Recent News

DOUBLE Your Impact this Giving Tuesday with up to $15,000 in Matching Funds!

Surreal News! A generous Project Sleep board member just pledged a remarkable $15,000 in matching gift funds to support our #GivingTuesday2019 campaign. Starting now and continuing through #GivingTuesday, December 3, 2019, all donations to Project Sleep will be MATCHED, dollar for dollar, up to $15,000! Donate today and your tax-deductible gift will be MATCHED, dollar for…

Thank You from College! Updates from our 2019 Scholarship Recipients

This year, generous donors joined with Project Sleep to award a record 18 Jack & Julie Narcolepsy Scholarships to college-bound students exemplifying courage and strength while living with narcolepsy or idiopathic hypersomnia. We caught up with the awardees to hear how college is going and what this scholarship meant to them. “Recognition for the challenges…

Napping in a New Sleeping Pod at My University

Guest Post by Freek Roes, a student studying business economics at Radboud University in the Netherlands and a person living with narcolepsy.  Recently my university acquired a Metronaps sleeping pod, which seems like a very expensive, unnecessarily complicated bed. It’s meant for students to take a nap during the day to recharge. But it can…

Meet Our New Board Member, Anne Taylor, RN, BSN

Please welcome Anne Taylor, RN, BSN, to the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health and sleep conditions. “I am excited to join the Project Sleep’s board of directors, as a parent of a child with narcolepsy, I know on a deep personal level how lonely and scary it…

Watch Now: World Narcolepsy Day Pronouncement

To kick off World Narcolepsy Day, Project Sleep organized a World Narcolepsy Day Pronouncement via FB Live, from World Sleep 2019 in Vancouver, Canada on Sept. 22, 2019. Our president & CEO, Julie Flygare, JD, brought together a very special group of narcolepsy and idiopathic hypersomnia researchers and advocacy leaders to share research updates and…

A Sister’s Surprise on World Narcolepsy Day

Guest Post by: Ana Elena Lara Meet Me In The Park The morning of World Narcolepsy Day, my  sister handed me a shirt and said to meet her at the park. I had planned to take pictures with my World Narcolepsy Day sign that day. Raising awareness is important to me because I went 12 plus years with symptoms before…

Congress Recognizes World Narcolepsy Day – September 22nd

Project Sleep is thrilled to share that Congress recognized World Narcolepsy Day with this statement from Congressman Adam Schiff in the U.S. House of Representatives on Friday, Sept. 20th, in advance of the inaugural World Narcolepsy Day on Sunday, Sept. 22, 2019. RECOGNIZING WORLD NARCOLEPSY DAY ______ HON. ADAM B. SCHIFF of California in the…

Narcolepsy Around the World: From Witchcraft to Awareness

Exploring narcolepsy across six continents for World Narcolepsy Day Guest Post by: Kayla Douglas With the inaugural World Narcolepsy Day (Sept. 22, 2019) recognized on six continents in honor of the three million people with narcolepsy worldwide coming up, I started wondering about the faces and stories behind these statistics. My own experience with narcolepsy…

What is Narcolepsy with Cataplexy? Watch Ode to Joy Movie PSA

Recently, Project Sleep proudly partnered with IFC Films and Ode to Joy Director, Jason Winer, to create a narcolepsy with cataplexy PSA. Please share with friends and family to raise critical awareness of narcolepsy today! WATCH NOW: WHAT IS ODE TO JOY? On August 9, 2019, the feature film, Ode to Joy released in select theaters and via video…
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