fbpx

Recent News

Rising Voices of Narcolepsy: Meet Ashley from California

Before narcolepsy, I was a super-busy perfectionist and really hard on myself. Since my diagnosis, I’ve learned to give myself grace and prioritize rest. — Ashley Blankenship, RVN Advocate Our Rising Voices of Narcolepsy Story Sharing live broadcast series continued on October 24, 2021 with new storyteller Ashley Blankenship! Ashley shared her powerful perspectives on…

World Narcolepsy Day 2021: Powerful Artwork from Israel

Today, we are proud to share the artwork of Dana Harel, a woman living with type 1 narcolepsy with cataplexy in Israel. Dana created this captivating multimedia artwork in honor of World Narcolepsy Day on Sept. 22, 2021. © 2021 Dana HarelFrom Dana: This piece is about the two types of narcolepsy – type 1…

Rising Voices of Narcolepsy: Meet Emma, Sleep Apnea Myth Buster!

I’d never heard of anyone like me who had sleep apnea. I started a podcast to challenge stereotypes and raise awareness so fewer people go undiagnosed. — Emma Cooksey, RVN Advocate Our Rising Voices of Narcolepsy Story Sharing live broadcast series continued on October 10, 2021 with new storyteller Emma Cooksey! Emma is the first…

Watch Now: NFL Player Josh Andrews Speaks Out About Narcolepsy

For the first time, Josh Andrews (#68) offensive lineman for the Atlanta Falcons, shares his story of living with narcolepsy in a new video series with Project Sleep to raise global narcolepsy awareness for World Narcolepsy Day (Sept. 22, 2021). Josh Andrews is an American football offensive guard for the Atlanta Falcons of the National…

SPANISH World Narcolepsy Day Story Sharing Event: Alexa’s Story

Please share with Spanish-speaking family and friends! Rising Voices of Narcolepsy advocate Alexa Cuevas joined us on FB Live from Mexico for a very special World Narcolepsy Day Story Sharing in Spanish! Fellow advocate Grisel Pantoja facilitated a Q&A session in Spanish afterwards. (Para información en español, por favor, desplácese hacia abajo.) Watch Video Now: Click here to watch…

World Narcolepsy Day Story Sharing Event: Meet Farah in Ontario!

As an aspiring med student, reassessing my capacity — not my ability — was tough to swallow. But it liberated me to explore new possibilities and passions. — Farah Hasan, RVN Advocate In anticipation of World Narcolepsy Day (Sept 22), new Rising Voices of Narcolepsy storyteller Farah Hasan joined us from Ontario on September 12th,…

World Narcolepsy Day 2021: Get Involved!

Just 3 weeks until the third annual World Narcolepsy Day on Sept. 22nd, 2021. This September, let’s think globally and act locally to elevate narcolepsy awareness worldwide. 6 Easy Ways to Get Involved: 1. Visit the Virtual Photo Booth Let’s celebrate together virtually via the new World Narcolepsy Day Virtual Photo Booth! The virtual photo booth is…

New Rising Voices of Narcolepsy Story: Meet Science Teacher Mary!

I was an adult, I shouldn’t need naps. So instead of getting help, I got better at hiding it. But the naps kept coming. — Mary Murray, RVN Advocate Our Rising Voices of Narcolepsy Story Sharing live broadcast series continued on August 22, 2021 with new storyteller Mary Murray! Mary, a middle school science teacher and…

Sleep Advocacy Webinar & Action Alert Summer 2021

Your voice matters! On Friday, August 6th, 2021 at 2:00 PM ET, Project Sleep hosted an advocacy webinar via Facebook Live. We provided an update on legislative activity impacting medical research, public health, and healthcare coverage and access. We will also discussed opportunities to make your voice heard and connect with your Senators’ offices as…

Rising Voices of Narcolepsy Story Sharing Series: Meet Physician Assistant Diana!

My life with narcolepsy is like going on a beach vacation in hurricane season. I can plan the greatest day, but I can’t stop sleepiness if it’s going to hit. — Diana Anderson, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live broadcast series continued on July 25th, 2021 with storyteller Diana Anderson! Diana,…