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Napping in a New Sleeping Pod at My University

Guest Post by Freek Roes, a student studying business economics at Radboud University in the Netherlands and a person living with narcolepsy.  Recently my university acquired a Metronaps sleeping pod, which seems like a very expensive, unnecessarily complicated bed. It’s meant for students to take a nap during the day to recharge. But it can…

Meet Our New Board Member, Anne Taylor, RN, BSN

Please welcome Anne Taylor, RN, BSN, to the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health and sleep conditions. “I am excited to join the Project Sleep’s board of directors, as a parent of a child with narcolepsy, I know on a deep personal level how lonely and scary it…

Watch Now: World Narcolepsy Day Pronouncement

To kick off World Narcolepsy Day, Project Sleep organized a World Narcolepsy Day Pronouncement via FB Live, from World Sleep 2019 in Vancouver, Canada on Sept. 22, 2019. Our president & CEO, Julie Flygare, JD, brought together a very special group of narcolepsy and idiopathic hypersomnia researchers and advocacy leaders to share research updates and…

A Sister’s Surprise on World Narcolepsy Day

Guest Post by: Ana Elena Lara Meet Me In The Park The morning of World Narcolepsy Day, my  sister handed me a shirt and said to meet her at the park. I had planned to take pictures with my World Narcolepsy Day sign that day. Raising awareness is important to me because I went 12 plus years with symptoms before…

Congress Recognizes World Narcolepsy Day – September 22nd

Project Sleep is thrilled to share that Congress recognized World Narcolepsy Day with this statement from Congressman Adam Schiff in the U.S. House of Representatives on Friday, Sept. 20th, in advance of the inaugural World Narcolepsy Day on Sunday, Sept. 22, 2019. RECOGNIZING WORLD NARCOLEPSY DAY ______ HON. ADAM B. SCHIFF of California in the…

Narcolepsy Around the World: From Witchcraft to Awareness

Exploring narcolepsy across six continents for World Narcolepsy Day Guest Post by: Kayla Douglas With the inaugural World Narcolepsy Day (Sept. 22, 2019) recognized on six continents in honor of the three million people with narcolepsy worldwide coming up, I started wondering about the faces and stories behind these statistics. My own experience with narcolepsy…

What is Narcolepsy with Cataplexy? Watch Ode to Joy Movie PSA

Recently, Project Sleep proudly partnered with IFC Films and Ode to Joy Director, Jason Winer, to create a narcolepsy with cataplexy PSA. Please share with friends and family to raise critical awareness of narcolepsy today! WATCH NOW: WHAT IS ODE TO JOY? On August 9, 2019, the feature film, Ode to Joy released in select theaters and via video…

This Summer: Speak to Your Senators About Sleep

This summer is a critical time to get involved in sleep advocacy! By visiting your Senators’ local offices this August, you will reach your Senators before they return to Capitol Hill in September to make key decisions that will impact the future of sleep research and awareness.   On July 18, 2019, the Sleep Research…

Meet Your Legislators this Summer to Advocate for Sleep

Join us for an important webinar on July 18th to advance sleep research and awareness.  Friends in the U.S.: Your Members of Congress will be home this August to hear from their constituents (that’s YOU)! By visiting their local offices, you will open your representatives’ eyes to sleep’s insidious but powerful impact on daily living…
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