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Recent News

SPANISH World Narcolepsy Day Story Sharing Event: Mariángela’s Story

Please share with Spanish-speaking family and friends! Rising Voices advocate Mariángela Velásquez joined us on Sept 8 from Madrid, Spain for a very special World Narcolepsy Day Story Sharing in Spanish! Fellow advocate Grisel Pantoja facilitated a Q&A session in Spanish afterwards. (Para información en español, por favor, desplázate hacia abajo.) Watch Now About Mariángela:…

Sleep and Running: Run the Business Podcast

In this first episode of the ‘Run The Business’ podcast, Anthony Gay meets with Julie Flygare, JD, President & CEO of Project Sleep, a non-profit organization dedicated to raising awareness about sleep health, sleep equity, and sleep disorders. Julie talks to Ant about the ways in which running improves her life and how the idea…

Narcolepsy Nerd Alert: Narcolepsy & Napping

Is napping an unwelcome symptom of narcolepsy or a helpful treatment? Got “nap shame?” We got together with special guests Dr. Luis Ortiz and Mary Murray to discuss in our Narcolepsy Nerd Alert live event: “Narcolepsy and Napping” on June 30th, 2021. Narcolepsy and Napping Podcast download transcription Narcolepsy and Napping Toolkit Narcolepsy Nerd Alert…

Narcolepsy Goes to Hollywood!

TV and film characters seem to get narcolepsy at an alarming rate. Is all awareness good awareness? We had an amazing time speaking to Al Jean about featuring narcolepsy during “Every Man’s Dream,” Episode 1 of Season 27 of The Simpsons in 2015, and Anna Marr, an actor and writer living with narcolepsy, about developing…

Narcolepsy Nerd Alert: Friends + Family + Narcolepsy

Supporters mean everything! How can people with narcolepsy and their loved ones foster communication and mutual support? Audience members and special guests Lauren Thomas and Anne Taylor share their insights in “Friends + Family + Narcolepsy.” Friends + Family + Narcolepsy Podcast Download Transcription Friends + Family + Narcolepsy Toolkit Narcolepsy Nerd Alert toolkits accompany…

Narcolepsy Nerd Alert: Narcolepsy & Brain Fog

Having issues with concentration and memory? You’re not alone. In this Narcolepsy Nerd Alert live event,  we explore brain fog, automatic behavior, and micro-sleeps with our featured panelists and audience members. Narcolepsy & Brain Fog Podcast Podcast Transcription Narcolepsy & Brain Fog Toolkit Narcolepsy Nerd Alert toolkits accompany each broadcast. The toolkits are designed for…

Narcolepsy Nerd Alert: Becoming a Narcolepsy Advocate

What does being a narcolepsy advocate mean to you? In this Narcolepsy Nerd Alert live event we discuss advocacy in different contexts with our panelists and audience members, and share tips for advocating with policy makers. Use the buttons below to jump to the different formats of this conversation. Recording Toolkit Podcast Transcription Download the…

Julie Flygare Speaks at APSS Sleep 2022

On June 6, 2022, Project Sleep’s President & CEO, Julie Flygare, JD, spoke on an expert panel at a CME event at APSS SLEEP 2022 in Charlotte, NC. The symposium, “Achieving Optimal Outcomes in Patients with Narcolepsy: Aligning Treatment Goals with Patients” was one of the first CME symposiums to feature a person living with…
Richelle Topping Story Sharing graphic

Rising Voices: Meet Richelle, Film Industry Sleep Advocate

Our Rising Voices Story Sharing live broadcast series continued on Sunday, August 7, 2022 with new storyteller Richelle Topping! Richelle shared her personal journey with narcolepsy – a story about trusting your instincts, turning adversity into opportunity, and discovering how to lift your voice up to help others. Watch Now: About Richelle: Richelle Topping works in…

Narcolepsy Nerd Alert: New & Upcoming Treatments

Medical management of narcolepsy is continuously evolving. Special guest Dr. Anne Marie Morse, DO joined us on Narcolepsy Nerd Alert to discuss new options and exciting possibilities on the horizon. New and Upcoming Treatments Podcast Podcast TranscriptionAll Podcast Episodes New and Upcoming Treatments Toolkit Narcolepsy Nerd Alert toolkits accompany each broadcast. The toolkits are designed…