On March 5, 2019, Shannon Burkoth gave her first Rising Voices of Narcolepsy presentation to 4th-semester nursing students at Gateway Technical College in Burlington, WI.
“The nursing students were very interested and engaged… Many said they would remember my story because it was personal and informative.” – Shannon
Shannon Burkoth has a background in healthcare and business and lives in Wisconsin with her husband and teenage daughter. She was diagnosed with narcolepsy and cataplexy in 2010. Now, as a Rising Voices of Narcolepsy speaker, she is sharing her story of living with this misunderstood and complicated neurological disorder.
More from Shannon:
You can watch Shannon’s full story as part of the Rising Voices of Narcolepsy Video Series:
About Rising Voices of Narcolepsy:
To improve public understanding of narcolepsy, Project Sleep’s Rising Voices of Narcolepsy program trains people with narcolepsy to share their stories through public speaking and writing with local communities, healthcare providers, news outlets, blogs and beyond. Combining the power of real-life stories with expert communication strategies, our Rising Voices of Narcolepsy trained speakers and writers are effectively raising awareness and reducing stigma for all those facing narcolepsy.