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Recent News

White House Sleep Equity Convening

HUGE NEWS! On Tuesday, Nov. 14th, 2023, Project Sleep partnered with the White House Office of Public Engagement to host a Sleep Equity Convening. This meeting was the first-of-its-kind on sleep with the White House. The conversation brought together leaders from 12 sleep-related organizations, professional societies, and patient advocacy organizations including: Airway Revolution Foundation Alliance of…

2023 Sleep Advocacy Forum Focuses on Sleep Equity and Public Health

On Monday Nov 13, 2023, Project Sleep facilitated the fourth annual Sleep Advocacy Forum in Washington, DC. This in-person event brought together a diverse group of policy makers and sleep community leaders to share updates and discuss areas of common interest. Rising Voices Story Sharing from Kristyn Beecher News producer, Rising Voices speaker, and Project…

10th Anniversary Narcolepsy Scholarship Recipients Report from College

In the summer of 2023, Project Sleep and generous donors celebrated the Jack & Julie Narcolepsy Scholarship’s 10th anniversary with 35 scholarships for college-bound students living with narcolepsy or idiopathic hypersomnia. During this month of giving thanks, we’re thanking YOU by sharing the recipients’ updates from college. Read on to learn how much your support…

Julie Flygare Presents at 2023 World Sleep Congress

Project Sleep’s President and CEO, Julie Flygare, spoke at two sessions during the 2023 World Sleep Congress! World Sleep 2023 took place over October 20-25, 2023, in Rio de Janeiro, Brazil. On the first day of the conference, Flygare co-led a session on social impacts and management approaches for central disorders of hypersomnolence. During the…

INDONESIAN Narcolepsy Story Sharing Event: Felicia Elisabeth

Please share with Indonesian-speaking family and friends! Rising Voices advocate Felicia Elisabeth joins us to share her narcolepsy story live in Indonesian! Please share this special event to raise narcolepsy awareness and reduce stigma and delays to diagnosis in Indonesia. (Untuk informasi dalam bahasa Indonesia silahkan lihat dibawah ini.) To tune in LIVE, go to…

World Narcolepsy Day 2023 Elevates Awareness Worldwide

September 22, 2023 marked the fifth annual World Narcolepsy Day, uniting narcolepsy advocates worldwide in a collective effort to combat stigma and elevate global awareness. Our community members voiced their support through social media, creative artworks, videos, events, and much more. Although it’s impossible to encompass the entirety of this remarkable day, we’d like to…

SPANISH Narcolepsy Story Sharing Event: Chiara in Argentina

Rising Voices advocate Chiara Buzzelli joined us from Buenos Aires to share her narcolepsy story live in Spanish! Fellow advocate Grisel Pantoja facilitated a Q&A session in Spanish afterwards. (Para información en español, por favor, desplázate hacia abajo.) Watch Now: About Chiara: Chiara Buzzelli is an occupational therapist in Argentina who loves handcrafts. She was diagnosed…
can a person receive sleep disorder accommodations at work?

Obtaining Sleep Disorder Accommodations at Work

October is National Disability Employment Awareness Month! Project Sleep is proud to share information that may help those living with sleep disorders. See Full Series Can a person with a sleep disorder receive disability accommodations at work? Managing sleep disorders in the workplace is an individualized process depending on the circumstances. In the United States,…

New! World Narcolepsy Day Trivia

Host A Trivia Night! For World Narcolepsy Day (September 22nd), you’re invited to host a trivia event in your community! This toolkit will guide you with everything you need to host your World Narcolepsy Day Trivia game. Using the provided script, it should take you and your participants about 1-1.5 hours to complete. Difficulty Level:…

World Narcolepsy Day 2023: Get Involved!

Just 3 weeks until the fifth annual World Narcolepsy Day on Sept. 22nd, 2023! This September, let’s raise our awareness to new heights. 7 Easy Ways to Get Involved: 1. Become an Ambassador Be a leader in raising awareness! Project Sleep’s World Narcolepsy Day Ambassadors participate in activities, raise funds, and spread the word about…
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