Rising Voices of Narcolepsy Story Sharing Series: Meet Eilís

I may not know what it’s like to be fully awake, but I definitely know what it’s like to be alive.”

— Eilís Finnegan, RVN Speaker

Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, May 17, 2020 with a brand-new storyteller: Eilís Finnegan! Eilís shared her journey, from how her diagnosis as a college sophomore influenced her thesis project to finding creative ways to advocate for sleep research in her career. Afterwards, she answered questions from live viewers.

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About Eilís:

Eilís Finnegan completed her Bachelor of Architecture, Bachelor of Interior Architecture Degrees from Auburn University. Eilís was diagnosed with narcolepsy with cataplexy in 2017 as a college sophomore and is now a trained speaker with Project Sleep’s Rising Voices of Narcolepsy. In her presentation, Eilís educates on the basic facts of narcolepsy while also taking you on a journey through her “dreamscape”— her road to diagnosis, how she creatively manages symptoms today, and how she uses her career in architecture to advocate for research into sleep conditions.

To learn more about Eilís’s work, check out her Thesis Book (Architectural Alterity: An Uncanny Manifesto of De-Familiarization, Displacement, and Dreams).

What is the Story Sharing Series?

The Rising Voices of Narcolepsy Story Sharing Series invites viewers to gather online to watch a Rising Voices of Narcolepsy trained speaker or writer present their story live via Project Sleep’s Facebook page. Project Sleep is proud to offer our monthly series as a weekly event for the next few months. At a time in which many people need connection more than ever, this will increase opportunities for people around the world to engage with and support one another.

About Rising Voices of Narcolepsy:

To improve public understanding of narcolepsy, Project Sleep’s Rising Voices of Narcolepsy program trains people with narcolepsy to share their stories through public speaking and writing with local communities, healthcare providers, news outlets, blogs and beyond. Combining the power of real-life stories with expert communication strategies, our Rising Voices of Narcolepsy trained speakers and writers are effectively raising awareness and reducing stigma for all those facing narcolepsy.

Spread the Word:

We’re excited to share these moving stories with you. Did you see our special Story Sharing event with Project Sleep president & CEO Julie Flygare last week? Watch all past storytellers now!

Please share with friends and family to learn more about narcolepsy!

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