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Recent News

Julie Flygare Speaks at Italian Narcolepsy Seminar

On December 16, 2023, Project Sleep’s President & CEO, Julie Flygare spoke in Bologna, Italy at a Seminar on Narcolepsy hosted by the Italian Narcolepsy Association, AIN (Associazione Italiana Narcolettici e Ipersonni). About 70 people (individuals living with narcolepsy or idiopathic hypersomnia and family members were gathered at the University of Bologna for this meeting. AIN…

Project Sleep Brings Patient Voices to White House Listening Session

Exciting news! On Dec 8, 2023, Project Sleep participated in a White House virtual Listening Session on Burden Reduction. This session focused on decreasing burdens individuals and families face when accessing government benefits and services. Members of the Office of Public Engagement, Office of Management and Budget, and the White House Domestic Policy Council listened…
Sleep paralysis and hallucinations narcolepsy nerd alert

Narcolepsy Nerd Alert: Sleep Paralysis + Hallucinations

Sleep paralysis and hypnagogic and hypnopompic hallucinations can be confusing and scary. In this broadcast, we talked about these experiences and how to cope with them. Sleep Paralysis + Hallucinations Podcast download transcriptionSleep Paralysis + Hallucinations Toolkit Narcolepsy Nerd Alert toolkits accompany each broadcast. The toolkits are designed for people living with narcolepsy and their…
Project Sleep's Sleep Helpline

Project Sleep Launches the Sleep Helpline™

Project Sleep is thrilled to announce the official launch of the Sleep Helpline™, a new national helpline providing timely and trusted resources to help individuals navigate sleep issues and sleep disorders at every step of the journey. “An estimated 50-70 million Americans live with a chronic sleep disorder, yet the majority are undiagnosed,” said Julie…

Sleep Advocates Educate Policymakers on Capitol Hill

On Tuesday, Nov. 14th, 2023, following the White House Sleep Equity Briefing, Project Sleep and other leading sleep organizations visited Capitol Hill to meet with important policymakers in Congress. This 2023 Hill Day activities included 25 sleep community leaders representing 16 different states who visited 29 Congressional offices. Sleep Community Rallies Together Participants included leaders…

White House Sleep Equity Convening

HUGE NEWS! On Tuesday, Nov. 14th, 2023, Project Sleep partnered with the White House Office of Public Engagement to host a Sleep Equity Convening. This meeting was the first-of-its-kind on sleep with the White House. The conversation brought together leaders from 12 sleep-related organizations, professional societies, and patient advocacy organizations including: Airway Revolution Foundation Alliance of…

2023 Sleep Advocacy Forum Focuses on Sleep Equity and Public Health

On Monday Nov 13, 2023, Project Sleep facilitated the fourth annual Sleep Advocacy Forum in Washington, DC. This in-person event brought together a diverse group of policy makers and sleep community leaders to share updates and discuss areas of common interest. Rising Voices Story Sharing from Kristyn Beecher News producer, Rising Voices speaker, and Project…

10th Anniversary Narcolepsy Scholarship Recipients Report from College

In the summer of 2023, Project Sleep and generous donors celebrated the Jack & Julie Narcolepsy Scholarship’s 10th anniversary with 35 scholarships for college-bound students living with narcolepsy or idiopathic hypersomnia. During this month of giving thanks, we’re thanking YOU by sharing the recipients’ updates from college. Read on to learn how much your support…

Julie Flygare Presents at 2023 World Sleep Congress

Project Sleep’s President and CEO, Julie Flygare, spoke at two sessions during the 2023 World Sleep Congress! World Sleep 2023 took place over October 20-25, 2023, in Rio de Janeiro, Brazil. On the first day of the conference, Flygare co-led a session on social impacts and management approaches for central disorders of hypersomnolence. During the…

INDONESIAN Narcolepsy Story Sharing Event: Felicia Elisabeth

Please share with Indonesian-speaking family and friends! Rising Voices advocate Felicia Elisabeth joins us to share her narcolepsy story live in Indonesian! Please share this special event to raise narcolepsy awareness and reduce stigma and delays to diagnosis in Indonesia. (Untuk informasi dalam bahasa Indonesia silahkan lihat dibawah ini.) To tune in LIVE, go to…
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