Recent News

Join Us for the Sleep In 2021 to Re-Energize!

Calling All Sleep Advocates! Please join us for the seventh annual Sleep In 2021 (#SleepIn2021) over the weekend of March 12-14, 2021, to raise awareness about sleep and sleep disorders in celebration of Sleep Awareness Week. Nearly 70 percent of adults report insufficient sleep or rest at least once a month. Almost 70 percent of…

Dr. Girardin Jean-Louis: Black History Month Sleep Leaders Part 1

Written by Anna Marr. Graphics by Eleanor Wales. To celebrate Black History Month, Project Sleep is honored to highlight incredible accomplishments and contributions of Black Americans from across the sleep field—from scientists to advocates. Please join us in celebrating Black excellence by spreading the word about these sleep community leaders! See Full SeriesMeet Dr. Girardin…

Welcome Ana Lara to Project Sleep’s Board of Directors!

In January 2021, Ana Elena Lara joined Project Sleep’s Board of Directors. Ana has been involved with Project Sleep for several years now. In 2019, her family’s inaugural World Narcolepsy Day celebration was featured on Project Sleep’s blog here. “Ana’s creativity, kindness, and community engagement skills makes her poised for leadership,” said Julie Flygare, J.D.,…
Kami Barron Headshot

Meet our New Board Member, Kamali Barron!

Kamali (Kami) Barron comes to Project Sleep’s Board of Directors with extensive non-profit management experience from both the point of view of staff and board member positions. Kami was the Founding Executive Director of her area’s Community Foundation, served in that position for eleven years and built assets to nine million dollars. For five of…

Rising Voices of Narcolepsy Story Sharing Series: Meet Olympic Weightlifter Amanda!

For me, narcolepsy is not a burden. It’s a uniqueness that requires strength and resilience to live with.” — Amanda Myers, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on January 31, 2021 with Amanda Myers, an olympic weightlifter and future veterinary neurologist. Amanda shared her story of ambition, humor, and…

Narcolepsy Nerd Alert’s Kickoff Event: Narcolepsy Roadmap!

Narcolepsy Nerd Alert’s Kickoff Event: Narcolepsy Roadmap Navigating narcolepsy doesn’t come with a roadmap, but it should! What do you wish you had known when you or your loved one was diagnosed? Our first Narcolepsy Nerd Alert live event explored these topics and more, with audience members sharing valuable insight from their experiences. Watch Video…

New Live Event Series: Narcolepsy Nerd Alert

Project Sleep is thrilled to announce the launch of our brand new live event series: Narcolepsy Nerd Alert! This new series will take a deeper dive into specific topics related to narcolepsy. Hosted by award-winning geek Julie Flygare, each live event invites fellow #NarcolepsyNerds to explore unique aspects of the narcolepsy experience, contemplate bold questions,…

Rising Voices of Narcolepsy Story Sharing Series: Meet Kristen

You’re just doing too much… Somehow, I knew that wasn’t the full story.” — Kristen, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on January 4th, 2021 with a new storyteller: Kristen! Kristen shared her story of living an active life with narcolepsy, getting an accurate diagnosis after 25+ years, and…

Launching the 2021 Jack & Julie Narcolepsy Scholarship

In 2021, Project Sleep’s Jack & Julie Narcolepsy Scholarship program plans to award 25 scholarships of $1000 each to students with narcolepsy and idiopathic hypersomnia. High school seniors diagnosed with narcolepsy or idiopathic hypersomnia planning to attend a four-year college or university starting in Fall 2021 are encouraged to see eligibility and apply! Applications are…

Rising Voices of Narcolepsy Story Sharing Series: Meet Katy

I’m proud to be able to tell my story on my own terms.” — Katy Roden, RVN Speaker Our Rising Voices of Narcolepsy Story Sharing live series continued on Sunday, January 10 with storyteller Katy Roden! Katy shared her narcolepsy journey, from being diagnosed as a college freshman to raising awareness as a real estate…
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