Recent News

Matching Gifts up to $15,000 for #GivingTuesday2018

Friends – we have surreal news today! A generous Project Sleep board member just pledged a remarkable $15,000 in matching gift funds to support our #GivingTuesday2018 campaign. Starting now and continuing through #GivingTuesday, Nov. 27, all donations to Project Sleep will be MATCHED, dollar for dollar, up to $15,000! Donate to Project Sleep today and your tax-deductible gift will…

College Life: 2018 Narcolepsy Scholarship Recipients Report Back

This summer, generous donors joined with Project Sleep to award 14 Jack & Julie Narcolepsy Scholarships to college-bound students exemplifying courage and strength while living with narcolepsy or idiopathic hypersomnia. Recently, we caught up with the awardees to hear about college, managing narcolepsy and what this scholarship has meant to them. star “Inspired to confidently pursue…

Bringing Design Thinking to Narcolepsy

On Saturday, Sept. 15, 2018, Project Sleep hosted “Innovations in Narcolepsy Awareness” as a one-day meeting and interactive workshop at the NonProfit Center in Boston, MA. Over 40 people attended the event, including individuals living with health conditions, loved ones, researchers and healthcare experts. Your Story Matters The day kicked off with introductions and a…

WATCH NOW: Narcolepsy Video with Dr. Mignot, Julie Flygare & Watson

Thank you to everyone who tuned in on Tuesday, Sept. 4, for Project Sleep’s first Facebook Live event featuring Julie Flygare, J.D., President & CEO of Project Sleep, along with special guests, Emmanuel Mignot, M.D. Ph.D., director of the Stanford Center for Sleep Sciences and Medicine, and Watson, a chihuahua with narcolepsy. Watch Video Now: Watch the video: https://www.facebook.com/ProjectSleepAwareness/videos/532777383811403/ Thanks to your…

Recommended Reading: SLEEPYHEAD

Henry Nicholls Wants His Hypocretins Back When he was 21 years old, Henry Nicholls was diagnosed with narcolepsy. While the condition changed his life, it didn’t prevent him from becoming an acclaimed science journalist and author, known throughout the United Kingdom as the “panda expert.” Nicholls, who serves on the board of Narcolepsy UK, decided…

“Ask Us Anything!” Submit Your Questions for Dr. Mignot, Julie Flygare and Watson

Julie Flygare, JDPresident & CEO, Project SleepEmmanuel Mignot, MD, PhDDirector of the Stanford Center for Sleep Sciences and MedicineWatsonChihuahua with narcolepsy Join Project Sleep on Tuesday, Sept. 4, at 7 p.m. ET, for an “Ask Us Anything” Facebook Live event, featuring Julie Flygare, J.D., President & CEO of Project Sleep, along with special guests, Emmanuel Mignot,…

Narcolepsy Scholarship Recipients Graduate College! Jacob’s Update

This week, we are celebrating the college graduation of our very first two Jack & Julie Narcolepsy Scholarships recipients from 2014. Recently, Kendra graduated from the University of St. Thomas and Jacob graduated from The Ohio State! Today, we are sharing Jacob’s awesome update. Read Kendra’s update here. Jacob’s College Graduation Update: Jacob was diagnosed with narcolepsy at age 11. In 2014, he…

Engaging Various Stakeholders Leads to Progress in SLEEP-2 Meeting

On Saturday, June 1, 2018, the fourth and final meeting of the SLEEP-2 program took place in Baltimore, MD in conjunction with the APSS Sleep Meeting 2018. Funded through a PCORI Engagement Award, SLEEP-2 is a two-year project co-lead by the University of Arizona, Project Sleep and the Sleep Research Network, aiming to: engage patients, scientists and…

Narcolepsy Scholarship Recipients Graduate College! Kendra’s Update

This week, we are celebrating the college graduation of our very first two Jack & Julie Narcolepsy Scholarships recipients from 2014. Recently, Kendra graduated from the University of St. Thomas and Jacob graduated from The Ohio State! Today, Kendra shares beautiful reflections on college life and studying abroad with narcolepsy and her story on being a narcolepsy scholarship recipient. Read Jacob’s…

Meet Your Legislators to Share Your Story this Summer

Join us for an important webinar to help advance sleep research and awareness.  Friends in the United States: Your Members of Congress will be home this August to hear from their constituents (that’s YOU)! By visiting your legislators at their local offices and sharing your story, you will open your representatives’ eyes to sleep’s insidious…
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