Recent News

Emily’s Fundraiser: Snowmobiling for Narcolepsy

In honor of all those living with narcolepsy, Rising Voices of Narcolepsy speaker, Emily Kreuziger is conducting a fundraiser to support Project Sleep while taking on the Park Rapids Snowmobile Race on Jan 29-30, 2022. As both a person living with narcolepsy and a woman in a male-dominated sport, Emily certainly pushes the envelope as…

Watch Now: More Than Sleepiness With Dr. Emmanuel Mignot

In partnership with MedLive and NORD, Project Sleep is proud to present More than Sleepiness: How Recognizing and Treating Narcolepsy Will Impact the Entire Family featuring Dr. Emmanuel Mignot. This important discussion highlights perspectives from Dr. Mignot and patient advocates regarding: Narcolepsy symptoms Assessment tools Diseases/disorders associated with narcolepsy Current and emerging treatment options Shared…

You’re Invited! 2022 Sleep Research Congressional Briefing

The Sleep Research and Sleep Disorders Patient Communities Cordially Invite You to a Virtual Congressional Briefing: Advancing the Science of Sleep and Circadian Research Release of the National Institutes of Health’s  Sleep Research Plan Tuesday, January 25, 2022 from 1:00 PM – 2:00 PM (Eastern) Join Briefing HereSpeakers Include: Sleep Health Caucus Co-Chairs: Congresswoman Zoe…
pregnancy and narcolepsy graphic

Narcolepsy Nerd Alert: Pregnancy & Narcolepsy

Narcolepsy symptoms and treatment interact with conception, pregnancy, and breastfeeding in complex ways. How do you decide what’s right for your family? Watch our “Pregnancy & Narcolepsy” episode of Narcolepsy Nerd Alert for an in-depth discussion including patient AND provider perspectives. Pregnancy & Narcolepsy Video and Toolkit VideoToolkitVideoToolkit“Pregnancy & Narcolepsy” toolkit containing information, insights, and…

Welcome Kenya Gradnigo to Project Sleep’s Board of Directors!

In January 2022, Kenya Gradnigo joined the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health and sleep conditions. She is a native of Opelousas, LA, and currently resides in Lafayette, LA.  Kenya Gradnigo was diagnosed with type 1 narcolepsy with cataplexy at age 9. In 2015, Kenya…

Meet New Member of Our Board of Directors, Emma Cooksey!

Please welcome Emma Cooksey to the Board of Directors of Project Sleep, a non-profit organization dedicated to raising awareness of sleep health and sleep conditions. Emma Cooksey is a podcast host and writer.  She was diagnosed with obstructive sleep apnea at the age of 30, after more than a decade of unexplained health problems.  Once…

Announcing the 2022 Jack & Julie Narcolepsy Scholarship

In 2022, Project Sleep’s Jack & Julie Narcolepsy Scholarship program plans to award 25 scholarships of $1000 each to college-bound students with narcolepsy and idiopathic hypersomnia. High school seniors diagnosed with narcolepsy or idiopathic hypersomnia planning to attend a four-year college or university starting in Fall 2022 are encouraged to see eligibility and apply! Applications…

Rising Voices of Narcolepsy: Meet Emily, Snowmobile Racer With a Cause!

Snowmobile racing is the only time when I don’t feel like I have narcolepsy at all. — Emily Kreuziger, RVN Advocate Our Rising Voices of Narcolepsy Story Sharing live broadcast series continued on January 9th, 2022 with new storyteller Emily Kreuziger. Emily shared her narcolepsy story and exciting news about snowmobiling to support narcolepsy awareness and…

Your 2021 Impact By The Numbers

As 2021 comes to a close, there are many ways to measure impact, but here are a few numbers showcasing the strength of this community and the difference you helped us make. 54 U.S. Representatives Your advocacy led an unprecedented 54 U.S. Representatives to sign onto this bipartisan letter advancing sleep research and public awareness work. This is a HUGE success by Congressional appropriations…

Rising Voices of Narcolepsy: Meet Juliana from Brazil

If we are flexible and understand people’s lives and conditions, we can have the best they have to give us.” — Juliana Angelim Neves, RVN Advocate Our Rising Voices of Narcolepsy Story Sharing live broadcast series continued on December 12th, 2021 with new storyteller Juliana Angelim Neves! Juliana joined us from Brazil to share her…
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