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Recent News

Lindsay McCullough: White woman with chin-length hair smiling and wearing a black blazer.

Dr. Lindsay McCullough: Living My Best Life as a Sleep Physician with Narcolepsy

Dr. Lindsay McCullough, MD shared her story as a sleep physician living with narcolepsy in the Fall 2022 issue of the American Academy of Sleep Medicine’s member magazine, Montage. After struggling with unexplained daytime sleepiness and misunderstanding from those around her for ten years, Dr. McCullough was diagnosed with type 2 narcolepsy without cataplexy as…
Diana Anderson, a white woman with shoulder length brown hair wearing an orange top.

Meet Our New Board of Directors Member, Diana Anderson!

Please welcome Diana Anderson to the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health and sleep conditions. Diana is a physician assistant currently residing in Knoxville, TN. She was diagnosed with type 2 narcolepsy at the age of 34 after experiencing symptoms for over 10 years. She…
White woman with long blonde hair and bangs in a black shirt.

Sleep Apnea Story Sharing: Meet Kristen

Our Rising Voices Story Sharing Series continued with sleep apnea advocate Kristen Cascio! Kristen shared her story of struggling with extreme fatigue and sleepiness through her young adult years, and how getting a sleep apnea diagnosis and treatment changed her life. Emma Cooksey, a Project Sleep Board Member, Rising Voices speaker, and creator of the Sleep Apnea…

FDA Listening Session on Narcolepsy and Idiopathic Hypersomnia

On August 8th, 2022, from 2:00 – 3:30 p.m. EDT, a patient-led Listening Session took place online between the Food and Drug Administration (FDA), Project Sleep, and patient advocates in the narcolepsy and idiopathic hypersomnia community. This 90-minute meeting featured seven patient or caregiver advocate speakers, along with a Project Sleep representative and a clinician.…

Narcolepsy Featured on BBC Podcast

Rising Voices Speaker Shares His Story on ‘Room 5’ Tre Burge, a 2022 Rising Voices graduate, recently shared his narcolepsy story with the BBC’s ‘Room 5’ podcast, which explores life-changing diagnoses and the roads leading to them. Tre’s powerful narrative starts with him lying in bed at age nine, unable to move as a shadowy…
Project Sleep's 30 Expert Advisory Board members.

Innovation in Action: Launching Project Sleep’s Expert Advisory Board

Today, Project Sleep is proud to announce the establishment of our innovative Expert Advisory Board. Project Sleep’s Expert Advisory Board includes clinicians, researchers, patients, and advocates who are thought leaders and trailblazers in their respective fields. This powerful group will work together to accelerate our mission of improving public health by educating individuals and communities…

Giving Thanks! 2022 Narcolepsy Scholarship Recipients Report Back From College

This summer, generous donors joined with Project Sleep to award 30 Jack & Julie Narcolepsy Scholarships to college-bound students living with narcolepsy or idiopathic hypersomnia. We caught up with the recipients recently to hear how college life is going and what the scholarship means to them. Read on to discover the profound impact your support…

Narcolepsy Nerd Alert: Narcolepsy at Work

Navigating the workplace with narcolepsy? Narcolepsy Nerd Alert: Narcolepsy at Work discusses gaining accommodations and practical tips for success. Narcolepsy at Work Podcast download transcription Narcolepsy at Work Toolkit Narcolepsy Nerd Alert toolkits accompany each broadcast. The toolkits are designed for people living with narcolepsy and their loved ones to offer new tools, tips, and…

Sleep Advocates Return to Capitol Hill

After 2.5 years of virtual advocacy, Project Sleep and the Sleep Research Society returned to Washington DC for an in-person Hill Day on Tuesday, October 25th, 2022. Over 30 advocates from 11 states visited over 20 Congressional offices on Capitol Hill to educate and advocate for sleep research and awareness.  Sleep Community Rallies Together Participants…

2022 Sleep Advocacy Forum Rallies Leaders in Washington, DC

On Monday Oct 24, 2022, Project Sleep facilitated the third annual Sleep Advocacy Forum in Washington, DC. This in-person event brought together a diverse group of policy makers and sleep advocates to share updates and discuss areas of common interest. In the morning, Matthew Horsnell kicked off the event sharing his journey from feeling alone…