Recent News

What Is Sleep Equity?

Kicking off Black History Month, Project Sleep is excited to talk about sleep equity and how it relates to Black Americans. In our mission, sleep equity is one of Project Sleep’s main focuses for improving public health, along with sleep health and sleep disorders. So, what exactly is sleep equity? Sleep equity is the state in…

Launching the 2023 Jack & Julie Narcolepsy Scholarship

This year, Project Sleep is celebrating 10 years of the Jack & Julie Narcolepsy Scholarship! We are so excited to announce that in 2023, the 10th annual Jack & Julie Narcolepsy Scholarship will award 25 scholarships of $1000 each to college-bound students with narcolepsy and idiopathic hypersomnia. Five of these scholarships will be awarded to…

Dr. Lindsay McCullough: Living My Best Life as a Sleep Physician with Narcolepsy

Dr. Lindsay McCullough, MD shared her story as a sleep physician living with narcolepsy in the Fall 2022 issue of the American Academy of Sleep Medicine’s member magazine, Montage. After struggling with unexplained daytime sleepiness and misunderstanding from those around her for ten years, Dr. McCullough was diagnosed with type 2 narcolepsy without cataplexy as…

Meet Our New Board of Directors Member, Diana Anderson!

Please welcome Diana Anderson to the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health and sleep conditions. Diana is a physician assistant currently residing in Knoxville, TN. She was diagnosed with type 2 narcolepsy at the age of 34 after experiencing symptoms for over 10 years. She…

Sleep Apnea Story Sharing: Meet Kristen

Our Rising Voices Story Sharing Series continued with sleep apnea advocate Kristen Cascio! Kristen shared her story of struggling with extreme fatigue and sleepiness through her young adult years, and how getting a sleep apnea diagnosis and treatment changed her life. Emma Cooksey, a Project Sleep Board Member, Rising Voices speaker, and creator of the Sleep Apnea…

FDA Listening Session on Narcolepsy and Idiopathic Hypersomnia

On August 8th, 2022, from 2:00 – 3:30 p.m. EDT, a patient-led Listening Session took place online between the Food and Drug Administration (FDA), Project Sleep, and patient advocates in the narcolepsy and idiopathic hypersomnia community. This 90-minute meeting featured seven patient or caregiver advocate speakers, along with a Project Sleep representative and a clinician.…
Sleep paralysis and hallucinations narcolepsy nerd alert

Narcolepsy Nerd Alert: Sleep Paralysis + Hallucinations

Sleep paralysis and hypnagogic and hypnopompic hallucinations can be confusing and scary. In this broadcast, we talked about these experiences and how to cope with them. Sleep Paralysis + Hallucinations Podcast Sleep Paralysis + Hallucinations Video Meet Our Guests Chelsea Cataldi is a world traveler who enjoys creating things with her hands. She was diagnosed…

Narcolepsy Featured on BBC Podcast

Rising Voices Speaker Shares His Story on ‘Room 5’ Tre Burge, a 2022 Rising Voices graduate, recently shared his narcolepsy story with the BBC’s ‘Room 5’ podcast, which explores life-changing diagnoses and the roads leading to them. Tre’s powerful narrative starts with him lying in bed at age nine, unable to move as a shadowy…

Innovation in Action: Launching Project Sleep’s Expert Advisory Board

Today, Project Sleep is proud to announce the establishment of our innovative Expert Advisory Board. Project Sleep’s Expert Advisory Board includes clinicians, researchers, patients, and advocates who are thought leaders and trailblazers in their respective fields. This powerful group will work together to accelerate our mission of improving public health by educating individuals and communities…

Giving Thanks! 2022 Narcolepsy Scholarship Recipients Report Back From College

This summer, generous donors joined with Project Sleep to award 30 Jack & Julie Narcolepsy Scholarships to college-bound students living with narcolepsy or idiopathic hypersomnia. We caught up with the recipients recently to hear how college life is going and what the scholarship means to them. Read on to discover the profound impact your support…