising Voices of Narcolepsy writers, Anna Marr and Timothy Stroud. Check out their essays and please share to raise awareness! Laugh at Me, Not My Narcolepsy Why I take sleep more seriously than I take myself By: Anna Marr “If you pop a home video in my…

Setting Bold Goals to Advance Progress for Narcolepsy

Project Sleep, a 501(c)(3) non-profit dedicated to raising awareness about sleep health and sleep disorders, is proud to announce bold organizational goals to improve outcomes for people with narcolepsy. THE ISSUE Narcolepsy is a chronic neurological condition of the sleep-wake cycle estimated to affect about 1 in every 2,000 people — that’s 200,000 Americans and…

Sleep In 2018 Sparks Courage and Connection

On March 9-11, 2018, Project Sleep’s Sleep In 2018 rallied individuals around the world to make peace with sleep. This fourth annual event challenged individuals to stay in bed for 12-48 hours while raising awareness (#SleepIn2018) and critical funding for Project Sleep during Sleep Awareness Week. STARS ALIGN WORLDWIDE: 77 Individuals and 16 Teams registered for…

Rising Voices of Narcolepsy 2018 Schedule & Application Launch

On World Sleep Day 2018, Project Sleep is proud to announce that we are now accepting applications for our second set of Rising Voices of Narcolepsy leadership training programs. Taking place over the summer 2018, the program will help people with narcolepsy effectively share their stories with local communities, healthcare providers, news outlets, blogs, and…

17 Members of Congress Send Narcolepsy Research Letter to NIH

Thanks to advocates taking action nationwide, we are thrilled to report that 17 Members of Congress co-signed this important letter sent to the National Institutes of Health (NIH) this week. The letter applauds NIH’s commitment to sleep and circadian research and requests an update on the current size, scope, direction and strategic vision of the…

Meet DJ Fe: Taking Back Control and Finding Meaning with Narcolepsy

While we’ll be dancing with DJ Fe spinning music this Sunday during the Sleep In 2018‘s grand finale REM Dance Party, we wanted to share a bit more about the amazing person behind the rad tunes! DJ Fe has overcome incredible adversity from her military career to living with narcolepsy and becoming one of the hottest DJs out of…

IMPORTANT ALERT: Take Action for Narcolepsy Research

Contact your Member of the House of Representatives and ask them to join the congressional letter regarding the narcolepsy research portfolio at NIH by March 2nd deadline. The Issue Over recent years, Congress has been increasing the budget for the National Institutes of Health (NIH) and a sizable portion of this funding has been going…

Meet our New Board Member, Edward Sweet!

On January 1, 2018, Edward Sweet officially joined the Board of Directors of Project Sleep,  a non-profit organization dedicated to raising awareness of sleep health and sleep conditions. Ed is currently serving as the Treasurer for the organization. “We’re so thrilled to welcome Ed as the newest member of Project Sleep’s Board of Directors,” said…

Your Invitation to Sleep In 2018 for Sleep Awareness Week!

[rev_slider_vc alias=”SleepIn2016″]   YOU’RE INVITED! Project Sleep is thrilled to launch the fourth annual Sleep In 2018 (#SleepIn2018) to raise awareness of sleep health and sleep conditions during Sleep Awareness Week. Over the weekend of March 9-11, 2018, we challenge you to stay in bed for 12 – 48 hours and invite your friends and family to join you or support your Sleep In. Sleep is the misunderstood and often-overlooked pillar of health.…
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