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Recent News

Rising Voices of Narcolepsy Story Sharing Series: Meet Brittany

I might have to work ten times harder, but I’m going to do it and I’m going to do it with a smile on my face.” — Brittany Matthews, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, April 12, 2020 with a brand-new speaker: Brittany Matthews! Brittany, who has…

Rising Voices of Narcolepsy Story Sharing Series: Meet Ebony

Knowing I’m not alone in this encourages me to move on, while also giving me the strength to accept that there is no shame in asking for help.” — Ebony Lay, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, April 5, 2020 with a brand-new speaker: Ebony Lay! Ebony…

Rising Voices of Narcolepsy Story Sharing Series: Meet Mindi

That’s what people with narcolepsy do—we work it out.” — Dr. Mindi McKenna, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, March 29, 2020 with Dr. Mindi McKenna! Mindi shared her inspirational presentation and answered questions from live viewers. The Rising Voices of Narcolepsy Story Sharing Series invites viewers to gather…

Rising Voices of Narcolepsy Story Sharing Series: Meet Anna

Our Rising Voices Story Sharing live series continued on Sunday, March 22, 2020 with a brand-new storyteller: writer Anna Marr! Anna read her lively & poignant essay and answered questions reflecting on her experience writing and publishing her essay and about the exciting projects she is working on now. To read along with Anna’s essay…

Tremendous Congressional Support for Sleep and Sleep Disorders

Project Sleep is thrilled to share the news that an unprecedented 41 members of the U.S. House of Representatives signed onto a bipartisan letter on March 17, 2020, supporting critical sleep and sleep disorders research and awareness. Importantly, 41 co-signers is considered a tremendous and impactful success by sign-on letter standards, with nearly 10% of…

Rising Voices of Narcolepsy Story Sharing Series: Meet Katie

Our Rising Voices of Narcolepsy Story Sharing Series continued on Sunday, March 1st, 2020 with a brand-new storyteller, Katie Mehin! Katie, our third speaker, shared her engaging presentation and answered questions from live viewers. The Rising Voices of Narcolepsy Story Sharing Series invites viewers to gather online to watch a Rising Voices of Narcolepsy trained speaker or…

Action Alert: Urge Your Representative to Join Critical Sleep Letter

Your Opportunity to Advocate Exciting news! An official Congressional Sign On Letter will be sent to the Appropriations Committee asking them to prioritize support for critical sleep, circadian, and sleep disorders awareness and medical research. To be effective, we need your Members of the U.S. House of Representatives to “sign on.” The more House Representatives…

Sleep Policy in Progress! Reporting Back from Washington DC

On Monday, Feb. 9, 2020,  Project Sleep and the Sleep Research Society co-hosted an Advocacy Day on Capitol Hill bringing together patient advocates and sleep researchers to urge Congress to support critical sleep research and awareness efforts. The following day, Project Sleep’s President & CEO, Julie Flygare, JD joined sleep researchers to discuss sleep research…

Rising Voices of Narcolepsy 2020: Now Accepting Applications

Raise Your Voice Project Sleep is proud to announce that we are now accepting applications for our fourth series of Rising Voices of Narcolepsy trainings, to take place online this summer of 2020. This leadership training program helps people with narcolepsy effectively share their stories through public speaking or writing with local communities, healthcare providers,…

Project Sleep’s Julie Flygare to Give TEDx Talk

UPDATE: Due to COVID-19, TEDx SDSU 2020 has been re-scheduled for Sunday, Sept. 27, 2020. During this unprecedented and challenging time, we hope everyone is staying healthy and safe. We will provide further updates on TEDx SDSU as details become available closer to the fall. (Updated March 2020) We are thrilled to share the news…
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