Project Sleep at SLEEP 2022 in Charlotte, NC!

Project Sleep will be at SLEEP 2022 in Charlotte, North Carolina, June 4th – 8th, 2022! Project Sleep will be involved in the following exciting sessions and activities:

  • Narcolepsy & Pregnancy: Elevating patient and clinician voices to explore best practices and shared decision-making – Tuesday, June 7, 3:15-5:15pm ET
  • Rise of the Patient Voice in Sleep Medicine: The Role of Patient Advocacy Groups in Enhancing Sleep Care – Monday, June 6, 10:30am-12:30pm ET
  • Project Sleep will have a booth (#613) in the exhibitors’ hall from Monday, June 6 to Wednesday, June 8. We will be located in the same area as other sleep non-profit organizations, so come check out all the wonderful resources available in our community!

Narcolepsy & Pregnancy: Elevating patient and clinician voices to explore best practices and shared decision-making

pregnancy and narcolepsy graphicTuesday, June 7, 3:15-5:15pm ET

For people with narcolepsy considering or interested in having children, treatment options for managing symptoms during preconception, pregnancy, and lactation are often limited. This patient-centered session will highlight current clinical practices, the available evidence regarding the risks and benefits of narcolepsy treatment for patients in their childbearing years, lessons learned from management of other chronic diseases during pregnancy, and first-hand testimonials from parents living with narcolepsy.

To learn more about this topic, watch our “Pregnancy & Narcolepsy” episode of Narcolepsy Nerd Alert for an in-depth discussion including patient AND provider perspectives.

Presenters:

 

 

 

 

 

 

Anne Marie Morse, DO
Geisinger Medical Center
Pediatric Neurology

 

 

 

 

 

 

Michelle Zagardo, MA

 

 

 

 

 

 

Ryan Anderson, MBA

 

 

 

 

 

 

A. Dhanya Mackeen, MD, MPH
Geisinger Medical Center
Maternal-Fetal Medicine

 

 

 

 

 

 

Ashley Nutter, MSEd

 

 

 

 

 

 

Diana Anderson, PA-C

Rise of the Patient Voice in Sleep Medicine: The Role of Patient Advocacy Groups in Enhancing Sleep Care

Monday, June 6, 10:30am-12:30pm ET

It can be difficult to fully understand the challenges patients face without directly hearing from them. This discussion group will bring together leaders from both patient advocacy groups and clinicians in the field to highlight resources targeted to patients, review past collaborations between patient advocacy groups and medical specialty societies, and discuss potential future projects and partnerships to tackle issues such as access to sleep care and health disparities in sleep medicine.

Presenters:

Raman Malhotra
Professor of Neurology
Washington University in St. Louis

Julie Flygare
President & CEO
Project Sleep

Monica Gow
Executive Director and Co-Founder
Wake Up Narcolepsy

Sarah Gorman
President
Alliance of Sleep Apnea Partners

Alexandra Wharton
Board Member
Circadian Sleep Disorders Network

Karla Dzienkowski
Executive Director
Restless Legs Syndrome Foundation

Gilles Frydman
Executive Director
American Sleep Apnea Association

Rebecca King
Board Member
Hypersomnia Foundation

Monica Mallampalli
Board Member
Circadian Sleep Disorders Network

SLEEP 2022 is the annual meeting of the Associated Professional Sleep Societies, LLC (APSS), which is a joint venture of the American Academy of Sleep Medicine (AASM) and the Sleep Research Society (SRS).

The SLEEP meeting provides evidence-based education to advance the science and clinical practice of sleep medicine, disseminates cutting-edge sleep and circadian research, promotes the translation of basic science into clinical practice, and fosters the future of the field by providing career development opportunities at all levels. The conference is attended by thousands of individuals from all around the world, many of whom are pioneering leaders in the field.

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