Recent News

Cataplexy and CounterPlay: Why I Want to Play More

Guest Post by Lisa “So I read this thing about how needing to nap is a lot like needing to fart…” When Julie Flygare shared this brilliant and hilarious comparison at the dinner table, an overwhelming urge hit me. It wasn’t a fart, nor was it sleep – it was cataplexy. My body slumped into…

Public Statement: Narcolepsy Portrayal in Film, Ode to Joy

Public Statement: Narcolepsy Portrayal in Film, Ode to Joy Los Angeles, CA, April 10, 2019 — Project Sleep would like to inform our supporters and the narcolepsy community that we are aware of Ode to Joy — an upcoming feature film depicting a main character portrayal of narcolepsy with cataplexy. The portrayal was inspired by a…

Sleep In 2019: Record-Setting Slumber Party!

THANK YOU to all our participants and supporters who helped make the fifth annual Sleep In 2019 (#SleepIn2019) our best yet! Over the weekend of March 8-10, 2019, Project Sleep challenged individuals to stay in bed for 12-48 hours to raise critical awareness about sleep health and sleep disorders while also raising funds to support Project…

Action Alert: Urge Your Representative to Join Pivotal Sleep Disorders Letter Today

Exciting News! Congressman Adam Schiff, a champion for the sleep disorders community, is leading a congressional sign on letter asking the Appropriations Committee to include recommendations that encourage additional research and public health activities focused on sleep disorders. (Each year, Congress crafts annuals spending bills that provide federal funding for medical research including sleep disorders research.…

Inaugural World Narcolepsy Day to Take Place on Sept. 22, 2019

Project Sleep partners with 21 organizations across six continents to create World Narcolepsy Day Project Sleep is excited to announce that it has come together with 21 other organizations around the world to establish World Narcolepsy Day. This ground-breaking day, which will take place on Sunday, Sept. 22, 2019, will be dedicated to raising critical…

Get Your Exclusive #SleepIn2019 Napper!

“I hope that the Napper can serve as a hug and a reminder to someone that they are not alone, that rest is healing, and that there’s a community of people who care about them.” – Brooke of The Nap Nook We collaborated w/ the Nap Nook to create an exclusive custom #sleepin2019 Napper, a few are now…

Giving Sleep a Voice on Capitol Hill

On Tuesday, February 25, 2019, patient advocates and sleep researchers joined together on Capitol Hill in Washington DC to educate policy makers about the importance of sleep health and sleep disorders. This Hill Day, co-led by the Sleep Research Society and Project Sleep, was part of our collaboration and ongoing efforts to advocate for sleep…

Meet Our New Board Member, Kylee Keskerian!

In 2019, Kylee Keskerian officially joined the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health and sleep conditions. “I’m thrilled to be joining Project Sleep’s Board of Directors,” said Keskerian. “Project Sleep is a trailblazing organization that is breaking down silos and shutting down stereotypes regarding sleep. It’s an…

2019 Rising Voices of Narcolepsy: Now Accepting Applications

Project Sleep is proud to announce that we are now accepting applications for our third series of Rising Voices of Narcolepsy trainings, to take place online this summer of 2019. This leadership training program helps people with narcolepsy effectively share their stories through public speaking or writing with local communities, healthcare providers, news outlets, blogs,…
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