Recent News

New Rising Voices of Narcolepsy Story: Meet Olympic Weightlifter Amanda!

Our Rising Voices of Narcolepsy Story Sharing live series continues at 8pm ET on Sunday, January 31 with a new storyteller: Amanda Myers! Amanda competes in olympic weightlifting and is a future veterinary neurologist. She will share her narcolepsy story LIVE on Project Sleep’s Facebook Page. To tune in live, go Project Sleep’s Facebook page…

Narcolepsy Nerd Alert’s Kickoff Event: Narcolepsy Roadmap!

Narcolepsy Nerd Alert’s Kickoff Event: Narcolepsy Roadmap We are ready to launch our new live broadcast series: Narcolepsy Nerd Alert! The series begins this Wednesday, January 27th at 1pm ET on Project Sleep’s Facebook page. “Narcolepsy Roadmap” is our first topic, because navigating narcolepsy doesn’t come with a roadmap, but it should! What do you wish…

New Live Event Series: Narcolepsy Nerd Alert

Project Sleep is thrilled to announce the launch of our brand new live event series: Narcolepsy Nerd Alert! This new series will take a deeper dive into specific topics related to narcolepsy. Hosted by award-winning geek Julie Flygare, each live event invites fellow #NarcolepsyNerds to explore unique aspects of the narcolepsy experience, contemplate bold questions,…

Rising Voices of Narcolepsy Story Sharing Series: Meet Kristen

You’re just doing too much… Somehow, I knew that wasn’t the full story.” — Kristen, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on January 4th, 2021 with a new storyteller: Kristen! Kristen shared her story of living an active life with narcolepsy, getting an accurate diagnosis after 25+ years, and…

Launching the 2021 Jack & Julie Narcolepsy Scholarship

In 2021, Project Sleep’s Jack & Julie Narcolepsy Scholarship program plans to award 25 scholarships of $1000 each to students with narcolepsy and idiopathic hypersomnia. High school seniors diagnosed with narcolepsy or idiopathic hypersomnia planning to attend a four-year college or university starting in Fall 2021 are encouraged to see eligibility and apply! Applications are…

Rising Voices of Narcolepsy Story Sharing Series: Meet Katy

I’m proud to be able to tell my story on my own terms.” — Katy Roden, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, January 10 with storyteller Katy Roden! Katy shared her narcolepsy journey, from being diagnosed as a college freshman to raising awareness as a real estate…

Huge Advocacy Win! Congress Establishes New CDC Chronic Disease Awareness Program

At the beginning of 2020, we asked you to reach out to your members of Congress about a sign-on letter supporting sleep community priorities, including the establishment of a new Chronic Disease Education and Awareness Program at the CDC. Thanks to your advocacy, 41 U.S. Representatives signed onto the letter, putting into motion our community’s…

Rising Voices of Narcolepsy Story Sharing Series: Meet Kim

Before diagnosis, I was just surviving. And that took everything.” — Kim Leatherman, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, December 20, 2020 with storyteller Kim Leatherman! Kim shared her inspiring narcolepsy journey, a testament to the critical need for increased awareness and the power of a family’s love.…

NFL’s Josh Andrews Raises Awareness with My Cause My Cleats

We are so honored that Josh Andrews, offensive guard for the NFL’s New York Jets, is supporting Project Sleep via My Cause My Cleats. Through this program, NFL players have the opportunity to pick a cause that is important to them and represent their chosen organization on custom designed cleats. On December 1, 2020, Andrews…

Rising Voices of Narcolepsy Story Sharing Series: Meet Katie

You need to advocate for yourself.” — Katie Williamsen, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, December 6, 2020 with storyteller Katie Williamsen! Katie shared her passion for raising awareness, insights into adjusting to life with narcolepsy, and the importance of self-advocacy. The Rising Voices of Narcolepsy Story Sharing Series invites…
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