On Monday, Feb. 9, 2020, Project Sleep and the Sleep Research Society co-hosted an Advocacy Day on Capitol Hill bringing together patient advocates and sleep researchers to urge Congress to support critical sleep research and awareness efforts. The following day, Project Sleep’s President & CEO, Julie Flygare, JD joined sleep researchers to discuss sleep research with key leadership at the National Institutes of Health (NIH).
Advocating for Sleep on Capitol Hill
On Monday, Feb. 9, patient advocates and sleep researchers conducted dozens of meetings with federal lawmakers in both the U.S. House of Representatives and the U.S. Senate. The sleep community educated lawmakers on the impact of sleep loss and sleep disorders, and advocated for sleep and sleep disorders research at the National Institutes of Health (NIH), the Veterans Administration, and the Department of Defense. Likewise, the sleep community urged Congress to re-invigorate vital public health initiatives focused on sleep at the Centers for Disease Control and Prevention (CDC).
The patient advocates shared their personal stories of long delays to proper diagnosis and the life-long challenges of living with invisible and under-recognized sleep conditions. These participants came from across the country and represented conditions including sleep apnea, narcolepsy and circadian sleep-wake disorders. In addition, representatives from the American Academy of Sleep Medicine (AASM) and the Society for Research on Biological Rhythms (SRBR) participated.