Recent News

Bachelorette Hannah Brown Shares Narcolepsy Diagnosis in New Book

As Bachelor Nation digs in to read former Bachelorette Hannah Brown‘s new book God Bless This Mess: Learning to Live and Love Through Life’s Best (and Worst) Moments, readers may be surprised to learn that Hannah Brown is a person living with narcolepsy. Hannah Brown’s New Book Hannah Brown starred on season 15 of ABC’s…
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Register Now: Upcoming Narcolepsy Event with Dr. Emmanuel Mignot

Join us for an expert panel discussion featuring Dr. Emmanuel Mignot alongside people living with narcolepsy in an event designed to provide education and strategies for managing narcolepsy. More than Sleepiness: How Recognizing and Treating Narcolepsy Will Impact the Entire Family takes place on Wednesday, December 8, 2021, at 5pm ET. Registration is required. If…

2021 Sleep Advocacy Forum Educates and Elevates Sleep Field

On Oct. 18-19, 2021, Project Sleep was thrilled to facilitate the second annual virtual 2021 Sleep Advocacy Forum, rallying together a remarkable group of policy makers and sleep advocates to share information and coalesce around areas of common concern. On Monday, Oct. 18th, the Sleep Advocacy Forum‘s Educational Sessions covered an array of timely topics…

British Student Documents Life with Narcolepsy

Today, we proudly share a short documentary film by Scott Norman, a university student in England living with type 1 narcolepsy with cataplexy. Scott created the film about his life with narcolepsy as part of his university coursework. Scott says, “I’ve always wanted to show others what it’s like to live with narcolepsy, as it…

Updates From Our 2021 Narcolepsy Scholarship Recipients

Thank You From College! Acknowledged. Validated. Inspired. Supported. Heard. Your generosity made a profound impact on this year’s 31 Jack & Julie Narcolepsy Scholarship recipients. During this month of giving thanks, we’re thanking YOU by sharing college updates from the 2021 scholarship recipients. “Empowering” “My favorite class in is Philosophy of Human Nature. It is interesting to learn about the way humans…

Rising Voices of Narcolepsy: Meet Poet Elissa

“My limitations as a person with narcolepsy have imbued my life with remarkable clarity and urgency.” — Elissa Mullins, RVN Advocate Our Rising Voices of Narcolepsy Story Sharing live broadcast series continued on November 7th, 2021 with new storyteller Elissa Mullins! Elissa, a writer and librarian from Illinois, joined us to share her narcolepsy journey…

World Narcolepsy Day 2021 Raises Global Awareness

On September 22, 2021, the third annual World Narcolepsy Day brought narcolepsy advocates together from all over the world to fight stigma and raise global awareness. Community members raised their voices through social media, artwork, videos, events, and so much more.  While it would be impossible to capture all the day’s greatness, here are just…

Rising Voices of Narcolepsy: Meet Ashley from California

Before narcolepsy, I was a super-busy perfectionist and really hard on myself. Since my diagnosis, I’ve learned to give myself grace and prioritize rest. — Ashley Blankenship, RVN Advocate Our Rising Voices of Narcolepsy Story Sharing live broadcast series continued on October 24, 2021 with new storyteller Ashley Blankenship! Ashley shared her powerful perspectives on…

Narcolepsy Nerd Alert: New & Upcoming Treatments

Medical management of narcolepsy is continuously evolving. Special guest Dr. Anne Marie Morse, DO joined us on Narcolepsy Nerd Alert to discuss new options and exciting possibilities on the horizon. New and Upcoming Treatments Video & Toolkit VideoToolkitVideoToolkitNarcolepsy Nerd Alert toolkits accompany each broadcast. The toolkits are designed for people living with narcolepsy and their…

World Narcolepsy Day 2021: Powerful Artwork from Israel

Today, we are proud to share the artwork of Dana Harel, a woman living with type 1 narcolepsy with cataplexy in Israel. Dana created this captivating multimedia artwork in honor of World Narcolepsy Day on Sept. 22, 2021. © 2021 Dana HarelFrom Dana: This piece is about the two types of narcolepsy – type 1…
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