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Recent News

Narcolepsy Nerd Alert: Narcolepsy and Art

What’s your creative outlet? In this Narcolepsy Nerd Alert broadcast, artists shared their work and discussed the relationship between their creative expression and their narcolepsy journeys. Narcolepsy + Art Toolkit: Narcolepsy Nerd Alert toolkits accompany each broadcast. The toolkits are designed for people living with narcolepsy and their loved ones to offer new tools, tips,…
Rising Voices Story Sharing logo. Tre Burge, a Black man with short dreadlocks, a beard, and black rimmed glasses wearing a black t-shirt smiles for a professional photo. The event time and date are listed as Wednesday, February 22 at 7pm eastern time.

Narcolepsy Story Sharing: Meet Tre

Our Rising Voices Story Sharing Series continued with narcolepsy advocate Tre Burge! After experiencing symptoms throughout his childhood and teenage years, Tre was diagnosed with type 1 narcolepsy with cataplexy at age 18. He now works to educate adults and the next generation about narcolepsy and other sleep disorders in positive, innovative ways. Watch Tre’s Story About…
Rising Voices logo

2023 Rising Voices Applications Are Open!

Raise Your Voice Project Sleep is now accepting applications for our 2023 Rising Voices training! This leadership program trains people with sleep disorders to effectively raise awareness through public speaking.  Rising Voices combines the power of authentic storytelling with expert communication strategies to raise awareness and reduce stigma. Graduates are equipped to share their stories…

Launching the 2023 Jack & Julie Narcolepsy Scholarship

This year, Project Sleep is celebrating 10 years of the Jack & Julie Narcolepsy Scholarship! We are so excited to announce that in 2023, the 10th annual Jack & Julie Narcolepsy Scholarship will award 25 scholarships of $1000 each to college-bound students with narcolepsy and idiopathic hypersomnia. Five of these scholarships will be awarded to…
Lindsay McCullough: White woman with chin-length hair smiling and wearing a black blazer.

Dr. Lindsay McCullough: Living My Best Life as a Sleep Physician with Narcolepsy

Dr. Lindsay McCullough, MD shared her story as a sleep physician living with narcolepsy in the Fall 2022 issue of the American Academy of Sleep Medicine’s member magazine, Montage. After struggling with unexplained daytime sleepiness and misunderstanding from those around her for ten years, Dr. McCullough was diagnosed with type 2 narcolepsy without cataplexy as…
Diana Anderson, a white woman with shoulder length brown hair wearing an orange top.

Meet Our New Board of Directors Member, Diana Anderson!

Please welcome Diana Anderson to the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health and sleep conditions. Diana is a physician assistant currently residing in Knoxville, TN. She was diagnosed with type 2 narcolepsy at the age of 34 after experiencing symptoms for over 10 years. She…
White woman with long blonde hair and bangs in a black shirt.

Sleep Apnea Story Sharing: Meet Kristen

Our Rising Voices Story Sharing Series continued with sleep apnea advocate Kristen Cascio! Kristen shared her story of struggling with extreme fatigue and sleepiness through her young adult years, and how getting a sleep apnea diagnosis and treatment changed her life. Emma Cooksey, a Project Sleep Board Member, Rising Voices speaker, and creator of the Sleep Apnea…

FDA Listening Session on Narcolepsy and Idiopathic Hypersomnia

On August 8th, 2022, from 2:00 – 3:30 p.m. EDT, a patient-led Listening Session took place online between the Food and Drug Administration (FDA), Project Sleep, and patient advocates in the narcolepsy and idiopathic hypersomnia community. This 90-minute meeting featured seven patient or caregiver advocate speakers, along with a Project Sleep representative and a clinician.…

Narcolepsy Featured on BBC Podcast

Rising Voices Speaker Shares His Story on ‘Room 5’ Tre Burge, a 2022 Rising Voices graduate, recently shared his narcolepsy story with the BBC’s ‘Room 5’ podcast, which explores life-changing diagnoses and the roads leading to them. Tre’s powerful narrative starts with him lying in bed at age nine, unable to move as a shadowy…
Project Sleep's 30 Expert Advisory Board members.

Innovation in Action: Launching Project Sleep’s Expert Advisory Board

Today, Project Sleep is proud to announce the establishment of our innovative Expert Advisory Board. Project Sleep’s Expert Advisory Board includes clinicians, researchers, patients, and advocates who are thought leaders and trailblazers in their respective fields. This powerful group will work together to accelerate our mission of improving public health by educating individuals and communities…