Recent News

Narcolepsy Nerd Alert: Narcolepsy at Work

Navigating the workplace with narcolepsy? Narcolepsy Nerd Alert: Narcolepsy at Work discusses gaining accommodations and practical tips for success. Narcolepsy at Work Podcast Narcolepsy at Work Toolkit Our downloadable, printable Narcolepsy at Work toolkit is coming soon! Narcolepsy at Work Video Meet Our Guests Tre Burge is a proud Iowa native and paraprofessional working with…

Sleep Advocates Return to Capitol Hill

After 2.5 years of virtual advocacy, Project Sleep and the Sleep Research Society returned to Washington DC for an in-person Hill Day on Tuesday, October 25th, 2022. Over 30 advocates from 11 states visited over 20 Congressional offices on Capitol Hill to educate and advocate for sleep research and awareness.  Sleep Community Rallies Together Participants…

2022 Sleep Advocacy Forum Rallies Leaders in Washington, DC

On Monday Oct 24, 2022, Project Sleep facilitated the third annual Sleep Advocacy Forum in Washington, DC. This in-person event brought together a diverse group of policy makers and sleep advocates to share updates and discuss areas of common interest. In the morning, Matthew Horsnell kicked off the event sharing his journey from feeling alone…

Narcolepsy Nerd Alert: Types of Narcolepsy

What distinguishes narcolepsy type 1, type 2, and idiopathic hypersomnia? Can your diagnosis change? During this exciting broadcast, Dr. Chad Ruoff, MD, shared the latest research and perspectives. Watch Narcolepsy Nerd Alert: Types of Narcolepsy below and stay tuned for the accompanying PDF toolkit coming soon! Types of Narcolepsy Podcast Types of Narcolepsy Toolkit Narcolepsy…

Narcolepsy Nerd Alert: Narrating Narcolepsy

During this exciting live event, leading narcolepsy authors Claire Crisp, Henry Nicholls, and Julie Flygare came together to discuss their books for the first time on Narcolepsy Nerd Alert: Narrating Narcolepsy. The panelists shared behind-the-scenes stories from their publication process and provided tips for aspiring writers. Watch the broadcast below and stay tuned for the accompanying PDF…
Narcolepsy Nerd Alert Health Insurance 101

Narcolepsy Nerd Alert: Health Insurance 101

If you’ve ever felt like navigating health insurance is a full-time job, you’re not alone. Special guest Megan Donnell joined us to share healthcare coverage insights, information, and resources on Narcolepsy Nerd Alert: Health Insurance 101. Watch the video below and download the accompanying PDF toolkit for more information and health insurance resources. Health Insurance 101…

Dr. Emmanuel Mignot and Dr. Masashi Yanagisawa Win the 2023 Breakthrough Prize

Dr. Emmanuel Mignot and Dr. Masashi Yanagisawa have won the 2023 Breakthrough Prize in Life Sciences for discovering the cause of narcolepsy, a chronic neurological condition that impairs the brain’s ability to regulate the sleep-wake cycle. Each year, the Breakthrough Prize awards $15 million across five prizes to top researchers working in the fields of…
pregnancy and narcolepsy graphic

Narcolepsy Nerd Alert: Pregnancy & Narcolepsy

Narcolepsy symptoms and treatment interact with conception, pregnancy, and breastfeeding in complex ways. How do you decide what’s right for your family? Watch our “Pregnancy & Narcolepsy” episode of Narcolepsy Nerd Alert for an in-depth discussion including patient AND provider perspectives. Pregnancy & Narcolepsy Podcast Pregnancy & Narcolepsy Toolkit Narcolepsy Nerd Alert toolkits accompany each…

WND 2021 Live Panel: Narcolepsy Around the World

We celebrated World Narcolepsy Day, Sept. 22, 2021 with an international broadcast, “Narcolepsy Around the World.” People living with narcolepsy joined us from Australia, China, Poland, Germany, Israel, Angola, and Brazil to share their stories and perspectives on awareness, diagnosis, treatment, and support. Narcolepsy Around the World Podcast Narcolepsy Around the World Toolkit Narcolepsy Nerd…

World Narcolepsy Day Story Sharing: Meet Adriana in Bulgaria!

In celebration of World Narcolepsy Day (Sept 22), new Rising Voices storyteller Adriana Andreeva joined us from Sofia, Bulgaria on Sept 18 for Story Sharing! Adriana shared about her daughter’s narcolepsy diagnosis and becoming a patient advocacy leader in Bulgaria. Watch Video About Adriana: Adriana Andreeva lives and works in Sofia, Bulgaria. Her daughter was…