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Recent News

Narcolepsy Nerd Alert: Types of Narcolepsy

What distinguishes narcolepsy type 1, type 2, and idiopathic hypersomnia? Can your diagnosis change? During this exciting broadcast, Dr. Chad Ruoff, MD, shared the latest research and perspectives. Watch Narcolepsy Nerd Alert: Types of Narcolepsy below and download the accompanying PDF toolkit! Types of Narcolepsy Podcast download transcriptionTypes of Narcolepsy Toolkit Narcolepsy Nerd Alert toolkits…

Narcolepsy Nerd Alert: Narrating Narcolepsy

During this exciting live event, leading narcolepsy authors Claire Crisp, Henry Nicholls, and Julie Flygare came together to discuss their books for the first time on Narcolepsy Nerd Alert: Narrating Narcolepsy. The panelists shared behind-the-scenes stories from their publication process and provided tips for aspiring writers. Watch the broadcast below and stay tuned for the accompanying PDF…
Narcolepsy Nerd Alert Health Insurance 101

Narcolepsy Nerd Alert: Health Insurance 101

If you’ve ever felt like navigating health insurance is a full-time job, you’re not alone. Special guest Megan Donnell joined us to share healthcare coverage insights, information, and resources on Narcolepsy Nerd Alert: Health Insurance 101. Watch the video below and download the accompanying PDF toolkit for more information and health insurance resources. Health Insurance 101…
pregnancy and narcolepsy graphic

Narcolepsy Nerd Alert: Pregnancy & Narcolepsy

Narcolepsy symptoms and treatment interact with conception, pregnancy, and breastfeeding in complex ways. How do you decide what’s right for your family? Watch our “Pregnancy & Narcolepsy” episode of Narcolepsy Nerd Alert for an in-depth discussion including patient AND provider perspectives. Pregnancy & Narcolepsy Podcast download transcriptionPregnancy & Narcolepsy Toolkit Narcolepsy Nerd Alert toolkits accompany…

WND 2021 Live Panel: Narcolepsy Around the World

We celebrated World Narcolepsy Day, Sept. 22, 2021 with an international broadcast, “Narcolepsy Around the World.” People living with narcolepsy joined us from Australia, China, Poland, Germany, Israel, Angola, and Brazil to share their stories and perspectives on awareness, diagnosis, treatment, and support. Narcolepsy Around the World Podcast download transcriptionNarcolepsy Around the World Toolkit Narcolepsy…

World Narcolepsy Day Story Sharing: Meet Adriana in Bulgaria!

In celebration of World Narcolepsy Day (Sept 22), new Rising Voices storyteller Adriana Andreeva joined us from Sofia, Bulgaria on Sept 18 for Story Sharing! Adriana shared about her daughter’s narcolepsy diagnosis and becoming a patient advocacy leader in Bulgaria. Watch Video About Adriana: Adriana Andreeva lives and works in Sofia, Bulgaria. Her daughter was…

Narcolepsy Nerd Alert: The Science of Narcolepsy

Science nerds, this one’s for you! Project Sleep and special guest Dr. Thomas Scammell, MD dove into the neurobiology of narcolepsy and type 1 v. type 2 v. idiopathic hypersomnia in our Narcolepsy Nerd Alert live event “The Science of Narcolepsy” on August 25th, 2021. The Science of Narcolepsy Podcast download transcriptionThe Science of Narcolepsy…

World Narcolepsy Day 2022: Get Involved!

Just 2 weeks until the fourth annual World Narcolepsy Day on Sept. 22nd, 2022! This September, let’s raise our awareness to new heights. 7 Easy Ways to Get Involved: 1. Become an Ambassador Be a leader in raising awareness! Project Sleep’s World Narcolepsy Day Ambassadors participate in activities, raise funds, and spread the word about…

Narcolepsy Nerd Alert: Navigating School with Narcolepsy

Students with narcolepsy and hypersomnia have the right to an equitable education. How can schools and families work together to ensure opportunities for success? Project Sleep and special guests, 2015 Jack & Julie Narcolepsy Scholarship recipients Kenya Gradnigo and Danielle Brooks discussed in “Navigating School with Narcolepsy.” Watch the video and download the toolkit below.…

World Narcolepsy Day Story Sharing Event: Meet Mariángela in Madrid!

In anticipation of World Narcolepsy Day (Sept 22), new Rising Voices storyteller Mariángela Velásquez joined us from Madrid, Spain on Sept 13 for Story Sharing! Mariángela shared her narcolepsy story and answered audience questions in this Facebook Live event. Mariángela also shared her story in Spanish on 3pm ET on Thurs, Sept 8. Learn more…