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Narcolepsy Around the World: From Witchcraft to Awareness

Exploring narcolepsy across six continents for World Narcolepsy Day Guest Post by: Kayla Douglas With the inaugural World Narcolepsy Day (Sept. 22, 2019) recognized on six continents in honor of the three million people with narcolepsy worldwide coming up, I started wondering about the faces and stories behind these statistics. My own experience with narcolepsy…

What is Narcolepsy with Cataplexy? Watch Ode to Joy Movie PSA

Recently, Project Sleep proudly partnered with IFC Films and Ode to Joy Director, Jason Winer, to create a narcolepsy with cataplexy PSA. Please share with friends and family to raise critical awareness of narcolepsy today! WATCH NOW: WHAT IS ODE TO JOY? On August 9, 2019, the feature film, Ode to Joy released in select theaters and via video…

This Summer: Speak to Your Senators About Sleep

This summer is a critical time to get involved in sleep advocacy! By visiting your Senators’ local offices this August, you will reach your Senators before they return to Capitol Hill in September to make key decisions that will impact the future of sleep research and awareness.   On July 18, 2019, the Sleep Research…

Meet Your Legislators this Summer to Advocate for Sleep

Join us for an important webinar on July 18th to advance sleep research and awareness.  Friends in the U.S.: Your Members of Congress will be home this August to hear from their constituents (that’s YOU)! By visiting their local offices, you will open your representatives’ eyes to sleep’s insidious but powerful impact on daily living…

Narcolepsy Forum Empowers Texas Community

On Saturday, June 15, 2019, over 90 people from across the state of Texas gathered in Austin for the Central Texas Narcolepsy Forum, co-hosted by Project Sleep and the Austin Narcolepsy Support Group. This unique one-day event aimed to empower the community with updates from the forefront of narcolepsy research, treatments, advocacy and awareness. Expert…

Meet the 2019 Jack & Julie Narcolepsy Scholarship Recipients

Project Sleep awards a record 18 scholarships in 2019 Project Sleep is thrilled to introduce the 18 recipients of the 2019 Jack & Julie Narcolepsy Scholarship program. This is the largest class of recipients to date, with each student receiving $1,000 towards their college education. “This year’s recipients exemplify tenacity and self-awareness—life skills that will…

How Lack of Sleep Affected My Daughter’s Mental Health

Guest Post by Anne Taylor RN, BSN Walking out of the pediatric sleep center with my 12-year-old, she was just diagnosed with narcolepsy without cataplexy, sleep apnea and periodic leg movement disorder, my world stood still and I needed fresh air. The years it took with multiple sleep tests, tonsil and adenoids surgery and more sleep…

House Committee Approves Legislation Supporting Sleep Community Priorities

Advocacy Update Last week, the House Appropriations Committee on Labor, Health and Human Services, and Education (LHHS) advanced a key bill that would provide important funding for sleep research and education projects in Fiscal Year (FY) 2020. The bill includes a total of $41.1 billion in funding for the National Institutes of Health (NIH), an…

Cataplexy and CounterPlay: Why I Want to Play More

Guest Post by Lisa “So I read this thing about how needing to nap is a lot like needing to fart…” When Julie Flygare shared this brilliant and hilarious comparison at the dinner table, an overwhelming urge hit me. It wasn’t a fart, nor was it sleep – it was cataplexy. My body slumped into…
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