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Recent News

Rising Voices of Narcolepsy Story Sharing Series: Meet Kayla

I never knew what would be waiting for me in that place between sleep and wakefulness.” — Kayla Douglas, RVN Writer Our Rising Voices of Narcolepsy Story Sharing live series continued on May 24, 2020, with a brand-new storyteller: Kayla Douglas! Kayla read Scared of the Dark: The Narcolepsy Symptoms That Nobody Talks About, one…

Rising Voices of Narcolepsy Story Sharing Series: Meet Eilís

I may not know what it’s like to be fully awake, but I definitely know what it’s like to be alive.” — Eilís Finnegan, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, May 17, 2020 with a brand-new storyteller: Eilís Finnegan! Eilís shared her journey, from how her diagnosis…

Recognizing Nurses with Narcolepsy for National Nurses Week

Every year, America celebrates National Nurses Week starting on May 6 and ending on May 12, the birthday of Florence Nightingale, a pioneer of modern nursing. The World Health Organization designated 2020 as the Year of the Nurse and the Midwife to “recognize the critical contribution both professions make to global health.” These recognitions are…

Special Broadcast: Julie Flygare’s Narcolepsy Story & Book Reading Live

I was starting to lose moments I wanted to be a part of… No more excuses. Something was wrong.” — Julie Flygare, Project Sleep President & CEO On Sunday, May 10th, 2020 our Rising Voices of Narcolepsy Story Sharing live series continued with a rare online event and book reading with Project Sleep’s President &…

Not Alone with Narcolepsy: Kicking off Mental Health Awareness Month

Today kicks off Mental Health Awareness Month and here at Project Sleep, we believe that mental health and sleep health are closely intertwined. We also believe that both mental health and sleep health are critical and underrated in our society. Living with Narcolepsy? You Are Not Alone. During challenging times, connection is more important than…

Rising Voices of Narcolepsy Story Sharing Series: Meet Rachel

Wakefulness does not equal worth.” — Rachel Miyazaki, RVN Writer Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, May 3, 2020 with a brand-new storyteller: Rachel Miyazaki! Rachel read her thoughtful and witty essay, “The Awakening,” . Afterward, we caught up with Rachel on how she’s been since publication and hosted…

Rising Voices of Narcolepsy Story Sharing Series: Meet Lizzy

I was so proud of myself for just surviving.” — Lizzy Terry, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, April 26, 2020 with a brand-new speaker: Lizzy Terry! Lizzy, a seasoned speaker who has presented to high school and college students across Indiana, shared her narcolepsy story, including…

Watch Now: Interview with Dr. Emmanuel Mignot, Narcolepsy Expert

On Thursday, April 23, 2020 at 6:00 pm ET, Emmanuel Mignot, M.D. Ph.D., Director of the Stanford Center for Sleep Sciences and Medicine spoke with Julie Flygare, J.D., President & CEO of Project Sleep, via Facebook Live for an timely discussion on narcolepsy research, immunology and treatment advancements. Watch VideoNow more than ever, it is…

Sleep In 2020 Makes Peace with Sleep

Project Sleep’s Sleep In 2020 (#SleepIn2020) was a shining example of how the sleep community stands together while apart. The sixth annual Sleep In event took place from March 13-15, 2020. Individuals participating in the Sleep In were challenged to stay in bed between 12-48 hours to raise awareness for sleep disorders and sleep health…

Rising Voices of Narcolepsy Story Sharing Series: Meet Matthew

I may have this condition that makes me weak, but that doesn’t mean I can’t be strong.” — Matthew Horsnell, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, April 19, 2020 with a brand-new speaker: Matthew Horsnell! Matt shared his inspirational presentation with his signature sense of humor, positivity,…