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Rising Voices of Narcolepsy Story Sharing Series: Meet Victoria

We all need acceptance and understanding of who we are.” — Victoria, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, October 25, 2020 with a new storyteller: Victoria! Victoria shared honest reflections about family life, social support, and equine love. The Rising Voices of Narcolepsy Story Sharing Series invites viewers to…

Watch: Isiah Thomas Raises Significant Narcolepsy Awareness

On World Narcolepsy Day, Sept. 22, 2020, basketball legend, Isiah Thomas raised awareness about narcolepsy during his appearance on NBA on TNT’s The Arena in advance of the NBA conference finals. WATCH HERE: Raising Narcolepsy Awareness In this clip, Isiah Thomas talks about his daughter’s experience living with narcolepsy and cataplexy (a form of muscle…

World Narcolepsy Day Story Sharing Event: Grisel’s Story in Spanish

In September 2020, the Rising Voices of Narcolepsy Story Sharing Series hosted special events leading up to World Narcolepsy Day on Sept. 22nd. We were thrilled to feature Grisel Pantoja’s story in Spanish on Sunday, September 20th! (Para información en español, por favor, desplácese hacia abajo.) The Rising Voices of Narcolepsy Story Sharing Series invites viewers to…

Project Sleep Joins AASM to Support First-Ever Student Sleep Health Week

Sept. 14-20 observance to highlight importance of healthy sleep as students go back to school As students start school in unique circumstances this fall, this is a critical time to talk about sleep’s role in promoting learning, functioning and growth. Yet, more than half of American parents say their school-age children and teens are not…

New Sleep Health Disparities Policy Recommendations

Background: On June 8th, 2020, Project Sleep issued this statement standing firmly in solidarity with our Black community members and unequivocally condemning racism. We also made specific pledges including, “to highlight sleep research focused on race, racism, and sleep and health disparities, as well as advocate for more research in this area.” In furtherance of…

Project Sleep Co-Leads World Narcolepsy Day 2020

LOS ANGELES, Sept. 8, 2020 — Project Sleep, a national organization that aims to educate individuals about the importance of sleep health, announced today that it is one of the 26 organizations around the world to co-lead the second annual World Narcolepsy Day on Tuesday, Sept. 22, 2020. World Narcolepsy Day is a powerful opportunity for the entire…

World Narcolepsy Day Story Sharing Event: Anne-Claude’s Presentation in French & English

In September 2020, our Rising Voices of Narcolepsy Story Sharing Series hosted three special events leading up to World Narcolepsy Day on Sept. 22nd. Kicking off the month was Rising Voices of Narcolepsy speaker Anne-Claude Foucault, who joined us for two events to share her presentation—once in English and once in French! (informations en français…

Watch Now: Healthcare Providers with Narcolepsy

What’s it like to be a healthcare provider living with narcolepsy? A physician’s assistant, an occupational therapist, and a student pursuing a Masters in Social Work talk about living with narcolepsy, a chronic neurological condition that is often misunderstood and under-recognized, even in the healthcare field. This video features: Kenya Gradnigo, (student pursing Masters in…

New Video: Nurses with Narcolepsy

Today, Project Sleep is proud to release “Nurses with Narcolepsy” — a new video resource featuring two nurses and one nursing student living with narcolepsy. This is part II of our new series highlighting healthcare professionals with narcolepsy during the unprecedented global pandemic. Watch Now This video features: Andrea Sutphin, RN Annie Embertson, RN Connor…

Rising Voices of Narcolepsy Story Sharing Series: Meet Stephanie

It felt like all of the doors had opened back up again & I was living this whole new life.” — Stephanie Manuli, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, August 23, 2020 with a brand-new storyteller: Rising Voices of Narcolepsy trained speaker Stephanie Manuli! College junior (and…
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