Recent News

Sleep Advocacy Forum Rallies Leaders & Community

This fall, Project Sleep was honored to facilitate the inaugural Sleep Advocacy Forum virtually on Oct 5-6, 2020. This new event brought together a powerful group of key leaders and sleep advocates to learn from each other and to maximize our collective impact in the policy space. On Monday, Oct. 5, the Sleep Advocacy Forum‘s…

New Narcolepsy Story: Meet Kristyn

The Rising Voices of Narcolepsy Story Sharing Series invites viewers to gather online to watch a Rising Voices of Narcolepsy trained speaker or writer present their story live via Project Sleep’s Facebook page. Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, November 22, 2020 with a new storyteller: Kristyn Beecher! Kristyn shared open and…

Thank You from College! 2020 Scholarship Recipient Updates

This year, generous donors joined with Project Sleep to award a record 27 Jack & Julie Narcolepsy Scholarships to college-bound students exemplifying courage and resilience while living with narcolepsy or idiopathic hypersomnia. We caught up with the awardees to hear how college is going and what this scholarship meant to them. “I feel valued and…

POSTPONED: New Narcolepsy Story: Meet Kristen

POSTPONED: Kristen’s Story Sharing Session (originally scheduled for tonight, Sunday, Nov. 8th at 8pm ET) is postponed due to Tropical Storm Eta hitting South Florida today. Please stay safe Kristen and all our friends in South Florida. We will let you know the re-scheduled date for Kristen’s live broadcast soon! This week, our Rising Voices…

Narcolepsy in 2020: World Narcolepsy Day Expert Panel

In Project Sleep’s feature event for World Narcolepsy Day 2020, a panel of leading narcolepsy clinicians and researchers spoke to our President & CEO, Julie Flygare about  narcolepsy research progress and novel drug development underway. The panel, which represented five continents around the world, also addressed the challenges and barriers in providing care to people with…

New Narcolepsy Story: Meet Victoria

This week, our Rising Voices of Narcolepsy Story Sharing live series is back with a new storyteller: Victoria! On Sunday, October 25 at 8:00 p.m. ET, Victoria will share her narcolepsy story. Afterwards, we’ll host a live viewer Q&A. To join us live, simply head to Project Sleep’s Facebook page at 8pm (ET) this Sunday! If…

Watch: Isiah Thomas Raises Significant Narcolepsy Awareness

On World Narcolepsy Day, Sept. 22, 2020, basketball legend, Isiah Thomas raised awareness about narcolepsy during his appearance on NBA on TNT’s The Arena in advance of the NBA conference finals. WATCH HERE: Raising Narcolepsy Awareness In this clip, Isiah Thomas talks about his daughter’s experience living with narcolepsy and cataplexy (a form of muscle…

World Narcolepsy Day Story Sharing Event: Grisel’s Story in Spanish

This September, our Rising Voices of Narcolepsy Story Sharing Series is hosting special events leading up to World Narcolepsy Day on Sept. 22nd. We are thrilled to feature an event this Sunday in Spanish! (Para información en español, por favor, desplácese hacia abajo.) Join us for a special Spanish-language Rising Voices of Narcolepsy Story Sharing…

Project Sleep Joins AASM to Support First-Ever Student Sleep Health Week

Sept. 14-20 observance to highlight importance of healthy sleep as students go back to school As students start school in unique circumstances this fall, this is a critical time to talk about sleep’s role in promoting learning, functioning and growth. Yet, more than half of American parents say their school-age children and teens are not…

New Sleep Health Disparities Policy Recommendations

Background: On June 8th, 2020, Project Sleep issued this statement standing firmly in solidarity with our Black community members and unequivocally condemning racism. We also made specific pledges including, “to highlight sleep research focused on race, racism, and sleep and health disparities, as well as advocate for more research in this area.” In furtherance of…
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