Recent News

Rising Voices of Narcolepsy Schedule & Application

Project Sleep is proud to announce that we are now accepting applications for our newly launched Rising Voices of Narcolepsy program. This leadership training program will help people with narcolepsy effectively share their stories through public speaking or writing with local communities, healthcare providers, news outlets, blogs, and beyond. Through Rising Voices of Narcolepsy, we…

Thank You From College! Jack & Julie Narcolepsy Scholarship Recipients 2016

You made a difference in 2016. You gave students with narcolepsy something intangible: motivation, empowerment, recognition, and a sense of community. Your generosity supported a record fourteen Jack & Julie Narcolepsy Scholarships in 2016. This holiday season, our recipients say thanks to YOU — in their own words from college! Please consider giving the gift of hope and…

PCORI Engagement Conference unites scientists and advocates to make sleep research more patient-centered

The Strategically Leverage Engage and Empower PCOR in Sleep (SLEEP2) project held its first conference on October 7th in Bethesda, Maryland. SLEEP2 is a new project co-led by the University of Arizona, the Sleep Research Network, and Project Sleep and is funded by the Patient-Centered Outcomes Research Institute (PCORI). SLEEP2 aims to engage patients, scientists and other stakeholders as…

Project Sleep & University of Arizona project selected for PCORI Engagement Award

We are thrilled to announce that Project Sleep has been selected for an Eugene Washington Patient-Centered Outcomes Research Institute (PCORI) Engagement Award in collaboration with the University of Arizona and Sleep Research Network. View University of Arizona’s Press Release. The PCORI-funded project, “Strategically Leverage Engage and Empower PCOR in Sleep (SLEEP2)”, is led by Sai Parthasarathy, MD, a professor of medicine at the University…

Meet the 2016 Jack & Julie Narcolepsy Scholarship Recipients

Project Sleep is proud to introduce the 14 recipients of the 2016 Jack & Julie Narcolepsy Scholarship. Please join us in cheering on these inspiring students who exemplify courage and hope while taking on college with narcolepsy. Meet the 2016 Recipients: JackOakdale, NYJack was diagnosed with narcolepsy just recently, although he sought help for several years without success. In high school,…

New Patient-Powered Research Community for Sleep Apnea

The web-based community portal, www.MyApnea.Org, is now recruiting patients with and those at risk for sleep apnea to join a growing community of patients, caregivers and researchers to better understand sleep apnea through information sharing, support and research. The network brings together patients, caregivers, researchers and health care providers to work together in the same…

Re-Cap: SLEEP IN 2016 Superstars Unite Worldwide!

On March 11-13, people and pets around the world took to their beds for SLEEP IN 2016 (#SLEEPIN2016). Participants spent a remarkable 2,017 hours in bed collectively to make peace with sleep! Our second annual SLEEP IN brought together 92 participants from 10 countries (including Australia, Antigua and Barbuda, Canada, France, Germany, Ireland, the Philippines, South Africa and Sweden)…

Dream Big: Jaedyn’s Story – Guest Post by Wendy O’Neal

Project Sleep’s Note: On March 19, 2016, Wendy O’Neal hosted her first NARCOLEPSY: NOT ALONE event with Project Sleep in Fultondale, AL. The event was called Dream Tracers – a play on the phrase “dream chasers” since it was an arts an craft event as well. Everyone had a good time making their signs, learning about…

Project Sleep Challenges You to Make Peace with Sleep

On the weekend of March 11th-13th, 2016, Project Sleep will host its second annual international SLEEP IN to raise awareness about sleep health and sleep disorders during National Sleep Awareness Week as a part of a series of sleep awareness activities. Project Sleep, a nonprofit organization founded by Julie Flygare, organizes and runs the SLEEP…

Becoming a Doctor with Narcolepsy

The following is a guest post sent to us by a young woman with narcolepsy who is in her third year of medical school. She reflects on making a tough decision: whether or not to disclose her diagnosis publicly as a future physician. While I was diagnosed just a year and a half ago, I’ve had…
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