Project Sleep & University of Arizona project selected for PCORI Engagement Award
We are thrilled to announce that Project Sleep has been selected for an Eugene Washington Patient-Centered Outcomes Research Institute (PCORI) Engagement Award in collaboration with the University of Arizona and Sleep Research Network. View University of Arizona’s Press Release.
The PCORI-funded project, “Strategically Leverage Engage and Empower PCOR in Sleep (SLEEP2)”, is led by Sai Parthasarathy, MD, a professor of medicine at the University of Arizona and director of the Center for Sleep Disorders at Banner – University Medical Center Tucson.
SLEEP2 aims to engage patients, scientists and other stakeholders as partners across the entire span of sleep research, from topic generation to conduct of studies to disseminating and implementing research findings.
Project Sleep is proud to be an official sub-awardee on this contract with our president Julie Flygare, JD, serving as a co-investigator along with Rebecca Fuoco, MPH.
“Sleep disorders affect millions of Americans, yet excessive sleepiness often is an invisible and invasive symptom that is under-recognized as a serious health concern in our society,” said Julie Flygare.
“By bringing patient advocates together as healthcare experts alongside other important stakeholders, we will be able to collect invaluable first-hand perspectives of patients and learn together how to better improve outcomes for all those affected by these challenging conditions.”
SLEEP2 and the other projects approved for funding by the PCORI Engagement Award Program were selected through a highly competitive review process in which applications were assessed for their ability to meet PCORI’s engagement goals and objectives, as well as program criteria. For more information about PCORI’s funding to support engagement efforts, visit http://www.pcori.org/content/eugene-washington-pcori-engagement-awards.
PCORI is an independent, non-profit organization authorized by Congress in 2010 to fund comparative effectiveness research that will provide patients, their caregivers, and clinicians with the evidence needed to make better-informed health and health-care decisions. PCORI is committed to seeking input from a broad range of stakeholders to guide its work.
The first of four SLEEP2 events will take place on Friday, Oct. 7, 2016 from 7:30 a.m.- 4:30 p.m., at the Double Tree Hotel in Bethesda, MD. All sleep disorder stakeholders are encouraged to attend. Registration is open to the public: http://www.sleepresearchnetwork.org.
The Oct. 7th meeting will feature keynote presentations by Project Sleep president Julie Flygare and our collaborator Rebecca Fuoco:
- “What is important to patients?” – Julie Flygare, JD
- “Sleep Disorder Communication Guidelines for Researchers.” – Rebecca Fuoco, MPH
This is great! I could not be more EXCITED!
I was diagnosed at age 66…female. I went two years of misery until Doc did MSLT. Using Nuvigil…cuts the nap times in half. NEW doc…will not prescribe Nuvigil unless I get at least 7 hrs sleep/night. I was at about 6 hrs. She claims she will lose her ‘accreditation’ with the Academy….Sleep Medicine..(?) if she does. Any comments please.