Recent News

Narcolepsy Forum Empowers Texas Community

On Saturday, June 15, 2019, over 90 people from across the state of Texas gathered in Austin for the Central Texas Narcolepsy Forum, co-hosted by Project Sleep and the Austin Narcolepsy Support Group. This unique one-day event aimed to empower the community with updates from the forefront of narcolepsy research, treatments, advocacy and awareness. Expert…

Meet the 2019 Jack & Julie Narcolepsy Scholarship Recipients

Project Sleep awards a record 18 scholarships in 2019 Project Sleep is thrilled to introduce the 18 recipients of the 2019 Jack & Julie Narcolepsy Scholarship program. This is the largest class of recipients to date, with each student receiving $1,000 towards their college education. “This year’s recipients exemplify tenacity and self-awareness—life skills that will…

How Lack of Sleep Affected My Daughter’s Mental Health

Guest Post by Anne Taylor RN, BSN Walking out of the pediatric sleep center with my 12-year-old, she was just diagnosed with narcolepsy without cataplexy, sleep apnea and periodic leg movement disorder, my world stood still and I needed fresh air. The years it took with multiple sleep tests, tonsil and adenoids surgery and more sleep…

House Committee Approves Legislation Supporting Sleep Community Priorities

Advocacy Update Last week, the House Appropriations Committee on Labor, Health and Human Services, and Education (LHHS) advanced a key bill that would provide important funding for sleep research and education projects in Fiscal Year (FY) 2020. The bill includes a total of $41.1 billion in funding for the National Institutes of Health (NIH), an…

Cataplexy and CounterPlay: Why I Want to Play More

Guest Post by Lisa “So I read this thing about how needing to nap is a lot like needing to fart…” When Julie Flygare shared this brilliant and hilarious comparison at the dinner table, an overwhelming urge hit me. It wasn’t a fart, nor was it sleep – it was cataplexy. My body slumped into…

Public Statement: Narcolepsy Portrayal in Film, Ode to Joy

Public Statement: Narcolepsy Portrayal in Film, Ode to Joy Los Angeles, CA, April 10, 2019 — Project Sleep would like to inform our supporters and the narcolepsy community that we are aware of Ode to Joy — an upcoming feature film depicting a main character portrayal of narcolepsy with cataplexy. The portrayal was inspired by a…

Sleep In 2019: Record-Setting Slumber Party!

THANK YOU to all our participants and supporters who helped make the fifth annual Sleep In 2019 (#SleepIn2019) our best yet! Over the weekend of March 8-10, 2019, Project Sleep challenged individuals to stay in bed for 12-48 hours to raise critical awareness about sleep health and sleep disorders while also raising funds to support Project…

Action Alert: Urge Your Representative to Join Pivotal Sleep Disorders Letter Today

Exciting News! Congressman Adam Schiff, a champion for the sleep disorders community, is leading a congressional sign on letter asking the Appropriations Committee to include recommendations that encourage additional research and public health activities focused on sleep disorders. (Each year, Congress crafts annuals spending bills that provide federal funding for medical research including sleep disorders research.…

Inaugural World Narcolepsy Day to Take Place on Sept. 22, 2019

Project Sleep partners with 21 organizations across six continents to create World Narcolepsy Day Project Sleep is excited to announce that it has come together with 21 other organizations around the world to establish World Narcolepsy Day. This ground-breaking day, which will take place on Sunday, Sept. 22, 2019, will be dedicated to raising critical…
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