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Recent News

World Narcolepsy Day Story Sharing: Meet Adriana in Bulgaria!

In celebration of World Narcolepsy Day (Sept 22), new Rising Voices storyteller Adriana Andreeva joined us from Sofia, Bulgaria on Sept 18 for Story Sharing! Adriana shared about her daughter’s narcolepsy diagnosis and becoming a patient advocacy leader in Bulgaria. Watch Video About Adriana: Adriana Andreeva lives and works in Sofia, Bulgaria. Her daughter was…

Narcolepsy Nerd Alert: The Science of Narcolepsy

Science nerds, this one’s for you! Project Sleep and special guest Dr. Thomas Scammell, MD dove into the neurobiology of narcolepsy and type 1 v. type 2 v. idiopathic hypersomnia in our Narcolepsy Nerd Alert live event “The Science of Narcolepsy” on August 25th, 2021. The Science of Narcolepsy Podcast download transcriptionThe Science of Narcolepsy…

World Narcolepsy Day 2022: Get Involved!

Just 2 weeks until the fourth annual World Narcolepsy Day on Sept. 22nd, 2022! This September, let’s raise our awareness to new heights. 7 Easy Ways to Get Involved: 1. Become an Ambassador Be a leader in raising awareness! Project Sleep’s World Narcolepsy Day Ambassadors participate in activities, raise funds, and spread the word about…

Narcolepsy Nerd Alert: Navigating School with Narcolepsy

Students with narcolepsy and hypersomnia have the right to an equitable education. How can schools and families work together to ensure opportunities for success? Project Sleep and special guests, 2015 Jack & Julie Narcolepsy Scholarship recipients Kenya Gradnigo and Danielle Brooks discussed in “Navigating School with Narcolepsy.” Watch the video and download the toolkit below.…

World Narcolepsy Day Story Sharing Event: Meet Mariángela in Madrid!

In anticipation of World Narcolepsy Day (Sept 22), new Rising Voices storyteller Mariángela Velásquez joined us from Madrid, Spain on Sept 13 for Story Sharing! Mariángela shared her narcolepsy story and answered audience questions in this Facebook Live event. Mariángela also shared her story in Spanish on 3pm ET on Thurs, Sept 8. Learn more…

SPANISH World Narcolepsy Day Story Sharing Event: Mariángela’s Story

Please share with Spanish-speaking family and friends! Rising Voices advocate Mariángela Velásquez joined us on Sept 8 from Madrid, Spain for a very special World Narcolepsy Day Story Sharing in Spanish! Fellow advocate Grisel Pantoja facilitated a Q&A session in Spanish afterwards. (Para información en español, por favor, desplázate hacia abajo.) Watch Now About Mariángela:…

Sleep and Running: Run the Business Podcast

In this first episode of the ‘Run The Business’ podcast, Anthony Gay meets with Julie Flygare, JD, President & CEO of Project Sleep, a non-profit organization dedicated to raising awareness about sleep health, sleep equity, and sleep disorders. Julie talks to Ant about the ways in which running improves her life and how the idea…

Narcolepsy Nerd Alert: Narcolepsy & Napping

Is napping an unwelcome symptom of narcolepsy or a helpful treatment? Got “nap shame?” We got together with special guests Dr. Luis Ortiz and Mary Murray to discuss in our Narcolepsy Nerd Alert live event: “Narcolepsy and Napping” on June 30th, 2021. Narcolepsy and Napping Podcast download transcription Narcolepsy and Napping Toolkit Narcolepsy Nerd Alert…

Narcolepsy Goes to Hollywood!

TV and film characters seem to get narcolepsy at an alarming rate. Is all awareness good awareness? We had an amazing time speaking to Al Jean about featuring narcolepsy during “Every Man’s Dream,” Episode 1 of Season 27 of The Simpsons in 2015, and Anna Marr, an actor and writer living with narcolepsy, about developing…

Narcolepsy Nerd Alert: Friends + Family + Narcolepsy

Supporters mean everything! How can people with narcolepsy and their loved ones foster communication and mutual support? Audience members and special guests Lauren Thomas and Anne Taylor share their insights in “Friends + Family + Narcolepsy.” Friends + Family + Narcolepsy Podcast Download Transcription Friends + Family + Narcolepsy Toolkit Narcolepsy Nerd Alert toolkits accompany…